1. To support research relating to treatments and cure of Systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.

501(c)(3) charity; gifts are tax-deductible.
96¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average surplus $12K a year · 4% of revenue · last 5 filings
Worth a look: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
96%
of spending
Looks good: 96% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
3 mo
of spending, in cash
Looks good: 3.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $69K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
1
of 3 voting members
Worth a look: 1 of 3 voting members are independent, under half.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$193K
+213% vs prior year
Spent
$360K
To programs
96%
Net assets
$102K
By yearFY2020–FY2024
Revenue
$193K
FY2022▲ +213%
Tap a bar for its year
Revenue by fiscal year
FY2020$680K
FY2021$62K
FY2022$193K
FY2023$349K
FY2024$159K
Expenses
$360K
FY2022▲ +47%
Tap a bar for its year
Expenses by fiscal year
FY2020$271K
FY2021$245K
FY2022$360K
FY2023$361K
FY2024$143K
Net assets
$102K
FY2022▼ -62%
Tap a bar for its year
Net assets by fiscal year
FY2020$453K
FY2021$270K
FY2022$102K
FY2023$90K
FY2024$107K

From the FY2022 Form 990 · see the original

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You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

96 cents of each dollar spent went to programs.

Program services 96% · $344K Management & general 4% · $16K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

3 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
See Systemic Jia Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research, raises awareness, and builds support networks for systemic juvenile idiopathic arthritis.

Questions for Systemic Jia Foundation

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Provided by the organization

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3 programs · $319K · in their own filed words · FY2022
01

Grant to cincinnati children's hospital this grant has been provided to fund the research, conducting an initial observational study for the collection of biospecimens and patient data and establishing a clinical and scientific research network (the "research network"), each for the study of systemic juvenile idiopathic arthritis.

$150Kprogram expense
02

Grants to the bambino gesu hospital and umc utrecht: grants used to fund key european researchers to advance the study of systemic juvenile idiopathic arthritis.

$141Kprogram expense
03

Systemic Jia Foundation Plans Several Types of Fundraising

1) donations from families with sjia: the systemic jia foundation will reach out to families with sjia to both contribute and raise funds for the benefit of the systemic jia foundation. The systemic jia foundation will raise funds online, using fundraising sites such as crowdrise, stripe, facebook or fundraising functionality on our own…

$28Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 2 funders$69K
Grants paid · 8 grants · $889K · 2020–2023
Cincinnati Children's HospitalFY2023$250,000
Cincinnati Children's HospitalFY2022$150,000
The UCLA FoundationCA · FY2022$26,625
Individual RecipientFY2021$62,800

By the numbers

The FY2022 990, line by line.

1The main four
Money inPt VIII
$193K
Ln 12
Gifts and grantsLn 1h$193K
Money outPt IX
$360K
Ln 25
Programscol B$344K
Managementcol C$16K
Owns and owesPt X
$102K
net assets · Ln 32
Cash and savingsLn 1–2$102K
Total assetsLn 16$102K
LiabilitiesLn 26$0
PeoplePt VI, VII
3
listed · VII A
PaidVII A0
Voting boardVI 1a3
IndependentVI 1b1
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$193K
Total revenueLn 12$193K
Assets in detailPt X, end of year
CashLn 1$102K
Cash and savings togetherLn 1–2$102K
Total assetsLn 16$102K
LiabilitiesLn 26$0
Net assetsLn 32$102K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$270K$102K
Total assetsLn 16$270K$102K
LiabilitiesLn 26$0$0
Net assetsLn 32$270K$102K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$202K$202K
Grants and assistance to foreign recipientsLn 3$116K$116K
Legal feesLn 11b$3K$3K
Accounting feesLn 11c$8K$8K
Other fees for servicesLn 11g$1K$1K
Office expensesLn 13$162$162
Conferences, conventions and meetingsLn 19$25K$25K
Other expenses (24a–d)Ln 24$6K$50$6K
Total functional expensesLn 25$360K$344K$16K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $159K$143K$17K$107K 990 PDF
FY2023 $349K$361K−$12K$90K 990 PDF
FY2022 Viewing $193K$360K−$168K$102K 990 PDF
FY2021 $62K$245K−$183K$270K 990 PDF
FY2020 $680K$271K$409K$453K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary $192,569 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $61,501$192,569
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $61,501$192,569
I-13 Grants and similar amounts paidPrior year $182,800$317,626
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $61,774$42,680
I-18 Total expensesPrior year $244,574$360,306
I-19 Revenue less expensesPrior year −$183,073−$167,737
Part VI · Governance 1 of 3 board members independent, 4 to look at
VI-1a Voting members of the governing body3
VI-1b Independent voting members1
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $192,569 across 3 lines filed
VIII-1f All other contributions, gifts and grants$192,569
VIII-1h Total contributions, gifts and grants$192,569
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$192,569
Part IX · Statement of functional expenses $360,306 across 8 lines filed
IX-1 Grants to domestic organizationsPrograms $201,625$201,625
IX-3 Grants and assistance to foreign recipientsPrograms $116,001$116,001
IX-11b Legal feesManagement $2,550$2,550
IX-11c Accounting feesManagement $7,848$7,848
IX-11g Other fees for servicesPrograms $1,127$1,127
IX-13 Office expensesManagement $162$162
IX-19 Conferences, conventions and meetingsPrograms $25,304$25,304
IX-24 Other expenses (24a–d)Programs $50 · Management $5,639$5,689
IX-25 Total functional expensesPrograms $344,107 · Management $16,199 · Fundraising $0$360,306
Part X · Balance sheet $102,078 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $269,815$102,078
X-16 Total assetsStart of year $269,815$102,078
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $269,815$102,078
X-33 Total liabilities and net assetsStart of year $269,815$102,078
Part XI · Reconciliation of net assets $102,078 net assets at year end
XI-1 Total revenue$192,569
XI-2 Total expenses$360,306
XI-3 Revenue less expenses−$167,737
XI-4 Net assets at start of year$269,815
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$102,078

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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