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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Alzheimer's Disease Research Foundation To fund RESEARCH with the highest probability of preventing, slowing or reversing ALZHEIMER'S DISEASE. All… 52-2396428 · FY2024 Wellesley Hills, MA $31.8M $37.0M $43.2M 91% 5% 38 501(c)(3)
Vose River Charitable Fund Promote public health in the united states by developing tools and collaborations with other nonprofits and… 85-2817512 · FY2024 Bethesda, MD $16.2M $11.7M $28.9M 99% 0% 501(c)(3)
Huntington S Disease Foundation To fund transformative research to find treatments, and ultimately a cure, for huntington's DISEASE. 23-7376197 · FY2024 New York, NY $7.9M $4.5M $23.1M 86% 7% 4 501(c)(3)
Oak Tree Family Fund Oaktree will continue to support the 3east program at mclean hospital. We are going to also focus our capital… 87-1342579 · FY2024 Kennett Square, PA $4.8M $108.1K $5.3M 92% 0% 501(c)(3)
International Rett Syndrome Foundation To fund research aimed at potential cures for Rett syndrome and to empower families through education 31-1682518 · FY2024 West Chester, OH $4.8M $5.5M $5.3M 86% 8% 9 501(c)(3)
Les Turner Amyotrophic Lateral Sclerosis Foundation To find a cure for als, provide patient and family support and increase public awareness. 36-2916466 · FY2024 Skokie, IL $4.5M $3.3M $4.4M 80% 13% 20 501(c)(3)
Dysautonomia Foundation INC The DYSAUTONOMIA FOUNDATION supports and operates programs focused on the medical care, research, social… 13-6145280 · FY2024 New York, NY $1.6M $2.0M $1.1M 82% 4% 5 501(c)(3)
Livelikelou Foundation The organization's purpose is to promote and support charitable, scientific, literary and educational… 82-3524872 · FY2024 Oxford, OH $1.5M $2.2M $3.2M 72% 6% 501(c)(3)
Fore Batten Foundation This organization is organized exclusively for educational and charitable purposes, including to educate the… 82-2661656 · FY2024 Scottsdale, AZ $1.1M $2.7M $383.1K 98% 1% 1 501(c)(3)
Choroideremia Research Foundation INC To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a… 04-3511754 · FY2024 Springfield, MA $964.8K $819.1K $956.7K 80% 11% 8 501(c)(3)
Epidermolysis Bullosa Medical Research Foundation The primary purpose of the organization is to fund MEDICAL RESEARCH to find a cure for EPIDERMOLYSIS BULLOSA… 94-3130081 · FY2023 Los Angeles, CA $888.8K $400.7K $4.1M 86% 5% 501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024 Gorham, ME $887.6K $474.9K $1.1M 80% 5% 1 501(c)(3)
Burning Limb Foundation We provide financial assistance for those with rare disease. 81-4780623 · FY2024 Frisco, TX $802.1K $1.1M $132.6K 100% 0% 501(c)(3)
Childrens Brain Tumor Project Foundation To raise funds to support pediatric BRAIN cancer research. 46-4537457 · FY2024 New York, NY $711.0K $760.2K $126.9K 97% 1% 501(c)(3)
Texas Neurofibromatosis Foundation To fund neurofibromatosis research and education and to provide for support groups for those facing the… 74-2138345 · FY2024 Irving, TX $616.2K $623.8K $505.7K 30% 57% 4 501(c)(3)
New York City Bravest Scholarship Fund The FUND was established to provide SCHOLARSHIP and related economic assistance to the families of fire… 13-4055458 · FY2024 New York, NY $571.2K $307.2K $4.6M 96% 0% 501(c)(3)
Childrens Cancer Fund Funding research projects for a cure to childhood cancers. 13-4190313 · FY2024 Thornwood, NY $512.9K $369.7K $816.4K 88% 0% 501(c)(3)
Neurofibromatosis Network To provide information about the disorder NEUROFIBROMATOSIS to those affected and help families find medical… 04-3030760 · FY2023 Wheaton, IL $452.4K $491.5K $1.3M 81% 13% 5 501(c)(3)
To Cure a Rose Foundation Mission is to facilitate bringing genetic therapies to children with hnrnph2, and to those children with rare… 86-2919742 · FY2024 Dripping Spgs, TX $401.1K $426.6K $178.8K 80% 0% 501(c)(3)
The Jack Bear Foundation Nfp The foundation's mission is to raise public awareness of spinocerebellar ataxia recessive type 15… 93-4881466 · FY2024 Western Springs, IL $393.1K $245 $532.7K 0% 0% 501(c)(3)
Galactosemia Foundation To spread awareness of GALACTOSEMIA; to provide support for parents of children with GALACTOSEMIA through… 13-3349708 · FY2024 Albany, NY $385.6K $350.9K $818.6K 94% 0% 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Will Hardy Foundation This charitable corporation is organized and shall be operated exclusively for charitable, scientific and… 93-3881844 · FY2024 Henrico, VA $290.0K $2.1K $287.8K 100% 0% 501(c)(3)
Curears Funding Mitochondrial Disease Research 86-3568273 · FY2024 Raritan, NJ $283.5K $241.9K $411.4K 90% 5% 501(c)(3)
The John Douglas French Alzheimers Foundation Providing seed money for promising Alzheimer's research to assist in the prevention, treatment and cure of… 95-3901768 · FY2024 Pasadena, CA $274.4K $86.6K $1.0M 42% 0% 501(c)(3)
Childrens Brittle Bone Foundation Funding the research for a cure to osteogenesis imperfecta (oi). Providing assitance in the form of "impact… 36-3747896 · FY2023 Chicago, IL $231.1K $275.8K $669.3K 95% 0% 501(c)(3)
Isabella Foundation INC The isa elaine FOUNDATION is dedicated to advancing research discoveries on ultra-rare pediatric… 99-4435144 · FY2024 Ponte Vedra Beach, FL $200.2K $57.9K $86.2K 100% 0% 501(c)(3)
The Chip Miller Charitable Foundation To provide financial support for medical research and treatment of amyloid disease and related disorders, and… 20-0908480 · FY2024 Carlisle, PA $182.8K $163.0K $1.1M 77% 3% 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% 501(c)(3)
Genetic Counseling Foundation To serve as a catalyst for the integration of genomic information and GENETIC COUNSELING services into… 20-4468704 · FY2024 Chicago, IL $155.6K $103.0K $1.9M 100% 0% 501(c)(3)
Coffin-Siris Syndrome Foundation To provide information and support to families with an individual diagnosed with Coffin-Siris Syndrome and… 82-2116961 · FY2025 Kirkland, WA $151.4K $237.7K 501(c)(3)
Needlers Foundation Raise funds for neurological surgeries for underprivileged children 11-2543741 · FY2024 New York, NY $132.4K $140.3K $81.7K 86% 0% 501(c)(3)
Childrens Rare Disorders Fund 88-3452294 · FY2023 East Hampton, NY $126.2K $0 501(c)(3)
Connell Family Foundation INC Receive, administer & expend funds for charitable & educational purposes & activities designed to support… 92-1029074 · FY2024 Kansas City, MO $102.7K $65.0K $92.1K 100% 0% 501(c)(3)
Gene-Arations INC To provide financial assistance for genetic research to advance human health by identifying mutations for… 47-0968279 · FY2024 Brooklyn, NY $75.7K $1.6K $1.6M 0% 0% 501(c)(3)
Wobbly Feet Foundation INC Fund medical research Fund research for A-T, a rare genetic disease affecting young children. 27-1068774 · FY2022 Sarasota, FL $74.4K $0 501(c)(3)
Ellas Hope INC To educate and extend global awareness of rett syndrome. To fund research grants to world renowned… 66-0905467 · FY2019 St Thomas, VI $65.6K $64.3K $0 100% 0% 501(c)(3)
The Neuromuscular Disease Foundation To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation… 06-1789643 · FY2024 Beverly Hills, CA $65.4K $352.4K $660.3K 90% 2% 4 501(c)(3)
Childrens Gaucher Research Fund RESEARCH FUND to find cure for GAUCHER disease. 94-3326753 · FY2024 Granite Bay, CA $61.1K $17.2K $454.0K 90% 0% 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org