Myalgic Encephalomyelitis Action Network INC FY2021 filing
Advocates for recognition, education, and research to improve care for people with ME. For fiscal year 2021 it reported $582K in revenue, $653K in expenses, and $-54K in net assets.Pt I
- Founded
- 2014
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Santa Monica, CA
- Website
- www.meaction.net
- Filings
- 5 on file (2020–2021)
More identity details & actions ⌄
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Summary of the Filing
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Laurie Jones’s $75K as Executive Director is at the 59th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Julie Miele | — | — | — | $104,461 | — |
| Laurie Jones | $75,450 | $93,525 | $75,000 | — | — |
| Laurie Jones - Interim | — | — | — | $75,000 | — |
| Jen Brea | — | — | — | — | $36,346 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Where the work happens
Research and Medical
We aim to grow the scientific field through outreach, education and fellowship opportunities for young investigators, and by empowering patients to understand, engage with, and participate in research.
Digital Advocacy and Awareness
Advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with the us government through the national institute of health, the center for disease control & prevention, and the department of health and human services.
#millionsmissing
#millionsmissing is our global effort to raise awareness and achieve rights for ME/CFS patients. Since 2016, we have banded together every year in nearly 100 locations around the globe as a community of people with ME/CFS, caregivers and allies to raise awareness and advocate for action: millions are missing from their careers, schools…
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 53% | — | — |
| Overhead ratio | 34% | — | — |
| Fundraising cost ratio | 15% | — | — |
| Revenue growth | -12% | — | — |
| Legal fee ratio | 1% | — | — |
| Accounting fee ratio | 2% | — | — |
| Fundraising fee ratio | 0.9% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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