Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
92 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990.
Daniella Giglio’s $10K as Board Member is at the 6th percentile of top reported officer pay among 1980 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds research, raises awareness, and supports families affected by SMA.
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Foundation made a grant to cure sma in the amount of $450,181. Cure sma raises funds to suport research and those diagnosed with sma.
Links 4 Luke
Annual golf tournament with all proceeds benfiting the luke 18:1 foundation, which raises funds for research efforts to find a cure for sma and support families affected by the disease.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $48K | $58K |
| Total assetsLn 16 | $48K | $58K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $48K | $58K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $565K | $565K | ||
| Advertising and promotionLn 12 | $115 | $115 | ||
| Office expensesLn 13 | $7K | $7K | ||
| TravelLn 17 | $3K | $3K | ||
| Other expenses (24a–d)Ln 24 | $42K | $42K | ||
| Total functional expensesLn 25 | $617K | $565K | $52K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $627K | $617K | $10K | $58K | 990 PDF |
| FY2023 | $518K | $497K | $22K | $48K | 990 PDF |
| FY2022 | $532K | $524K | $8K | $27K | 990 PDF |
| FY2021 | $359K | $379K | −$20K | $19K | 990 PDF |
| FY2020 | $351K | $354K | −$3K | $38K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (4 parts)
Part VIII · Statement of revenue $627,172 across 4 lines filed
Part IX · Statement of functional expenses $617,151 across 5 lines filed
Part X · Balance sheet $58,469 assets, 5 lines filed
Part XI · Reconciliation of net assets $58,469 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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