Once Upon a Preemie INC: Nonprofit Profile, Financials & Form 990 (EIN 85-1295999)

Revenue by fiscal year
FY2021	$199K
FY2022	$184K
FY2023	$478K
FY2024	$585K

Expenses by fiscal year
FY2021	Not on file
FY2022	Not on file
FY2023	$254K
FY2024	$323K

Net assets by fiscal year
FY2021	$172K
FY2022	$177K
FY2023	$260K
FY2024	$504K

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 2020.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

70 cents of each dollar spent went to programs.

70%

20%

Program services 70% · $226K Management & general 20% · $65K Fundraising 10% · $32K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

3 people listed on the 990; $68K paid to officers and key staff.

Part VII, Section A · reportable compensation

Jenne Johns

President

$68,000Pt VII · Sec A

Stephanie Johns

Secretary

$0Pt VII · Sec A

Armenda Pettey

Vice President

$0Pt VII · Sec A

Jenne Johns’s $68K as President is at the 52nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Once Upon a Preemie INC executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Advocates for Black preemie families, pioneering solutions for neonatal equity.

Questions for Once Upon a Preemie INC

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1 program · $226K · in their own filed words · FY2024

01

Program expense- once upon a preemie inc. Is a black women-led non-profit organization committed to pioneering solutions for neonatal equity to center black preemie family experiences.

$226Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record

Grants received · FY2024

Family Health Initiatives INCFY2024$179K

Fidelity Investments Charitable Gift FundFY2024$10K

Womens WayFY2024$10K

Total grants receivedfrom 3 funders$200K

See all 3 funders →

By the numbers

The FY2024 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$585K

Ln 12

Gifts and grantsLn 1h$585K

Money outPt IX

$323K

Ln 25

Programscol B$226K

Managementcol C$65K

Fundraisingcol D$32K

Owns and owesPt X

$504K

net assets · Ln 32

Cash and savingsLn 1–2$453K

Total assetsLn 16$504K

LiabilitiesLn 26$0

PeoplePt VI, VII

3

listed · VII A

PaidVII A1

Voting boardVI 1a3

IndependentVI 1b3

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$585K

Government grantsLn 1e$187K

Total revenueLn 12$585K

Assets in detailPt X, end of year

CashLn 1$453K

Cash and savings togetherLn 1–2$453K

Pledges and grants receivableLn 3$51K

Total assetsLn 16$504K

LiabilitiesLn 26$0

Net assetsLn 32$504K

OperationsPt I, VI

EmployeesI 51

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13No

Records policyVI 14No

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY24	End FY24
Cash and savingsLn 1–2	$267K	$453K
Total assetsLn 16	$267K	$504K
LiabilitiesLn 26	$7K	$0
Net assetsLn 32	$260K	$504K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Other salaries and wagesLn 7	$143K	$100K	$29K	$14K
Management feesLn 11a	$15K	$10K	$3K	$1K
Legal feesLn 11b	$6K	$4K	$1K	$575
Office expensesLn 13	$15K	$11K	$3K	$2K
TravelLn 17	$12K	$8K	$2K	$1K
InsuranceLn 23	$10K	$7K	$2K	$1K
Other expenses (24a–d)Ln 24	$122K	$85K	$24K	$12K
Total functional expensesLn 25	$323K	$226K	$65K	$32K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest ViewingFiled with the IRS Nov 17, 2025	$585K	$323K	$262K	$504K	990 PDF
FY2023Filed with the IRS Sep 30, 2024	$478K	$254K	$225K	$260K	990 PDF
FY2022Filed with the IRS May 15, 2023	$184K			$177K	990 PDF
FY2021Filed with the IRS Mar 11, 2022	$199K			$172K	990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2024 990 (6 parts)

Part I · Summary $584,702 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $478,200$584,702

I-9 Program service revenue$0

I-10 Investment income$0

I-11 Other revenue$0

I-12 Total revenuePrior year $478,200$584,702

I-13 Grants and similar amounts paid$0

I-14 Benefits paid to members$0

I-15 Salaries and benefitsPrior year $74,900$143,134

I-16a Professional fundraising fees$0

I-17 Other expensesPrior year $178,630$179,953

I-18 Total expensesPrior year $253,530$323,087

I-19 Revenue less expensesPrior year $224,670$261,615

Part VI · Governance 3 of 3 board members independent, 3 to look at

VI-1a Voting members of the governing body3

VI-1b Independent voting members3

VI-13 Written whistleblower policyNo

VI-14 Document retention and destruction policyNo

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

Part VIII · Statement of revenue $584,702 across 4 lines filed

VIII-1e Government grants$187,121

VIII-1f All other contributions, gifts and grants$397,581

VIII-1h Total contributions, gifts and grants$584,702

VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$584,702

Part IX · Statement of functional expenses $323,087 across 7 lines filed

IX-7 Other salaries and wagesPrograms $100,194 · Management $28,627 · Fundraising $14,313$143,134

IX-11a Management feesPrograms $10,378 · Management $2,965 · Fundraising $1,483$14,826

IX-11b Legal feesPrograms $4,025 · Management $1,150 · Fundraising $575$5,750

IX-13 Office expensesPrograms $10,698 · Management $3,056 · Fundraising $1,528$15,282

IX-17 TravelPrograms $8,267 · Management $2,362 · Fundraising $1,181$11,810

IX-23 InsurancePrograms $7,274 · Management $2,078 · Fundraising $1,039$10,391

IX-24 Other expenses (24a–d)Programs $85,326 · Management $24,378 · Fundraising $12,190$121,894

IX-25 Total functional expensesPrograms $226,162 · Management $64,616 · Fundraising $32,309$323,087

Part X · Balance sheet $503,601 assets, 11 lines filed

X-1 Cash, non-interest-bearingStart of year $267,000$452,601

X-3 Pledges and grants receivable$51,000

X-16 Total assetsStart of year $267,000$503,601

X-26 Total liabilitiesStart of year $7,400$0

X-27 Net assets without donor restrictionsStart of year $154,300$238,640

X-28 Net assets with donor restrictionsStart of year $105,300$264,961

X-29 Capital stock or trust principalStart of year $0$0

X-30 Paid-in or capital surplusStart of year $0$0

X-31 Retained earnings or endowmentStart of year $0$0

X-32 Total net assets or fund balancesStart of year $259,600$503,601

X-33 Total liabilities and net assetsStart of year $267,000$503,601

Part XI · Reconciliation of net assets $503,601 net assets at year end

XI-1 Total revenue$584,702

XI-2 Total expenses$323,087

XI-3 Revenue less expenses$261,615

XI-4 Net assets at start of year$259,600

XI-10 Net assets at end of year$503,601

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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