1. To support research relating to treatments and cure of Systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.

501(c)(3) charity; gifts are tax-deductible.
96¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2023 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average surplus $12K a year · 4% of revenue · last 5 filings
Worth a look: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
96%
of spending
Looks good: 96% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
3 mo
of spending, in cash
Looks good: 3.0 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $69K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
1
of 3 voting members
Worth a look: 1 of 3 voting members are independent, under half.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$349K
+81% vs prior year
Spent
$361K
To programs
96%
Net assets
$90K
By yearFY2020–FY2024
Revenue
$349K
FY2023▲ +81%
Tap a bar for its year
Revenue by fiscal year
FY2020$680K
FY2021$62K
FY2022$193K
FY2023$349K
FY2024$159K
Expenses
$361K
FY2023+0.2%
Tap a bar for its year
Expenses by fiscal year
FY2020$271K
FY2021$245K
FY2022$360K
FY2023$361K
FY2024$143K
Net assets
$90K
FY2023▼ -12%
Tap a bar for its year
Net assets by fiscal year
FY2020$453K
FY2021$270K
FY2022$102K
FY2023$90K
FY2024$107K

From the FY2023 Form 990 · see the original

Give Claim
You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

96 cents of each dollar spent went to programs.

Program services 96% · $345K Management & general 4% · $16K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

3 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
See Systemic Jia Foundation executive salaries →

On this list? Claim this org

Something off? Claim to add context

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research, raises awareness, and builds support networks for systemic juvenile idiopathic arthritis.

Questions for Systemic Jia Foundation

Tap to ask. Systemic Jia Foundation sees how many people are interested.

Your first name shows with your question. Systemic Jia Foundation answers here, for everyone.

Provided by the organization

Know this org? Add your story

3 programs · $345K · in their own filed words · FY2023
01

Grant to cincinnati children's hospital & harvard universitythis grant has been provided to fund the research, conducting an initial observational study for the collection of biospecimens and patient data and establishing a clinical and scientific research network (the "research network"), each for the study of systemic juvenile…

$310Kprogram expense
02

Conferences organized or attended in 2023PRES congress 2023 attended from september 28 - october 1, 2023 at rotterdam, the NETHERLANDS.THE foundation organized a booth at the european paediatric rheumatology congress held at rotterdam, the netherlands between september 28 - october 1, 2023.

$23Kprogram expense
03

Systemic Jia Foundation Plans Several Types of Fundraising

1) donations from families with sjia: the systemic jia foundation will reach out to families with sjia to both contribute and raise funds for the benefit of the systemic jia foundation. The systemic jia foundation will raise funds online, using fundraising sites such as crowdrise, stripe, facebook or fundraising functionality on our own…

$11Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 2 funders$69K
Grants paid · 8 grants · $889K · 2020–2023
Cincinnati Children's HospitalFY2023$250,000
Cincinnati Children's HospitalFY2022$150,000
The UCLA FoundationCA · FY2022$26,625
Individual RecipientFY2021$62,800

By the numbers

The FY2023 990, line by line.

1The main four
Money inPt VIII
$349K
Ln 12
Gifts and grantsLn 1h$349K
Money outPt IX
$361K
Ln 25
Programscol B$345K
Managementcol C$16K
Owns and owesPt X
$90K
net assets · Ln 32
Cash and savingsLn 1–2$90K
Total assetsLn 16$90K
LiabilitiesLn 26$0
PeoplePt VI, VII
3
listed · VII A
PaidVII A0
Voting boardVI 1a3
IndependentVI 1b1
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$349K
Total revenueLn 12$349K
Assets in detailPt X, end of year
CashLn 1$90K
Cash and savings togetherLn 1–2$90K
Total assetsLn 16$90K
LiabilitiesLn 26$0
Net assetsLn 32$90K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY23End FY23
Cash and savingsLn 1–2$102K$90K
Total assetsLn 16$102K$90K
LiabilitiesLn 26$0$0
Net assetsLn 32$102K$90K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$310K$310K
Accounting feesLn 11c$14K$14K
Office expensesLn 13$391$391
TravelLn 17$2K$2K
Conferences, conventions and meetingsLn 19$22K$22K
Other expenses (24a–d)Ln 24$13K$11K$2K
All other expensesLn 24e$22$22
Total functional expensesLn 25$361K$345K$16K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $159K$143K$17K$107K 990 PDF
FY2023 Viewing $349K$361K−$12K$90K 990 PDF
FY2022 $193K$360K−$168K$102K 990 PDF
FY2021 $62K$245K−$183K$270K 990 PDF
FY2020 $680K$271K$409K$453K 990 PDF

More to add? Claim this org

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2023 990 (6 parts)
Part I · Summary $348,552 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $192,569$348,552
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $192,569$348,552
I-13 Grants and similar amounts paidPrior year $317,626$310,000
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $42,680$51,009
I-18 Total expensesPrior year $360,306$361,009
I-19 Revenue less expensesPrior year −$167,737−$12,457
Part VI · Governance 1 of 3 board members independent, 4 to look at
VI-1a Voting members of the governing body3
VI-1b Independent voting members1
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $348,552 across 3 lines filed
VIII-1f All other contributions, gifts and grants$348,552
VIII-1h Total contributions, gifts and grants$348,552
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$348,552
Part IX · Statement of functional expenses $361,009 across 7 lines filed
IX-1 Grants to domestic organizationsPrograms $310,000$310,000
IX-11c Accounting feesManagement $14,205$14,205
IX-13 Office expensesManagement $391$391
IX-17 TravelPrograms $1,824$1,824
IX-19 Conferences, conventions and meetingsPrograms $21,663$21,663
IX-24 Other expenses (24a–d)Programs $11,325 · Management $1,579$12,904
IX-24e All other expensesManagement $22$22
IX-25 Total functional expensesPrograms $344,812 · Management $16,197 · Fundraising $0$361,009
Part X · Balance sheet $89,621 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $102,078$89,621
X-16 Total assetsStart of year $102,078$89,621
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $102,078$89,621
X-33 Total liabilities and net assetsStart of year $102,078$89,621
Part XI · Reconciliation of net assets $89,621 net assets at year end
XI-1 Total revenue$348,552
XI-2 Total expenses$361,009
XI-3 Revenue less expenses−$12,457
XI-4 Net assets at start of year$102,078
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$89,621

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

Similar organizations you could support · Compare with another nonprofit

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

Your org? Add context

Made it to the end? Claim this org

All figures are derived from public IRS Form 990 filings and are presented without evaluation of any organization. philanthropy.org does not rate, score, or rank organizations, including the pay comparisons above.