Fund research, raise awareness, and support patients for epithelioid hemangioendothelioma (EHE).
For fiscal year 2020 it reported $1.1M in revenue, $554K in expenses, and $1.1M in net assets.Pt I
Where the money goes · FY2020
Total revenue
$1.1M
Pt VIII · Ln 12
Total expenses
$554K
Pt IX · Ln 25
Net assets
$1.1M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $518K
Where spending went · Part IX cols B–D
98%
Program services $0.98 Management & general $0.02
Program efficiency
98%
of spending reaches programs
Operating runway
24.8mo
months of highly liquid reserves at operating expense rate
Surplus margin
+48%
revenue over expenses, this year
Summary of the Filing
Part I · fiscal year 2020 · Form 990
Revenue
$1.1M
FY2020
$1.6M$818K$0
FY2020FY2025
Expenses
$554K
FY2020
$942K$471K$0
FY2020FY2025
Total assets
$1.1M
FY2020
$2.5M$1.2M$0
FY2020FY2025
Total liabilities
$4K
FY2020
$322K$161K$0
FY2020FY2025
Total revenue
$1.1M
Pt VIII · Ln 12
Total expenses
$554K
Pt IX · Ln 25
Net assets
$1.1M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$518K
Total assetsPt X · Ln 16$1.1M
Program-expense ratioPt IX · col B98%
Voting members of governing bodyPt I · Ln 37
Independent voting membersPt I · Ln 47
Mission & Programs · Part III
Where the work happens
3 program services account for $546K of program spending, described in the organization's own filed words · FY2020.
01
In 2020, the ehe foundation connected with over 250 newly diagnosed patients by providing online and 11 peer-to-peer support, medical information and resources. Ehe patients are located in 73 countries worldwide.
$419Kprogram expense
02
In 2020, the ehe foundation continued its support of strategic research initiatives focused on genetic regulation of ehe, development of a cell line in partnership with the broad institute rare cancer dependency map initiative, and mapping of ehe genetics and microenvironment.
$125Kprogram expense
03
In 2020, the ehe foundation organized and hosted several national and international grassroots fundraising events to raise funds and awareness of ehe. These events included the annual global 5k, several local and regional virtual 5k RUN/WALKS and a giving tuesday doubling event.
Denise Robinson’s $129K as Exec Dir/Dir
is at the 43rd percentile of top reported officer pay among 731 $1–10M diseases & disorders nonprofits.
Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 5 named individuals · Part VII
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
Individual Julia Wahl · Reported title PRESIDENT · Highest reported compensation $0 · Total expenses $554K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $0 · Total expenses $554K
0%
Peer comparison
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
Metric
This org
Peer median
Percentile
Program ratio
98%
—
—
Overhead ratio
2%
—
—
Fundraising cost ratio
0%
—
—
Investment management fee ratio
0%
—
—
Legal fee ratio
0%
—
—
Accounting fee ratio
0%
—
—
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
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Sources
Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2020IRS
Classification, formation year, addressIRS Business Master File
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