Csnk2a1 Foundation: FY2020 Nonprofit Profile & Form 990 (EIN 82-4220939)

Revenue by fiscal year
FY2020	$413K
FY2021	$433K
FY2022	$352K
FY2023	$798K
FY2024	$754K

Expenses by fiscal year
FY2020	$206K
FY2021	$119K
FY2022	$165K
FY2023	$383K
FY2024	$597K

Net assets by fiscal year
FY2020	$384K
FY2021	$698K
FY2022	$886K
FY2023	$1.3M
FY2024	$1.5M

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

84 cents of each dollar spent went to programs.

84%

Program services 84% · $172K Management & general 11% · $22K Fundraising 6% · $12K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

6 people listed on the 990.

Part VII, Section A · reportable compensation

Jennifer Sills

Executive Director

$0Pt VII · Sec A

Jennifer Allen

Director

$0Pt VII · Sec A

Kathyrn O'Connor Gardner

Director

$0Pt VII · Sec A

Francesca Demartino

Director

$0Pt VII · Sec A

Catherine Landers

Director

$0Pt VII · Sec A

Dr Elizabeth Prescott

Director

$0Pt VII · Sec A

See Csnk2a1 Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fund research for a cure and provide support for those with Okur-Chung neurodevelopmental syndrome.

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Provided by the organization

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1 program · $172K · in their own filed words · FY2020

01

See statement

$172Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2025

Lydian AcceleratorFY2025$14K

Total grants receivedfrom 1 funder$14K

Grants paid · 15 grants · $564K · 2020–2024

Individual RecipientFY2024$101,990

Institute De Psychiatrie Et Nueroscience De ParisFY2024$47,055

University of UtahUT · FY2024$36,439

Individual RecipientFY2024$28,500

Trustees of the University of PennsylvaniaPA · FY2024$15,235

University of UtahUT · FY2023$36,439

Individual RecipientFY2023$34,793

Individual RecipientFY2023$16,900

Taconic-Cyagen Model Generation AllianceFY2023$16,638

Institute De Psychiatrie Et Nueroscience De ParisFY2022$52,668

Taconic-Cyagen Model Generation AllianceFY2022$10,182

Institute De Psychiatrie Et Nueroscience De ParisFY2021$52,666

Boston University School of MedicineFY2021$26,201

Taconic-Cyagen Model Generation AllianceFY2021$10,182

TgenAZ · FY2020$77,669

By the numbers

The FY2020 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$413K

Ln 12

Gifts and grantsLn 1h$246K

Other incomeLn 4–11$167K

Money outPt IX

$206K

Ln 25

Programscol B$172K

Managementcol C$22K

Fundraisingcol D$12K

Owns and owesPt X

$384K

net assets · Ln 32

Cash and savingsLn 1–2$347K

Total assetsLn 16$384K

LiabilitiesLn 26$30

PeoplePt VI, VII

6

listed · VII A

PaidVII A0

Voting boardVI 1a6

IndependentVI 1b6

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$246K

Fundraising eventsLn 1c$166K

Other incomeLn 4–11$167K

Total revenueLn 12$413K

Assets in detailPt X, end of year

CashLn 1$347K

Cash and savings togetherLn 1–2$347K

Other assetsLn 15$0

Total assetsLn 16$384K

LiabilitiesLn 26$30

Net assetsLn 32$384K

OperationsPt I, VI

EmployeesI 50

VolunteersI 617

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aNo

Whistleblower policyVI 13No

Records policyVI 14No

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY20	End FY20
Cash and savingsLn 1–2	$141K	$347K
Total assetsLn 16	$178K	$384K
LiabilitiesLn 26	$0	$30
Net assetsLn 32	$178K	$384K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$78K	$78K
Accounting feesLn 11c	$6K		$4K	$2K
Other fees for servicesLn 11g	$96K	$94K	$2K
Advertising and promotionLn 12	$200		$200
Office expensesLn 13	$677		$677
TravelLn 17	$201		$201
Other expenses (24a–d)Ln 24	$21K		$13K	$8K
All other expensesLn 24e	$4K	$59	$2K	$1K
Total functional expensesLn 25	$206K	$172K	$22K	$12K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest	$754K	$597K	$157K	$1.5M	990 PDF
FY2023	$798K	$383K	$415K	$1.3M	990 PDF
FY2022	$352K	$165K	$187K	$886K	990 PDF
FY2021	$433K	$119K	$314K	$698K	990 PDF
FY2020 Viewing	$413K	$206K	$207K	$384K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2020 990 (6 parts)

Part I · Summary $412,839 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $281,783$245,963

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $0$0

I-11 Other revenuePrior year $0$166,876

I-12 Total revenuePrior year $281,783$412,839

I-13 Grants and similar amounts paidPrior year $105,000$77,669

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $0$0

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $37,331$128,373

I-18 Total expensesPrior year $142,331$206,042

I-19 Revenue less expensesPrior year $139,452$206,797

Part VI · Governance 6 of 6 board members independent, 4 to look at

VI-1a Voting members of the governing body6

VI-1b Independent voting members6

VI-12a Written conflict of interest policyNo

VI-13 Written whistleblower policyNo

VI-14 Document retention and destruction policyNo

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

Part VIII · Statement of revenue $412,839 across 5 lines filed

Lines not itemized here account for $628 of total revenue; see the IRS return.

VIII-1c Fundraising events$166,500

VIII-1f All other contributions, gifts and grants$79,463

VIII-1h Total contributions, gifts and grants$245,963

VIII-8 Net income from fundraising eventsExcluded from tax $166,248$166,248

VIII-12 Total revenueRelated to mission $628 · Unrelated business $0 · Excluded from tax $166,248$412,839

Part IX · Statement of functional expenses $206,042 across 8 lines filed

IX-1 Grants to domestic organizationsPrograms $77,669$77,669

IX-11c Accounting feesManagement $3,520 · Fundraising $2,303$5,823

IX-11g Other fees for servicesPrograms $94,318 · Management $1,973$96,291

IX-12 Advertising and promotionManagement $200$200

IX-13 Office expensesManagement $677$677

IX-17 TravelManagement $201$201

IX-24 Other expenses (24a–d)Management $13,480 · Fundraising $7,750$21,230

IX-24e All other expensesPrograms $59 · Management $2,437 · Fundraising $1,455$3,951

IX-25 Total functional expensesPrograms $172,046 · Management $22,488 · Fundraising $11,508$206,042

Part X · Balance sheet $384,430 assets, 8 lines filed

X-1 Cash, non-interest-bearingStart of year $141,043$347,329

X-3 Pledges and grants receivableStart of year $26,560$37,101

X-15 Other assetsStart of year $10,000$0

X-16 Total assetsStart of year $177,603$384,430

X-25 Other liabilitiesStart of year $0$30

X-26 Total liabilitiesStart of year $0$30

X-32 Total net assets or fund balancesStart of year $177,603$384,400

X-33 Total liabilities and net assetsStart of year $177,603$384,430

Part XI · Reconciliation of net assets $384,400 net assets at year end

XI-1 Total revenue$412,839

XI-2 Total expenses$206,042

XI-3 Revenue less expenses$206,797

XI-4 Net assets at start of year$177,603

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$384,400

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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Csnk2a1 Foundation FY2020 filing

Before you give

Is it real?

Where the money goes

Who runs it and what they're paid

Questions the 990 asks

Programs and updates

Questions for Csnk2a1 Foundation

Funders

Grants

By the numbers

Filing history

Schedules filed Part IV