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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Amyotrophic Lateral Sclerosis Assn Leading the fight to cure and treat als through research, advocacy and care services. 13-3271855 · FY2024 Arlington, VA $68.6M $82.2M $107.2M 69% 23% — 501(c)(3)
Alzheimer's Disease Research Foundation To fund RESEARCH with the highest probability of preventing, slowing or reversing ALZHEIMER'S DISEASE. All… 52-2396428 · FY2024 Wellesley Hills, MA $31.8M $37.0M $43.2M 91% 5% 38 501(c)(3)
Institute for Neurodegenerative Disorders INC Medical research to learn about causes and possible cures for NEURODEGENERATIVE DISORDERS such as alzheimer… 06-1582206 · FY2024 New Haven, CT $22.0M $18.9M $14.6M 94% 0% 21 501(c)(3)
Families of Spinal Muscular Atrophy Cure sma leads the way to a world without SPINAL MUSCULAR ATROPHY, the number one genetic cause of death for… 36-3320440 · FY2024 Elk Grove Vlg, IL $15.2M $14.0M $10.6M 77% 13% 61 501(c)(3)
Huntington S Disease Foundation To fund transformative research to find treatments, and ultimately a cure, for huntington's DISEASE. 23-7376197 · FY2024 New York, NY $7.9M $4.5M $23.1M 86% 7% 4 501(c)(3)
Curepsp INC To raise awareness, build community, improve care and find a cure for psp, cbd and msa. 52-1704978 · FY2023 New York, NY $5.1M $4.8M $11.0M 80% 9% 17 501(c)(3)
Neuroendocrine Tumor Research Foundation To fund RESEARCH to discover cures and more effective treatments for NEUROENDOCRINE cancers. The netrf is… 20-1945347 · FY2024 Quincy, MA $4.0M $3.8M $27.6M 79% 13% 7 501(c)(3)
Peer Support and Advocacy Network PEER SUPPORT and ADVOCACY network's (psan) mission is to build a community, free of stigma, where individuals… 75-3065438 · FY2024 Pittsburgh, PA $2.0M $2.0M $1.6M 66% 0% 58 501(c)(3)
Cerebral Palsy Alliance Research Foundation Cparf funds US-based RESEARCH to change what's possible for people with CEREBRAL PALSY, implements proven… 47-4851754 · FY2024 New York, NY $1.9M $2.4M $1.4M 66% 28% 8 501(c)(3)
Ataxia Telangiectasia Childrens Project INC Organizing and supporting innovative research, conferences, clinical teams, data platforms and biomarkers to… 65-0427215 · FY2024 Coconut Creek, FL $1.8M $2.2M $3.1M 88% 7% 4 501(c)(3)
Inadcure Foundation INC Research towards possible treatment and cure for infantile neuroaxonal dystrophy 81-4763783 · FY2025 Fairfield, NJ $1.6M $660.2K $1.5M 90% 3% — 501(c)(3)
Neurodegenerative Disease Research INC Our goal is to facilitate research that will bring new treatments to those suffering from neurodegenerative… 85-0520661 · FY2024 Reddick, FL $1.6M $1.5M $248.4K 98% 0% 1 501(c)(3)
Amyotrophic Lateral Sclerosis Assoc The AMYOTROPHIC LATERAL SCLEROSIS association's mission is to raise money to assist in finding a cure for als… 94-3124723 · FY2021 Saint Paul, MN $1.2M $1.1M $0 83% 10% 9 501(c)(3)
Adnp Kids Research Foundation Rare disease support, patient advocacy, education, and scientific research and funding treatment studies and… 30-0964243 · FY2023 Brush Prairie, WA $1.1M $1.1M $428.1K 100% 0% — 501(c)(3)
Castleman Disease Collaborative Network To develop awareness of castleman's DISEASE and to raise money to fund education and laboratory research to… 37-1510354 · FY2024 Paso Robles, CA $979.0K $961.1K $3.0M 87% 0% — 501(c)(3)
Childrens Brain Tumor Project Foundation To raise funds to support pediatric BRAIN cancer research. 46-4537457 · FY2024 New York, NY $711.0K $760.2K $126.9K 97% 1% — 501(c)(3)
Neurofibromatosis Incorporated Northeast The mission of NEUROFIBROMATOSIS, INC., NORTHEAST is to raise funds to support research of the causes, cure… 04-3013709 · FY2024 Burlington, MA $675.7K $685.2K $900.1K 58% 21% 7 501(c)(3)
Riaan Research Initiative INC To create a world where every child with a fatal genetic disease has a pathway toward treatment. The… 87-1188456 · FY2024 Oakland Gdns, NY $615.7K $278.9K $1.8M 98% 0% — 501(c)(3)
Brain Support Network The BRAIN SUPPORT NETWORK is dedicated to the well-being of those challenged by neurodegenerative disorders… 46-0771864 · FY2025 Menlo Park, CA $565.5K $401.3K $1.4M 94% 1% 10 501(c)(3)
Kcnq2 Cure Alliance INC KCNQ2 CURE ALLIANCE is a non-profit organization dedicated to raising research funds for KCNQ2 epileptic… 47-1810644 · FY2024 Denver, CO $458.5K $86.2K $1.2M 64% 8% — 501(c)(3)
Neurofibromatosis Network To provide information about the disorder NEUROFIBROMATOSIS to those affected and help families find medical… 04-3030760 · FY2023 Wheaton, IL $452.4K $491.5K $1.3M 81% 13% 5 501(c)(3)
The Brain Donor Project Science, leading to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. 81-2333601 · FY2024 Naples, FL $451.6K $363.3K $658.7K 99% 0% — 501(c)(3)
Kamen Brain Tumor Foundation To fund medical research for the treatment of pediatric BRAIN tumors. 38-4001949 · FY2024 New York, NY $395.9K $456.6K $96.4K 100% 0% — 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Ddx3x Foundation Our mission is to connect families, resources, and the medical community to advance research for a cure to… 81-1159359 · FY2023 Wilmington, DE $269.3K $446.1K $74.5K 75% 0% 2 501(c)(3)
I I District Kiwanis Neuroscience Research Foundation To provide funds for the discovery of cures or improvements to the quality of life of children and other… 36-6070441 · FY2024 Rockford, IL $255.1K $189.2K $2.1M 86% 0% — 501(c)(3)
Ybrp INC YBRP INC. is a parents of patients led non-profit organization. Our primary goals are: 1) To fund research to… 83-4191901 · FY2024 New Rochelle, NY $220.2K $182.8K $440.3K 92% 0% — 501(c)(3)
Pandas Network-Orgnon-Profit to Cure Auto Neuropsychiatric Syndrom To improve the diagnosis and treatment of children with PANDAS (pediatric autoimmune neurological disorder… 37-1666562 · FY2024 Menlo Park, CA $215.9K $193.4K $230.7K 46% 5% — 501(c)(3)
Ssadh Association INC SSADH is an organization representing children and families affected by a disease of gaba related… 37-1695651 · FY2024 Delafield, WI $212.1K $78.4K $596.8K 38% 0% — 501(c)(3)
Foundation to Fight H-Abc The Foundation will support organizations that are researching a cure for H-ABC Hypomyelenation with Atrophy… 81-0950905 · FY2024 Rockville, MD $206.3K $99.3K $501.0K 68% 29% — 501(c)(3)
Isabella Foundation INC The isa elaine FOUNDATION is dedicated to advancing research discoveries on ultra-rare pediatric… 99-4435144 · FY2024 Ponte Vedra Beach, FL $200.2K $57.9K $86.2K 100% 0% — 501(c)(3)
Sdhb Coalition INC Our mission is to educate healthcare professional and patients in the SDHB genetic mutation as well as its… 81-1914857 · FY2025 Doylestown, PA $200.2K $239.9K $92.9K 90% 5% — 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% — 501(c)(3)
Global Association for Study of Neurodegenerative Diseases INC 86-3774034 · FY2025 Bel Air, MD $172.4K — $146.5K — — — 501(c)(3)
Pituitary Network Association INC The organizations mission is to support, promote, pursue and encourage fund research on pituitary disorder in… 33-0530465 · FY2024 Thousand Oaks, CA $156.1K $235.7K $293.2K 78% 0% 3 501(c)(3)
International Society for Molecularneurodegeneration INC Internationl SOCIETY for molecular neurodegenerations's mission is to serve as an accelerator for the… 86-2907045 · FY2025 Jacksonville, FL $131.4K $119.8K $373.6K 96% 0% — 501(c)(3)
Pediatric Neurocritical Care Research Group INC 92-0252695 · FY2024 Albany, NY $68.0K — $125.0K — — — 501(c)(3)
The Neuromuscular Disease Foundation To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation… 06-1789643 · FY2024 Beverly Hills, CA $65.4K $352.4K $660.3K 90% 2% 4 501(c)(3)
Neurotherapy Research&development Assn INC DBA Brain Wellness Fund 26-0496747 · FY2024 North Potomac, MD $30.1K — $73.5K — — — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org