Fund research, raise awareness, and support patients for epithelioid hemangioendothelioma (EHE).
For fiscal year 2023 it reported $415K in revenue, $562K in expenses, and $1.7M in net assets.Pt I
Where the money goes · FY2023
Total revenue
$415K
Pt VIII · Ln 12
Total expenses
$562K
Pt IX · Ln 25
Net assets
$1.7M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$148K
Where spending went · Part IX cols B–D
86%
Program services $0.86 Management & general $0.07 Fundraising $0.06
Program efficiency
86%
of spending reaches programs
Operating runway
38.9mo
months of highly liquid reserves at operating expense rate
Surplus margin
-36%
revenue over expenses, this year
Summary of the Filing
Part I · fiscal year 2023 · Form 990
Revenue
$415K
FY2023▼ -54%
$1.6M$818K$0
FY2020FY2025
Expenses
$562K
FY2023▼ -40%
$942K$471K$0
FY2020FY2025
Total assets
$1.9M
FY2023▼ -9%
$2.5M$1.2M$0
FY2020FY2025
Total liabilities
$177K
FY2023▼ -39%
$322K$161K$0
FY2020FY2025
Total revenue
$415K
Pt VIII · Ln 12
Total expenses
$562K
Pt IX · Ln 25
Net assets
$1.7M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$148K
Total assetsPt X · Ln 16$1.9M
Program-expense ratioPt IX · col B86%
Voting members of governing bodyPt I · Ln 36
Independent voting membersPt I · Ln 45
Mission & Programs · Part III
Where the work happens
2 program services account for $485K of program spending, described in the organization's own filed words · FY2023.
01
Research
The ehe foundation funded research projects in basic and translational science aimed to advance knowledge in the disease, enabling the identification of effective treatments for ehe. In addition to funding external research, the foundation funded and advanced patient-led research initiatives including biobanking of ehe biospecimens…
$437Kprogram expense
02
Patient Services
The ehe foundation helped patients and their families find accurate information about ehe, including physicians experienced in treating ehe, and treatment options by developing and publishing educational content, hosting educational conferences, and providing online and 1:1 peer support.
Denise Robinson’s $129K as Exec Dir/Dir
is at the 43rd percentile of top reported officer pay among 731 $1–10M diseases & disorders nonprofits.
Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 5 named individuals · Part VII
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
Individual Denise Robinson · Reported title BOARD MEM./R · Highest reported compensation $70K · Total expenses $562K
13%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $19K · Total expenses $562K
3%
Peer comparison
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
Metric
This org
Peer median
Percentile
Program ratio
86%
—
—
Overhead ratio
7%
—
—
Fundraising cost ratio
10%
—
—
Revenue growth
-54%
—
—
Investment management fee ratio
0.4%
—
—
Accounting fee ratio
2%
—
—
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
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Sources
Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2023IRS
Classification, formation year, addressIRS Business Master File
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