Myalgic Encephalomyelitis Action Network INC
Advocates for recognition, education, and research to improve care for people with ME. For fiscal year 2024 it reported $694K in revenue, $690K in expenses, and $142K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Santa Monica, CA
- Website
- www.meaction.net
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Laurie Jones’s $94K as Executive Director is at the 75th percentile of top reported officer pay among 900 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Julie Miele | — | — | $104,461 | — |
| Laurie Jones | $93,525 | $75,000 | — | — |
| Laurie Jones - Interim | — | — | $75,000 | — |
| Jen Brea | — | — | — | $36,346 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Where the work happens
Research and Medical
We aim to grow the scientific field through outreach, education and patient-driven research so that treatments, diagnosis, and outcomes can improve for people with me.
Digital Advocacy and Awareness
Advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with the us government through the national institute of health, the center for disease control & prevention, and the department of health and human services.
#millionsmissing
#millionsmissing is our global effort to raise awareness and achieve rights for ME/CFS patients. Since 2016, we have banded together every year to raise awareness and advocate for action.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 66% | — | — |
| Overhead ratio | 21% | — | — |
| Fundraising cost ratio | 13% | — | — |
| Revenue growth | -19% | — | — |
| Legal fee ratio | 1% | — | — |
| Accounting fee ratio | 3% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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