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Don't Forget Me FY2020 filing

Tax-deductible

W Bloomfield, MI501(c)(3)Since 2019Diseases & Disorders EIN 84-3358278Revenue $241K in FY2020

On file with the IRSdontforgetmorgan.org2200 Uplong St, 48324-1878 · W Bloomfield, MITax-exempt since Feb 2020Publicly supported charity — 170(b)(1)(A)(vi)

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The mission of the organization is to raise money to fund research to find a cure and a therapy for children with bpan. Beta-propeller protein- associated neurodegeneration (bpan) is a genetic disorder that damages the nervous system. IT is a progressive disease found in children. There are only 500 known cases in the entire world, and there is very little research being done.

501(c)(3) charity; gifts are tax-deductible.
100¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 6
filings with a surplus
Average surplus $45K a year · 13% of revenue · last 6 filings
Fine: a surplus in 4 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
100%
of spending
Looks good: 100% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
21 mo
of spending, in cash
Looks good: 21.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
3
named funders · $85K
Looks good: 3 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
7
of 7 voting members
Looks good: 7 of 7 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$241K
Spent
$87K
To programs
100%
Net assets
$154K
By yearFY2020–FY2025
Revenue
$241K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$241K
FY2021$505K
FY2022$276K
FY2023$372K
FY2024$166K
FY2025$473K
Expenses
$87K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$87K
FY2021$241K
FY2022$435K
FY2023$210K
FY2024$316K
FY2025$473K
Net assets
$154K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$154K
FY2021$418K
FY2022$259K
FY2023$421K
FY2024$271K
FY2025$271K

From the FY2020 Form 990 · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Feb 2020.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

100 cents of each dollar spent went to programs.

Program services 100% · $87K

Form 990 Part IX, line 25. Every line is in By the numbers.

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Who runs it and what they're paid

5 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Rod Wood
Director
$0Pt VII · Sec A
Jay Colvin
Treasurer
$0Pt VII · Sec A
Kelly Kozole
President
$0Pt VII · Sec A
Kevin Kozole
Secretary
$0Pt VII · Sec A
See Don't Forget Me executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research to find a cure and therapy for children with BPAN.

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Provided by the organization

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1 program · $87K · in their own filed words · FY2020
01

The organization awarded sanford research with a 15,000 grant for bpan research in 2020. The organization also donated 70,000 to the university of michigan medical school's department of neurology as part of an overall gift of 140,000 paid over two years. The donation is to be used to fund bpan research.

$87Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Paypal Charitable Giving FundFY2024$48K
The Blackbaud Giving FundFY2024$30K
National Philanthropic TrustFY2024$8K
Total grants receivedfrom 3 funders$85K
See all 3 funders →
Grants paid · 21 grants · $1.7M · 2020–2025
Individual RecipientFY2025$316,343
Johns Hopkins University & MedicineFY2025$80,000
Children's Hospital of PhiladelphiaFY2025$70,000
Mass General Hospital ResearchFY2024$145,326
Individual RecipientFY2024$74,909
Johns Hopkins University & MedicineFY2024$72,000
University of Michigan House Officers AssociationMI · FY2023$90,000
Children's Hospital of PhiladelphiaFY2023$75,000
Harpers Hope INCKY · FY2023$42,697
Mass General Hospital ResearchFY2022$145,326
Individual RecipientFY2022$90,000
Children's Hospital of PhiladelphiaFY2022$75,000
Individual RecipientFY2022$49,028
Harpers Hope INCKY · FY2022$42,697
Johns Hopkins University & MedicineFY2022$24,500
University of Michigan House Officers AssociationMI · FY2022$5,500
Harvard UniversityFY2021$145,326
Individual RecipientFY2021$49,027
See all 21 grants →

By the numbers

The FY2020 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$241K
Ln 12
Gifts and grantsLn 1h$241K
Money outPt IX
$87K
Ln 25
Programscol B$87K
Owns and owesPt X
$154K
net assets · Ln 32
Cash and savingsLn 1–2$154K
Total assetsLn 16$154K
LiabilitiesLn 26$0
PeoplePt VI, VII
5
listed · VII A
PaidVII A0
Voting boardVI 1a7
IndependentVI 1b7
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$241K
Government grantsLn 1e$121K
Total revenueLn 12$241K
Assets in detailPt X, end of year
CashLn 1$154K
Cash and savings togetherLn 1–2$154K
Total assetsLn 16$154K
LiabilitiesLn 26$0
Net assetsLn 32$154K
OperationsPt I, VI
EmployeesI 50
VolunteersI 62
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$154K
Total assetsLn 16$0$154K
LiabilitiesLn 26$0$0
Net assetsLn 32$0$154K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$85K$85K
Other expenses (24a–d)Ln 24$2K$2K
All other expensesLn 24e$15$15
Total functional expensesLn 25$87K$87K$0$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $473K$473K$568$271K 990 PDF
FY2024 $166K$316K−$150K$271K 990 PDF
FY2023 $372K$210K$162K$421K 990 PDF
FY2022 $276K$435K−$159K$259K 990 PDF
FY2021 $505K$241K$264K$418K 990 PDF
FY2020 Viewing $241K$87K$154K$154K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $240,757 revenue, 12 lines filed
I-8 Contributions and grants$240,757
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenue$240,757
I-13 Grants and similar amounts paid$85,000
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expenses$1,523
I-18 Total expenses$86,523
I-19 Revenue less expenses$154,234
Part VI · Governance 7 of 7 board members independent, 5 to look at
VI-1a Voting members of the governing body7
VI-1b Independent voting members7
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
Part VIII · Statement of revenue $240,757 across 4 lines filed
VIII-1e Government grants$120,757
VIII-1f All other contributions, gifts and grants$120,000
VIII-1h Total contributions, gifts and grants$240,757
VIII-12 Total revenue$240,757
Part IX · Statement of functional expenses $86,523 across 3 lines filed
IX-1 Grants to domestic organizationsPrograms $85,000$85,000
IX-24 Other expenses (24a–d)Programs $1,508$1,508
IX-24e All other expensesPrograms $15$15
IX-25 Total functional expensesPrograms $86,523 · Management $0 · Fundraising $0$86,523
Part X · Balance sheet $154,234 assets, 6 lines filed
X-1 Cash, non-interest-bearing$154,234
X-16 Total assetsStart of year $0$154,234
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictions$154,234
X-32 Total net assets or fund balancesStart of year $0$154,234
X-33 Total liabilities and net assetsStart of year $0$154,234
Part XI · Reconciliation of net assets $154,234 net assets at year end
XI-1 Total revenue$240,757
XI-2 Total expenses$86,523
XI-3 Revenue less expenses$154,234
XI-10 Net assets at end of year$154,234

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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