Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
73 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990; $168K paid to officers and key staff.
Ashley Valentine’s $97K as Board Chair is at the 79th percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Ashley Valentine | $97,094 | $90,335 | $81,949 | — | $39,375 |
| Margaret H Jalowsky | — | $61,011 | $71,875 | $27,000 | $46,650 |
| Abrinar Tainter | $70,724 | — | — | — | — |
| Abrina P Tainter | — | $70,718 | $48,325 | $39,986 | $21,600 |
| Ashley E Valentine | — | — | — | $69,500 | — |
| Elodie O Babongui | — | $52,419 | — | — | — |
| Emma Andelson | — | $41,561 | $49,163 | $35,131 | — |
| Mariah Scott | — | $44,140 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Amplifies sickle cell community stories to influence decision-makers and drive positive change.
Questions for Sick Cells
Your first name shows with your question. Sick Cells answers here, for everyone.
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In 2024, our organization conducted a wide range of education and outreach activities aimed at increasing awareness and understanding of sickle cell disease (SCD), while also working to improve access to care for individuals living with the condition.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $619K | $678K |
| Land, buildings, equipmentLn 10c | $0 | $10K |
| Total assetsLn 16 | $619K | $759K |
| LiabilitiesLn 26 | $3K | $243K |
| Net assetsLn 32 | $616K | $516K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $168K | $114K | $44K | $10K |
| Other salaries and wagesLn 7 | $130K | $89K | $33K | $8K |
| Pension plan contributionsLn 8 | $2K | $1K | $559 | $134 |
| Other employee benefitsLn 9 | $51K | $35K | $13K | $3K |
| Payroll taxesLn 10 | $26K | $18K | $7K | $2K |
| Accounting feesLn 11c | $17K | $841 | $16K | $75 |
| Other fees for servicesLn 11g | $259K | $213K | $46K | $266 |
| Advertising and promotionLn 12 | $6K | $6K | $316 | $103 |
| Office expensesLn 13 | $25K | $17K | $6K | $2K |
| Information technologyLn 14 | $2K | $2K | ||
| OccupancyLn 16 | $32K | $23K | $7K | $2K |
| TravelLn 17 | $37K | $33K | $3K | $786 |
| Conferences, conventions and meetingsLn 19 | $3K | $3K | $275 | |
| Depreciation, depletion and amortizationLn 22 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $10K | $10K | $637 | |
| Total functional expensesLn 25 | $770K | $565K | $178K | $28K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $668K | $770K | −$102K | $516K | 990 PDF |
| FY2023 | $910K | $755K | $155K | $589K | 990 PDF |
| FY2022 | $584K | $550K | $34K | $434K | 990 PDF |
| FY2021 | $658K | $403K | $255K | $400K | 990 PDF |
| FY2020 | $345K | $335K | $10K | $79K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $667,849 revenue, 12 lines filed
Part VI · Governance 6 of 7 board members independent, 2 to look at
Part VIII · Statement of revenue $667,849 across 5 lines filed
Part IX · Statement of functional expenses $770,184 across 15 lines filed
Part X · Balance sheet $758,662 assets, 13 lines filed
Part XI · Reconciliation of net assets $515,595 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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