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Rarerising

Tax-deductible

Colgate, WI501(c)(3)Since 2020Health Care EIN 85-3253125Revenue $257K in FY2025

On file with the IRSrarerising.org3974 Windemere Dr, 53017-9142 · Colgate, WITax-exempt since Mar 2021Publicly supported charity — 170(b)(1)(A)(vi)

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Deliver patient-centered, evidence-based research, incubate emerging rare disease entities on their journey, and explore novel solutions to positively impact rare disease communities.

501(c)(3) charity; gifts are tax-deductible.
95¢ of each $1 spent went to programs.
Run by 75 volunteers and 1 employee.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 3
filings with a surplus
Average surplus $7K a year · 3% of revenue · last 3 filings
Worth a look: a surplus in 1 of the last 3 filings.
Pt I · Ln 19 · 3 filings
Spent on programs
95%
of spending
Looks good: 95% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
4 mo
of spending, in cash
Looks good: 4.0 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $15K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$4K
4% of total assets
Looks good: liabilities are 4% of assets; 50% or less.
Pt X · Ln 26
Independent board members
5
of 5 voting members
Looks good: 5 of 5 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$257K
+41% vs prior year
Spent
$267K
To programs
95%
Net assets
$86K
By yearFY2022–FY2025
Revenue
$257K
FY2025▲ +41%
Tap a bar for its year
Revenue by fiscal year
FY2022$185K
FY2023$370K
FY2024$182K
FY2025$257K
Expenses
$267K
FY2025▲ +9%
Tap a bar for its year
Expenses by fiscal year
FY2022Not on file
FY2023$277K
FY2024$245K
FY2025$267K
Net assets
$86K
FY2025▼ -10%
Tap a bar for its year
Net assets by fiscal year
FY2022$64K
FY2023$158K
FY2024$96K
FY2025$86K

From the FY2025 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2021.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

95 cents of each dollar spent went to programs.

Program services 95% · $255K Management & general 5% · $12K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

5 people listed on the 990.

Part VII, Section A · reportable compensation
Mousumi Bose
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Gabriela Prudencio
Board Member
$0Pt VII · Sec A
Fernando Sanchez
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
See Rarerising executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Improves healthcare access and quality for underserved people with rare conditions through research and programs.

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Provided by the organization

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1 program · $255K · in their own filed words · FY2025
01

Delivers patient-centered, evidence-based research and explore novel solutions to positively impact underserved communities with rare and serious chronic health conditions.

$255Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2022
American Online Giving Foundation INCFY2022$10K
The Blackbaud Giving FundFY2022$6K
Total grants receivedfrom 2 funders$15K
Grants paid · 2 grants · $40K · 2023–2024
Hemophilia Foundation of Northern CaliforniaCA · FY2024$20,000
Hemophilia Foundation of Northern CaliforniaCA · FY2023$20,000

By the numbers

The FY2025 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$257K
Ln 12
Gifts and grantsLn 1h$257K
Money outPt IX
$267K
Ln 25
Programscol B$255K
Managementcol C$12K
Owns and owesPt X
$86K
net assets · Ln 32
Cash and savingsLn 1–2$89K
Total assetsLn 16$89K
LiabilitiesLn 26$4K
PeoplePt VI, VII
5
listed · VII A
PaidVII A0
Voting boardVI 1a5
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$257K
Total revenueLn 12$257K
Assets in detailPt X, end of year
CashLn 1$89K
Cash and savings togetherLn 1–2$89K
Land, buildings, equipmentLn 10c$479
Total assetsLn 16$89K
LiabilitiesLn 26$4K
Net assetsLn 32$86K
OperationsPt I, VI
EmployeesI 51
VolunteersI 675
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$97K$89K
Land, buildings, equipmentLn 10c$798$479
Total assetsLn 16$97K$89K
LiabilitiesLn 26$2K$4K
Net assetsLn 32$96K$86K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Other salaries and wagesLn 7$65K$59K$7K
Accounting feesLn 11c$3K$3K
Other fees for servicesLn 11g$151K$151K
Advertising and promotionLn 12$101$101
Office expensesLn 13$12K$11K$1K
Information technologyLn 14$5K$5K
TravelLn 17$21K$21K
Conferences, conventions and meetingsLn 19$5K$5K
Depreciation, depletion and amortizationLn 22$319$287$32
InsuranceLn 23$2K$2K
Other expenses (24a–d)Ln 24$4K$3K$602
Total functional expensesLn 25$267K$255K$12K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $257K$267K−$10K$86K 990 PDF
FY2024 $182K$245K−$62K$96K 990 PDF
FY2023 $370K$277K$93K$158K 990 PDF
FY2022 $185K$64K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $257,106 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $182,325$257,106
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenuePrior year $182,325$257,106
I-13 Grants and similar amounts paidPrior year $20,000$0
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $62,372$65,129
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $162,199$201,955
I-18 Total expensesPrior year $244,571$267,084
I-19 Revenue less expensesPrior year −$62,246−$9,978
Part VI · Governance 5 of 5 board members independent, 1 to look at
VI-1a Voting members of the governing body5
VI-1b Independent voting members5
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $257,106 across 3 lines filed
VIII-1f All other contributions, gifts and grants$257,106
VIII-1h Total contributions, gifts and grants$257,106
VIII-12 Total revenue$257,106
Part IX · Statement of functional expenses $267,084 across 11 lines filed
IX-7 Other salaries and wagesPrograms $58,616 · Management $6,513$65,129
IX-11c Accounting feesManagement $2,592$2,592
IX-11g Other fees for servicesPrograms $150,577$150,577
IX-12 Advertising and promotionPrograms $101$101
IX-13 Office expensesPrograms $11,349 · Management $1,017$12,366
IX-14 Information technologyPrograms $4,684$4,684
IX-17 TravelPrograms $21,404$21,404
IX-19 Conferences, conventions and meetingsPrograms $4,661$4,661
IX-22 Depreciation, depletion and amortizationPrograms $287 · Management $32$319
IX-23 InsuranceManagement $1,525$1,525
IX-24 Other expenses (24a–d)Programs $3,124 · Management $602$3,726
IX-25 Total functional expensesPrograms $254,803 · Management $12,281 · Fundraising $0$267,084
Part X · Balance sheet $89,210 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $96,608$88,731
X-10c Land, buildings and equipment, netStart of year $798$479
X-16 Total assetsStart of year $97,406$89,210
X-17 Accounts payable and accrued expensesStart of year $1,812$3,594
X-26 Total liabilitiesStart of year $1,812$3,594
X-27 Net assets without donor restrictionsStart of year $95,594$85,616
X-32 Total net assets or fund balancesStart of year $95,594$85,616
X-33 Total liabilities and net assetsStart of year $97,406$89,210
Part XI · Reconciliation of net assets $85,616 net assets at year end
XI-1 Total revenue$257,106
XI-2 Total expenses$267,084
XI-3 Revenue less expenses−$9,978
XI-4 Net assets at start of year$95,594
XI-10 Net assets at end of year$85,616

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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