The Kat6a Foundation INC: FY2022 Nonprofit Profile & Form 990 (EIN 82-3118535)

Revenue by fiscal year
FY2020	$558K
FY2021	$231K
FY2022	$471K
FY2023	$480K
FY2024	$546K

Expenses by fiscal year
FY2020	$38K
FY2021	$214K
FY2022	$371K
FY2023	$262K
FY2024	$216K

Net assets by fiscal year
FY2020	$664K
FY2021	$681K
FY2022	$781K
FY2023	$999K
FY2024	$1.3M

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2017.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

66 cents of each dollar spent went to programs.

66%

27%

Program services 66% · $246K Management & general 6% · $24K Fundraising 27% · $102K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

9 people listed on the 990.

Part VII, Section A · reportable compensation

Karen Ginsburg

Board Member

$0Pt VII · Sec A

Shelby Rau

Board Member

$0Pt VII · Sec A

Jordan Muller

Board Chair

$0Pt VII · Sec A

Typhaine Lejeune

Board Member

$0Pt VII · Sec A

Kevin Young

Board Member

$0Pt VII · Sec A

Aimee Reitzen

Board Member

$0Pt VII · Sec A

Emile Najm

Board CEO

$0Pt VII · Sec A

David Woodbury

Board Member

$0Pt VII · Sec A

See The Kat6a Foundation INC executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Supports families affected by KAT6 disorders.

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2 programs · $203K · in their own filed words · FY2022

01

Services related to assisting patients in registering with nord (the national organization for rare disorders) and to support KAT6A families around the world via education and conference calls with donors.

$199Kprogram expense

02

Services related to assisting patients in registering with nord (the national organization for rare disorders) and to support KAT6A families around the world via education and conference calls with donors.

$4Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record

Grants received · FY2024

Vanguard Charitable Endowment ProgramFY2024$100K

Jewish Communal FundFY2024$15K

Donor Advised Charitable Giving INCFY2024$15K

Paypal Charitable Giving FundFY2024$14K

Horizon Community Funds of Northern Kentucky INCFY2024$7K

Aptargroup Charitable FoundationFY2024$2K

American Tower Charitable Foundation INCFY2024$100

Pfizer Foundation INCFY2024$53

Total grants receivedfrom 8 funders$153K

See all 8 funders →

By the numbers

The FY2022 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$471K

Ln 12

Gifts and grantsLn 1h$480K

Investment incomeLn 3$825

Money outPt IX

$371K

Ln 25

Programscol B$246K

Managementcol C$24K

Fundraisingcol D$102K

Owns and owesPt X

$781K

net assets · Ln 32

Cash and savingsLn 1–2$781K

Total assetsLn 16$781K

LiabilitiesLn 26$31

PeoplePt VI, VII

9

listed · VII A

PaidVII A0

Voting boardVI 1a9

IndependentVI 1b9

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$480K

Fundraising eventsLn 1c$192K

Investment incomeLn 3$825

Total revenueLn 12$471K

Assets in detailPt X, end of year

CashLn 1$781K

Cash and savings togetherLn 1–2$781K

Total assetsLn 16$781K

LiabilitiesLn 26$31

Net assetsLn 32$781K

OperationsPt I, VI

EmployeesI 50

VolunteersI 616

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13No

Records policyVI 14No

3More from this return

Abroad and in kindSch F, M

Grants to other countriesSch F Pt II–III$10K

4Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY22	End FY22
Cash and savingsLn 1–2	$681K	$781K
Total assetsLn 16	$681K	$781K
LiabilitiesLn 26	$29	$31
Net assetsLn 32	$681K	$781K

5Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic individualsLn 2	$4K	$4K
Grants and assistance to foreign recipientsLn 3	$10K	$10K
Management feesLn 11a	$12K	$4K	$4K	$4K
Accounting feesLn 11c	$5K		$5K
Professional fundraising feesLn 11e	$60K			$60K
Other fees for servicesLn 11g	$199K	$199K
Advertising and promotionLn 12	$886	$443		$443
Office expensesLn 13	$4K		$4K	$692
Information technologyLn 14	$17K	$6K	$6K	$6K
TravelLn 17	$33K	$17K		$17K
Conferences, conventions and meetingsLn 19	$12K	$6K		$6K
InsuranceLn 23	$2K		$2K
Other expenses (24a–d)Ln 24	$11K		$3K	$8K
Total functional expensesLn 25	$371K	$246K	$24K	$102K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 LatestFiled with the IRS May 5, 2025	$546K	$216K	$330K	$1.3M	990 PDF
FY2023Filed with the IRS Nov 13, 2024	$480K	$262K	$217K	$999K	990 PDF
FY2022 ViewingFiled with the IRS Nov 14, 2023	$471K	$371K	$100K	$781K	990 PDF
FY2021Filed with the IRS Nov 15, 2022	$231K	$214K	$17K	$681K	990 PDF
FY2020Filed with the IRS Nov 4, 2021	$558K	$38K	$520K	$664K	990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2022 990 (6 parts)

Part I · Summary $471,106 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $79,739$479,658

I-9 Program service revenue$0

I-10 Investment incomePrior year $260$825

I-11 Other revenuePrior year $151,444−$9,377

I-12 Total revenuePrior year $231,443$471,106

I-13 Grants and similar amounts paidPrior year $12,103$13,976

I-14 Benefits paid to members$0

I-15 Salaries and benefits$0

I-16a Professional fundraising fees$60,000

I-17 Other expensesPrior year $202,126$297,426

I-18 Total expensesPrior year $214,229$371,402

I-19 Revenue less expensesPrior year $17,214$99,704

Part VI · Governance 9 of 9 board members independent, 3 to look at

VI-1a Voting members of the governing body9

VI-1b Independent voting members9

VI-13 Written whistleblower policyNo

VI-14 Document retention and destruction policyNo

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

Part VIII · Statement of revenue $471,106 across 6 lines filed

VIII-1c Fundraising events$192,438

VIII-1f All other contributions, gifts and grants$287,220

VIII-1h Total contributions, gifts and grants$479,658

VIII-3 Investment incomeExcluded from tax $825$825

VIII-8 Net income from fundraising eventsExcluded from tax −$9,377−$9,377

VIII-12 Total revenueExcluded from tax −$8,552$471,106

Part IX · Statement of functional expenses $371,402 across 13 lines filed

IX-2 Grants to domestic individualsPrograms $4,131$4,131

IX-3 Grants and assistance to foreign recipientsPrograms $9,845$9,845

IX-11a Management feesPrograms $3,962 · Management $3,949 · Fundraising $3,949$11,860

IX-11c Accounting feesManagement $5,245$5,245

IX-11e Professional fundraising feesFundraising $60,000$60,000

IX-11g Other fees for servicesPrograms $199,304$199,304

IX-12 Advertising and promotionPrograms $443 · Fundraising $443$886

IX-13 Office expensesManagement $3,538 · Fundraising $692$4,230

IX-14 Information technologyPrograms $5,828 · Management $5,811 · Fundraising $5,811$17,450

IX-17 TravelPrograms $16,610 · Fundraising $16,610$33,220

IX-19 Conferences, conventions and meetingsPrograms $5,890 · Fundraising $5,890$11,780

IX-23 InsuranceManagement $2,004$2,004

IX-24 Other expenses (24a–d)Management $3,089 · Fundraising $8,358$11,447

IX-25 Total functional expensesPrograms $246,013 · Management $23,636 · Fundraising $101,753$371,402

Part X · Balance sheet $781,100 assets, 8 lines filed

X-1 Cash, non-interest-bearingStart of year $681,392$781,100

X-16 Total assetsStart of year $681,392$781,100

X-17 Accounts payable and accrued expensesStart of year $29$31

X-26 Total liabilitiesStart of year $29$31

X-27 Net assets without donor restrictionsStart of year $441,145$631,069

X-28 Net assets with donor restrictionsStart of year $240,218$150,000

X-32 Total net assets or fund balancesStart of year $681,363$781,069

X-33 Total liabilities and net assetsStart of year $681,392$781,100

Part XI · Reconciliation of net assets $781,069 net assets at year end

XI-1 Total revenue$471,106

XI-2 Total expenses$371,402

XI-3 Revenue less expenses$99,704

XI-4 Net assets at start of year$681,363

XI-9 Other changes in net assets$2

XI-10 Net assets at end of year$781,069

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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The Kat6a Foundation INC FY2022 filing

Before you give

Is it real?

Where the money goes

Who runs it and what they're paid

Questions the 990 asks

Programs and updates

Questions for The Kat6a Foundation INC

Funders

Grants

By the numbers

Filing history

Schedules filed Part IV