Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2016.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
11 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $120K paid to officers and key staff.
Noah Johnston’s $120K as Executive Director is at the 88th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 |
|---|---|---|---|
| Noah Johnston | $120,000 | $120,000 | $106,459 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Combats Lyme and tick-borne illnesses through awareness, education, research funding, and patient advocacy.
Questions for Project Lyme
Your first name shows with your question. Project Lyme answers here, for everyone.
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Research
Project lyme directs funds for research through our partner organization bay area lyme foundation. The main focus of this program is to increase the viability of diagnostics available to the general public and therapeutics available for patients. We distributed $251,900 to bay area lyme.
Education and Awareness
Education, awareness, and advocacy are project lyme's three largest initiatives from an employment and public engagement standpoint. These funds are split between funding the distribution of documentary film the quiet epidemic, creating social media and website content for @projectlyme and PROJECTLYME.ORG, creating and distributing…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.2M | $908K |
| Total assetsLn 16 | $1.2M | $908K |
| LiabilitiesLn 26 | $0 | $249 |
| Net assetsLn 32 | $1.2M | $908K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $310K | $310K | ||
| Pay of current officers, directors and key staffLn 5 | $120K | $48K | $48K | $24K |
| Other employee benefitsLn 9 | $6K | $6K | ||
| Payroll taxesLn 10 | $11K | $2K | $5K | $4K |
| Legal feesLn 11b | $565 | $565 | ||
| Accounting feesLn 11c | $19K | $19K | ||
| Other fees for servicesLn 11g | $257K | $164K | $2K | $90K |
| Advertising and promotionLn 12 | $4.2M | $2K | $4.2M | |
| Office expensesLn 13 | $43K | $28K | $2K | $13K |
| Information technologyLn 14 | $3K | $190 | $3K | |
| OccupancyLn 16 | $909 | $909 | ||
| TravelLn 17 | $20K | $5K | $1K | $14K |
| InsuranceLn 23 | $2K | $120 | $1K | |
| Other expenses (24a–d)Ln 24 | $27K | $7K | $20K | $272 |
| Total functional expensesLn 25 | $5.1M | $566K | $4.3M | $146K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $546K | $5.1M | −$4.5M | $908K | 990 PDF |
| FY2023 | $982K | $781K | $201K | $1.2M | 990 PDF |
| FY2022 | $791K | $779K | $12K | $981K | 990 PDF |
| FY2021 | $575K | $645K | −$70K | $969K | 990 PDF |
| FY2020 | $1.5M | $984K | $558K | $1.0M | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $546,084 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, 2 to look at
Part VIII · Statement of revenue $546,084 across 12 lines filed
Part IX · Statement of functional expenses $5,051,695 across 14 lines filed
Part X · Balance sheet $907,936 assets, 10 lines filed
Part XI · Reconciliation of net assets $907,687 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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