The Luke 18:1 Foundation mission is to work together as a community to find a cure for sma through rasising awareness, funding research, and supporting individuals and families. In support of the mission, the Luke 18:1 Foundation specifically seeks to have an impact on the various audiences with which IT is engaged. The Luke 18:1 foundation's three pillars' activities are raising awareness, funding research, and supporting families.

501(c)(3) charity; gifts are tax-deductible.
99¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $3K a year · under 1% of revenue · last 5 filings
Worth a look: a surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
99%
of spending
Looks good: 99% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
1 mo
of spending, in cash
Fine: 1.3 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
5
named funders · $120K
Looks good: 5 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
4
of 4 voting members
Looks good: 4 of 4 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$351K
Spent
$354K
To programs
99%
Net assets
$38K
By yearFY2020–FY2024
Revenue
$351K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$351K
FY2021$359K
FY2022$532K
FY2023$518K
FY2024$627K
Expenses
$354K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$354K
FY2021$379K
FY2022$524K
FY2023$497K
FY2024$617K
Net assets
$38K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$38K
FY2021$19K
FY2022$27K
FY2023$48K
FY2024$58K

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

99 cents of each dollar spent went to programs.

Program services 99% · $350K Management & general 1% · $4K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

4 people listed on the 990.

Part VII, Section A · reportable compensation
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Daniella Giglio’s $10K as Board Member is at the 6th percentile of top reported officer pay among 1980 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Luke 18-1 Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research, raises awareness, and supports families affected by SMA.

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Provided by the organization

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2 programs · $350K · in their own filed words · FY2020
01

Foundation made a grant to cure sma in the amount of $350,000. Cure sma raises funds to suport research and those diagnosed with sma.

$350Kprogram expense
02

Links 4 Luke

Annual golf tournament with all proceeds benfiting the luke 18:1 foundation, which raises funds for research efforts to find a cure for sma and support families affected by the disease.

Pt IX · col B

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 5 funders →
Grants paid · 5 grants · $2.2M · 2020–2024

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$351K
Ln 12
Gifts and grantsLn 1h$398K
Money outPt IX
$354K
Ln 25
Programscol B$350K
Managementcol C$4K
Owns and owesPt X
$38K
net assets · Ln 32
Cash and savingsLn 1–2$38K
Total assetsLn 16$38K
LiabilitiesLn 26$0
PeoplePt VI, VII
4
listed · VII A
PaidVII A0
Voting boardVI 1a4
IndependentVI 1b4
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$398K
Fundraising eventsLn 1c$398K
Total revenueLn 12$351K
Assets in detailPt X, end of year
CashLn 1$38K
Cash and savings togetherLn 1–2$38K
Total assetsLn 16$38K
LiabilitiesLn 26$0
Net assetsLn 32$38K
OperationsPt I, VI
EmployeesI 50
VolunteersI 630
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$41K$38K
Total assetsLn 16$41K$38K
LiabilitiesLn 26$0$0
Net assetsLn 32$41K$38K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$350K$350K
Other expenses (24a–d)Ln 24$4K$4K
Total functional expensesLn 25$354K$350K$4K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $627K$617K$10K$58K 990 PDF
FY2023 $518K$497K$22K$48K 990 PDF
FY2022 $532K$524K$8K$27K 990 PDF
FY2021 $359K$379K−$20K$19K 990 PDF
FY2020 Viewing $351K$354K−$3K$38K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $350,838 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $245,582$398,023
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year −$57,822−$47,185
I-12 Total revenuePrior year $187,760$350,838
I-13 Grants and similar amounts paidPrior year $201,820$350,000
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $3,930$3,849
I-18 Total expensesPrior year $205,750$353,849
I-19 Revenue less expensesPrior year −$17,990−$3,011
Part VI · Governance 4 of 4 board members independent, 4 to look at
VI-1a Voting members of the governing body4
VI-1b Independent voting members4
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $350,838 across 4 lines filed
VIII-1c Fundraising events$398,023
VIII-1h Total contributions, gifts and grants$398,023
VIII-8 Net income from fundraising eventsExcluded from tax −$47,185−$47,185
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax −$47,185$350,838
Part IX · Statement of functional expenses $353,849 across 2 lines filed
IX-1 Grants to domestic organizationsPrograms $350,000$350,000
IX-24 Other expenses (24a–d)Management $3,849$3,849
IX-25 Total functional expensesPrograms $350,000 · Management $3,849 · Fundraising $0$353,849
Part X · Balance sheet $38,120 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $41,130$38,120
X-16 Total assetsStart of year $41,130$38,120
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $41,130$38,120
X-33 Total liabilities and net assetsStart of year $41,130$38,120
Part XI · Reconciliation of net assets $38,120 net assets at year end
XI-1 Total revenue$350,838
XI-2 Total expenses$353,849
XI-3 Revenue less expenses−$3,011
XI-4 Net assets at start of year$41,130
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$38,120

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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