Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
85 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990.
Amber Freed’s $100K as Founder/CEO is at the 69th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 |
|---|---|---|
| Amber Freed | $99,999 | $99,999 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
- Loans to or from officersSch L · Pt II1 listed
Programs and updates
Advocates for children and families affected by the SLC6A1 mutation, funding research for a cure.
Questions for Slc6a1 Connect
Your first name shows with your question. Slc6a1 Connect answers here, for everyone.
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Research to develop treatments for SLC6A1.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $208K | $284K |
| InvestmentsLn 11–13 | $1.9M | $1.9M |
| Total assetsLn 16 | $2.2M | $2.2M |
| LiabilitiesLn 26 | $50K | $51K |
| Net assetsLn 32 | $2.2M | $2.2M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Legal feesLn 11b | $300 | $300 | ||
| Accounting feesLn 11c | $500 | $500 | ||
| Other fees for servicesLn 11g | $45K | $34K | $11K | |
| Information technologyLn 14 | $5K | $5K | ||
| TravelLn 17 | $4K | $1K | $2K | $153 |
| Conferences, conventions and meetingsLn 19 | $61 | $61 | ||
| Other expenses (24a–d)Ln 24 | $626K | $562K | $2K | $62K |
| All other expensesLn 24e | $34K | $11K | $5K | $18K |
| Total functional expensesLn 25 | $714K | $610K | $14K | $91K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $717K | $680K | $37K | $2.1M | 990 PDF |
| FY2023 | $677K | $1.3M | −$588K | $2.1M | 990 PDF |
| FY2022 | $945K | $957K | −$12K | $2.7M | 990 PDF |
| FY2021 | $984K | $483K | $501K | $2.7M | 990 PDF |
| FY2020 Viewing | $801K | $714K | $87K | $2.2M | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $800,954 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 5 to look at
Part VIII · Statement of revenue $800,954 across 5 lines filed
Part IX · Statement of functional expenses $714,151 across 8 lines filed
Part X · Balance sheet $2,212,220 assets, 9 lines filed
Part XI · Reconciliation of net assets $2,161,615 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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