Form 990 for the fiscal year ending December 2021 (IRS tax year 2021).
Status and standing
Where the money goes
Statement of Functional Expenses
Financial health
Summary of the Filing
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 79% | — | — |
| Overhead ratio | 21% | — | — |
| Fundraising cost ratio | 0% | — | — |
| Revenue growth | 96% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Officers, Directors & Key Employees
Sumaira Ahmed’s $300K as President is at the 84th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 |
|---|---|---|---|
| Sumaira Ahmed | $300,305 | $307,193 | $224,539 |
| Michael Devlin | $284,583 | $280,464 | $210,719 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Governance & Policies
Mission and programs
Raises awareness, funds cures, and supports patients with Neuromyelitis Optica Spectrum Disorder.
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Where the work happens
Grants to facilitate research for the treatment of neuromyelitis optica.
From the Experts
A facebook live series designed to educate and discuss a variety of topics relevant to our community. Each webinar is hosted by an expert in the field and offers viewers a chance to ask questions in real time.
Working to generate global awareness of neuromyelitis optica spectrum disorder (nmosd), and creating a community of support for patients + their caregivers.
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Funders
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2024 Latest | $1.3M | $1.3M | -24% | 990 PDF |
| FY2023 | $1.8M | $1.5M | +21% | 990 PDF |
| FY2022 | $1.5M | $1.4M | +370% | 990 PDF |
| FY2021 Viewing | $310K | $121K | +96% | 990 PDF |
| FY2020 | $158K | $118K | 990 PDF |
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Schedules filed Part IV
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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Sources
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