Slc6a1 Connect EIN 83-1415567

Slc6a1 Connect

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Advocates for children and families affected by the SLC6A1 mutation, funding research for a cure. For fiscal year 2024 it reported $717K in revenue, $680K in expenses, and $2.1M in net assets.Pt I

Type
Public charity (501(c)(3)) · Medical Research
Location
Frisco, TX
Website
www.slc6a1connect.org
Filings
5 on file (2020–2024)
Revenue
$717KFY2024
Expenses
$680K
Net assets
$2.1M
People
8
Filings
5
Updates
0
More identity details & actions ⌄
EIN  83-1415567 Public charity (501(c)(3)) Frisco, TX
Form 990 (PDF)
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Size
$100K–1M
What they do
Advocates for children and families affected by the SLC6A1 mutation, funding research for a cure.
Leadership
Amber Freed · Founder/CEO · $100K
Money in and out
$717K revenue, $680K expenses
Bottom line
88% program efficiency
Where the money goes · FY2024
Total revenue
$717K
Pt VIII · Ln 12
Total expenses
$680K
Pt IX · Ln 25
Net assets
$2.1M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $37K
Where spending went · Part IX cols B–D
Program services $0.88 Management & general $0.04 Fundraising $0.08
Program efficiency
88%
of spending reaches programs▲ +6% vs prior filing year
Operating runway
42.4mo
months of highly liquid reserves at operating expense rate▲ +94% vs prior filing year
Surplus margin
+5%
revenue over expenses, this year▲ +106% vs prior filing year

Summary of the Filing

Part I · fiscal year 2024 · Form 990
Revenue
$717K
FY2024▲ +6%
Expenses
$680K
FY2024▼ -46%
Total assets
$2.4M
FY2024▲ +5%
Total liabilities
$274K
FY2024▲ +26%
Total revenue
$717K
Pt VIII · Ln 12
Total expenses
$680K
Pt IX · Ln 25
Net assets
$2.1M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$37K
Total assetsPt X · Ln 16$2.4M
Program-expense ratioPt IX · col B88%
Voting members of governing bodyPt I · Ln 38
Independent voting membersPt I · Ln 47
Mission & Programs · Part III

Where the work happens

2 program services account for $600K of program spending, described in the organization's own filed words · FY2024.
01

SLC6A1 connect supports targeted research and provides funding to research institutions to quickly advance the development of treatments and ultimately a cure for SLC6A1.

$448Kprogram expense
02

SLC6A1 connect carried out an international scientific symposium and family conference in december 2024. The international scientific symposium includes a full day of clinical updates, scientific presentations and protocols, the latest research, family testimonials and an engaging panel discussion on clinical trial readiness.

$152Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CSlc6a1 Connect
EINHdr · item D83-1415567
Principal addressHdr · item CFrisco, TX
WebsiteHdr · item Jwww.slc6a1connect.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MTX
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H80)
Ruling yearIRS BMFOct 2018

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a8
Independent voting membersPt VI · Ln 1b7
Conflict-of-interest policyPt VI · Ln 12aNo
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Founder/CEO
$99,999Pt VII · Sec A
Vice President
$0Pt VII · Sec A
Patient Advocate
$0Pt VII · Sec A
Secretary/Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Fundraising Co-Chair
$0Pt VII · Sec A
$0Pt VII · Sec A

Amber Freed’s $100K as Founder/CEO is at the 68th percentile of top reported officer pay among 322 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2024FY2023
Amber Freed$99,999$99,999

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Statement of Revenue

Part VIII
Contributions & grants$556K · 78%
Investment income$94K · 13%
Program service revenue$66K · 9%
Contributions & grants78%$556K
Investment income13%$94K
Program service revenue9%$66K
Total revenueLn 12$717K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.88 Management & general $0.04 Fundraising $0.08
Program services88%$600K
Management & general4%$26K
Fundraising8%$54K
Total functional expensesLn 25$680K

Balance Sheet

Part X · end of year
CashLn 1$273K
Total assetsLn 16$2.4M
Total liabilitiesLn 26$274K
Total net assetsLn 32$2.1M
Months of cash on handcomputed4.8

Financial Metrics

Form 990 · FY2024 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $2.4M · Operating expenses/yr $680K
42.4 months
Where the money goes
Program services
Program services $600K · Total expenses $680K
88%
Management & General
Management & general $26K · Total expenses $680K
4%
Fundraising
Fundraising $54K · Total expenses $680K
8%
Cost to raise $1
Fundraising expense (3-yr avg) $52K · Solicited contributions (3-yr avg) $667K
$0.08 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $556K · Total revenue $717K
78%
Government reliance
Government grants — · Total revenue $717K
Earned-income share
Program service revenue $66K · Total revenue $717K
9%
Investment reliance
Investment income $94K · Total revenue $717K
+13%
Program self-sufficiency
Program service revenue $66K · Total expenses $680K
10%
Growth & trend
Revenue growth (YoY)
This year $717K · Prior year $677K
+6%
Revenue CAGR
FY2020 $801K · FY2024 $717K
-3%
Net-asset trend (YoY)
End of year $2.1M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $717K · Expenses $680K
+5%
Liabilities-to-Assets
Total liabilities — · Total assets $2.4M
Net-asset ratio
Net assets $2.1M · Total assets $2.4M
89%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) $2.1M · Total assets (Pt X, ln 16) $2.4M
89%
People & payroll
Highest Reported Total Compensation
Individual Amber Freed · Reported title FOUNDER/CEO · Highest reported compensation $100K · Total expenses $680K
15%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $108K · Total expenses $680K
16%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 88%
Overhead ratio 4%
Fundraising cost ratio 10%
Revenue growth 6%
Investment management fee ratio 0.1%
Accounting fee ratio 1%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 9 funders →
Grants paid · 21 grants · $1.8M · 2022–2024
University of ColoradoOH · FY2024$106,740
Combinedbrian INCTN · FY2024$25,417
Vanderbilt UniversityTN · FY2023$35,000
See all 21 grants →

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$717K revenue · viewing · ⤓ 990 PDF
FY2023$677K revenue · ⤓ 990 PDF
FY2022$945K revenue · ⤓ 990 PDF
FY2021$984K revenue · ⤓ 990 PDF
FY2020$801K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2024IRS
Classification, formation year, addressIRS Business Master File
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