Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2002.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
48 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $75K paid to officers and key staff.
Jennifer O'Connell’s $78K as Executive Dir. is at the 62nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Jennifer O'Connell | $78,000 | $78,000 | $77,200 | — | — | — |
| Jennifer Oconnell | — | — | — | $75,308 | — | — |
| Louise Bowden | — | — | — | — | $69,124 | $59,064 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Educates, supports, and advocates for individuals and families affected by Down Syndrome.
Questions for Down Syndrome Network INC DBA Dsnetwork
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DSNetwork offers an array of programs to serve all age groups in the Down syndrome community. From newborns to adults, the organizations programs include Buddy Walk, Club Xtra, ages 0 to 7. Tweens and Tweens Up, ages 8 to 17. Xcell for Adults, ages 18 and up. DS ConneX for families. DADS Group. Moms Night Out. Buddy Up Tennis.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
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| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $290K | $259K |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $290K | $259K |
| LiabilitiesLn 26 | $118K | $124K |
| Net assetsLn 32 | $171K | $135K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $75K | $23K | $30K | $23K |
| Other salaries and wagesLn 7 | $106K | $74K | $11K | $21K |
| Payroll taxesLn 10 | $14K | $10K | $1K | $3K |
| Accounting feesLn 11c | $11K | $26 | $11K | $0 |
| Lobbying feesLn 11d | $8K | $8K | ||
| Professional fundraising feesLn 11e | $24K | $24K | ||
| Other fees for servicesLn 11g | $19K | $12K | $7K | |
| Advertising and promotionLn 12 | $719 | $180 | $191 | $348 |
| Office expensesLn 13 | $15K | $3K | $11K | $938 |
| Information technologyLn 14 | $10K | $751 | $6K | $3K |
| OccupancyLn 16 | $15K | $13K | $2K | |
| InterestLn 20 | $6K | $6K | ||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $7K | $5K | $2K | |
| Other expenses (24a–d)Ln 24 | $10K | $6K | $4K | $861 |
| All other expensesLn 24e | $0 | $0 | $0 | $0 |
| Total functional expensesLn 25 | $319K | $154K | $90K | $75K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $308K | $291K | $16K | $125K | 990 PDF |
| FY2024 | $234K | $270K | −$36K | $109K | 990 PDF |
| FY2023 | $263K | $254K | $9K | $144K | 990 PDF |
| FY2022 Viewing | $283K | $319K | −$36K | $135K | 990 PDF |
| FY2021 | $310K | $349K | −$40K | $171K | 990 PDF |
| FY2020 | $267K | $283K | −$17K | $221K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $282,702 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, 1 to look at
Part VIII · Statement of revenue $282,702 across 9 lines filed
Part IX · Statement of functional expenses $318,622 across 16 lines filed
Part X · Balance sheet $259,414 assets, 8 lines filed
Part XI · Reconciliation of net assets $135,402 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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