Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
88 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
11 people listed on the 990.
Nicole Henwood’s $13K as President is at the 7th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 |
|---|---|---|---|
| Nicole Henwood | $12,800 | $49,600 | — |
| Gilles Atlan | $3,200 | $16,000 | $30,400 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research and advance therapies to find a cure for NF2.
Questions for Nf2 Biosolutions
Your first name shows with your question. Nf2 Biosolutions answers here, for everyone.
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The organization is funding research into a cure for NF2. The organization arranged a consortium in 2019, which was attended by leading experts in the fields of NF2 research and gene therapy.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $365K | $638K |
| Total assetsLn 16 | $365K | $638K |
| LiabilitiesLn 26 | $0 | $102K |
| Net assetsLn 32 | $365K | $536K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $475K | $475K | ||
| Accounting feesLn 11c | $6K | $6K | ||
| Other fees for servicesLn 11g | $48K | $48K | ||
| Advertising and promotionLn 12 | $7K | $7K | ||
| Office expensesLn 13 | $37 | $37 | ||
| TravelLn 17 | $288 | $288 | ||
| InsuranceLn 23 | $743 | $743 | ||
| Total functional expensesLn 25 | $537K | $475K | $7K | $55K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $226K | $317K | −$91K | $520K | 990 PDF |
| FY2023 | $772K | $966K | −$194K | $610K | 990 PDF |
| FY2022 | $419K | $308K | $110K | $805K | 990 PDF |
| FY2021 | $544K | $386K | $158K | $694K | 990 PDF |
| FY2020 Viewing | $708K | $537K | $171K | $536K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $708,384 revenue, 12 lines filed
Part VI · Governance 0 of 11 board members independent, 4 to look at
Part VIII · Statement of revenue $708,384 across 3 lines filed
Part IX · Statement of functional expenses $537,191 across 7 lines filed
Part X · Balance sheet $638,177 assets, 7 lines filed
Part XI · Reconciliation of net assets $536,277 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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