Systemic Jia Foundation EIN 82-2564392 Form 990 (PDF) Claim this org

Systemic Jia Foundation FY2022 filing

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Funds research, raises awareness, and builds support networks for systemic juvenile idiopathic arthritis. For fiscal year 2022 it reported $193K in revenue, $360K in expenses, and $102K in net assets.Pt I

Type
Public charity (501(c)(3)) · Medical Research
Location
Mountain View, CA
Website
www.systemicjia.org
Filings
5 on file (2020–2022)
Revenue
$193KFY2022
Expenses
$360K
Net assets
$102K
People
3
Filings
5
Updates
0
More identity details & actions ⌄
EIN  82-2564392 Public charity (501(c)(3)) Mountain View, CA
Form 990 (PDF)
You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2024) →
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Size
$100K–1M
What they do
Funds research, raises awareness, and builds support networks for systemic juvenile idiopathic arthritis.
Leadership
Jonathan Boutelle · Director
Money in and out
$193K revenue, $360K expenses
Bottom line
96% program efficiency
Where the money goes · FY2022
Total revenue
$193K
Pt VIII · Ln 12
Total expenses
$360K
Pt IX · Ln 25
Net assets
$102K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$168K
Where spending went · Part IX cols B–D
Program services $0.96 Management & general $0.04
Program efficiency
96%
of spending reaches programs
Operating runway
3.4mo
months of highly liquid reserves at operating expense rate
Surplus margin
-87%
revenue over expenses, this year

Summary of the Filing

Part I · fiscal year 2022 · Form 990
Revenue
$193K
FY2022▲ +213%
Expenses
$360K
FY2022▲ +47%
Total assets
$102K
FY2022▼ -62%
Total liabilities
$0
FY2022
Total revenue
$193K
Pt VIII · Ln 12
Total expenses
$360K
Pt IX · Ln 25
Net assets
$102K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$168K
Total assetsPt X · Ln 16$102K
Program-expense ratioPt IX · col B96%
Voting members of governing bodyPt I · Ln 33
Independent voting membersPt I · Ln 41
Mission & Programs · Part III

Where the work happens

3 program services account for $319K of program spending, described in the organization's own filed words · FY2022.
01

Grant to cincinnati children's hospital this grant has been provided to fund the research, conducting an initial observational study for the collection of biospecimens and patient data and establishing a clinical and scientific research network (the "research network"), each for the study of systemic juvenile idiopathic arthritis.

$150Kprogram expense
02

Grants to the bambino gesu hospital and umc utrecht: grants used to fund key european researchers to advance the study of systemic juvenile idiopathic arthritis.

$141Kprogram expense
03

Systemic Jia Foundation Plans Several Types of Fundraising

1) donations from families with sjia: the systemic jia foundation will reach out to families with sjia to both contribute and raise funds for the benefit of the systemic jia foundation. The systemic jia foundation will raise funds online, using fundraising sites such as crowdrise, stripe, facebook or fundraising functionality on our own…

$28Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CSystemic Jia Foundation
EINHdr · item D82-2564392
Principal addressHdr · item CMountain View, CA
WebsiteHdr · item Jwww.systemicjia.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MCA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H98)
Ruling yearIRS BMFNov 2018

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a3
Independent voting membersPt VI · Ln 1b1
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
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Statement of Revenue

Part VIII
Contributions & grants100%$193K
Total revenueLn 12$193K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.96 Management & general $0.04
Program services96%$344K
Management & general4%$16K
Total functional expensesLn 25$360K

Balance Sheet

Part X · end of year
CashLn 1$102K
Total assetsLn 16$102K
Total liabilitiesLn 26$0
Total net assetsLn 32$102K
Months of cash on handcomputed3.4

Financial Metrics

Form 990 · FY2022 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $102K · Operating expenses/yr $360K
3.4 months
Where the money goes
Program services
Program services $344K · Total expenses $360K
96%
Management & General
Management & general $16K · Total expenses $360K
4%
Fundraising
Fundraising $0 · Total expenses $360K
0%
Cost to raise $1
Fundraising expense (3-yr avg) $0 · Solicited contributions (3-yr avg) $311K
Solicited contributions below reporting floor
Where the money comes from
Contribution dependence
Contributions & grants $193K · Total revenue $193K
100%
Government reliance
Government grants — · Total revenue $193K
Earned-income share
Program service revenue $0 · Total revenue $193K
0%
Investment reliance
Investment income $0 · Total revenue $193K
0%
Program self-sufficiency
Program service revenue $0 · Total expenses $360K
0%
Growth & trend
Revenue growth (YoY)
This year $193K · Prior year $62K
+213%
Net-asset trend (YoY)
End of year $102K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $193K · Expenses $360K
-87%
Liabilities-to-Assets
Total liabilities — · Total assets $102K
Net-asset ratio
Net assets $102K · Total assets $102K
100%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $102K
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Jonathan Boutelle · Reported title DIRECTOR · Highest reported compensation $0 · Total expenses $360K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) — · Total expenses $360K
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 96%
Overhead ratio 4%
Fundraising cost ratio 0%
Revenue growth 213%
Legal fee ratio 0.7%
Accounting fee ratio 2%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 2 funders$69K
Grants paid · 8 grants · $889K · 2020–2023
Cincinnati Children's HospitalFY2023$250,000
Cincinnati Children's HospitalFY2022$150,000
The UCLA FoundationCA · FY2022$26,625
Rarebase PbcFY2021$62,800

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$159K revenue · ⤓ 990 PDF
FY2023$349K revenue · ⤓ 990 PDF
FY2022$193K revenue · viewing · ⤓ 990 PDF
FY2021$62K revenue · ⤓ 990 PDF
FY2020$680K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2022IRS
Classification, formation year, addressIRS Business Master File
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