Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $215K paid to officers and key staff.
Ashley Valentine’s $97K as Board Chair is at the 79th percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Ashley Valentine | $97,094 | $90,335 | $81,949 | — | $39,375 |
| Margaret H Jalowsky | — | $61,011 | $71,875 | $27,000 | $46,650 |
| Abrinar Tainter | $70,724 | — | — | — | — |
| Abrina P Tainter | — | $70,718 | $48,325 | $39,986 | $21,600 |
| Ashley E Valentine | — | — | — | $69,500 | — |
| Elodie O Babongui | — | $52,419 | — | — | — |
| Emma Andelson | — | $41,561 | $49,163 | $35,131 | — |
| Mariah Scott | — | $44,140 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Amplifies sickle cell community stories to influence decision-makers and drive positive change.
Questions for Sick Cells
Your first name shows with your question. Sick Cells answers here, for everyone.
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Dialogue with Doctors, Faces of SCD Storytelling, Ambassador Program
Ambassador Program, Corporate Advisory Council, Dialogue w/ Doctors, Round Table
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $668K | $770K | −$102K | $516K | 990 PDF |
| FY2023 | $910K | $755K | $155K | $589K | 990 PDF |
| FY2022 | $584K | $550K | $34K | $434K | 990 PDF |
| FY2021 | $658K | $403K | $255K | $400K | 990 PDF |
| FY2020 Viewing | $345K | $335K | $10K | $79K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (1 part)
Part VI · Governance 0 of 5 board members independent, 2 to look at
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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