Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2002.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
75 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $77K paid to officers and key staff.
Jennifer O'Connell’s $78K as Executive Dir. is at the 62nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Jennifer O'Connell | $78,000 | $78,000 | $77,200 | — | — | — |
| Jennifer Oconnell | — | — | — | $75,308 | — | — |
| Louise Bowden | — | — | — | — | $69,124 | $59,064 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Educates, supports, and advocates for individuals and families affected by Down Syndrome.
Questions for Down Syndrome Network INC DBA Dsnetwork
Your first name shows with your question. Down Syndrome Network INC DBA Dsnetwork answers here, for everyone.
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DSNetwork offers an array of programs to serve all age groups from newborns to adults in the DS community. We support new parents with the unexpected news from pre birth and at the time of diagnosis. Club Xtra program allows young children playtime and parents time to share their experiences, and support each other.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $259K | $257K |
| Land, buildings, equipmentLn 10c | $0 | $12K |
| Total assetsLn 16 | $259K | $268K |
| LiabilitiesLn 26 | $124K | $124K |
| Net assetsLn 32 | $135K | $144K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $750 | $750 | ||
| Pay of current officers, directors and key staffLn 5 | $77K | $62K | $8K | $8K |
| Other salaries and wagesLn 7 | $62K | $50K | $6K | $6K |
| Payroll taxesLn 10 | $13K | $10K | $1K | $1K |
| Accounting feesLn 11c | $12K | $12K | ||
| Other fees for servicesLn 11g | $6K | $3K | $3K | |
| Advertising and promotionLn 12 | $65 | $65 | ||
| Information technologyLn 14 | $8K | $6K | $626 | $786 |
| OccupancyLn 16 | $15K | $12K | $1K | $1K |
| TravelLn 17 | $4K | $4K | $231 | $173 |
| Conferences, conventions and meetingsLn 19 | $11K | $11K | $82 | $106 |
| InterestLn 20 | $3K | $3K | ||
| Depreciation, depletion and amortizationLn 22 | $229 | $183 | $23 | $23 |
| InsuranceLn 23 | $9K | $6K | $2K | $382 |
| Other expenses (24a–d)Ln 24 | $31K | $25K | $6K | $907 |
| All other expensesLn 24e | $2K | $2K | $74 | $13 |
| Total functional expensesLn 25 | $254K | $191K | $44K | $19K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $308K | $291K | $16K | $125K | 990 PDF |
| FY2024 | $234K | $270K | −$36K | $109K | 990 PDF |
| FY2023 Viewing | $263K | $254K | $9K | $144K | 990 PDF |
| FY2022 | $283K | $319K | −$36K | $135K | 990 PDF |
| FY2021 | $310K | $349K | −$40K | $171K | 990 PDF |
| FY2020 | $267K | $283K | −$17K | $221K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $263,264 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, 1 to look at
Part VIII · Statement of revenue $263,264 across 11 lines filed
Part IX · Statement of functional expenses $254,492 across 16 lines filed
Part X · Balance sheet $268,489 assets, 9 lines filed
Part XI · Reconciliation of net assets $144,174 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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