Andrews Firefly Fund
Advocates for newborn screening, funds medical research, and improves patient access to care. For fiscal year 2024 it reported $649K in revenue, $737K in expenses, and $12K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Austin, TX
- Website
- fireflyfund.org
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Where the work happens
Since 2017 firefly fund has been leading the NPC NBS initiative with a vision that all newborns will be screened for NPC, enabeling early diagnosis and intervention. The initiative is led by a broad stakeholder working group, chaired by DRS.
Work with academic centers of excellence and patient advocacy organizations to remove barriers to care and access to therapies necessary for their loved ones with an NPC diagnosis.
Firefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Beryl Pam Andrews’s $95K as Executive Director is at the 76th percentile of top reported officer pay among 900 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Beryl Pamela Andrews | — | $122,071 | $95,000 | — | — |
| Beryl Pam Andrews | — | — | — | — | $110,120 |
| Beryl Pam Andrews | $95,000 | — | — | $95,000 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 80% | — | — |
| Overhead ratio | 10% | — | — |
| Fundraising cost ratio | 12% | — | — |
| Revenue growth | ×12 | — | — |
| Accounting fee ratio | 3% | — | — |
| Fundraising fee ratio | 5% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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