Sumaira Foundation: Nonprofit Profile, Financials & Form 990 (EIN 47-2398246)

Sumaira Ahmed’s $300K as President is at the 84th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

Name	FY2024	FY2023	FY2022
Sumaira Ahmed	$300,305	$307,193	$224,539
Michael Devlin	$284,583	$280,464	$210,719

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Raises awareness, funds cures, and supports patients with Neuromyelitis Optica Spectrum Disorder.

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3 programs · $444K · in their own filed words · FY2024

01

Grants to facilitate research for the treatment of neuromyelitis optica and myelin oligodendrocyte glycoprotein anitbody disease.

$207Kprogram expense

02

Organizing regional educational events featuring local experts to foster community, empowerment and support for NMOSD/MOGAD patients, caregivers, clinicians and researchers.

$129Kprogram expense

03

Working to generate global awareness of neuromyelitis optica spectrum disorder (nmosd) and myelin oligodendrocyte glycoprotein anitbody disease (mogad), and creating a community of support for patients + their caregivers.

$107Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

Dorchester FoundationFY2024$10K

Global GenesFY2024$9K

Fidelity Investments Charitable Gift FundFY2024$6K

Total grants receivedfrom 3 funders$25K

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Grants paid · 13 grants · $349K · 2020–2024

Brain Health Center of the Rockies INCCO · FY2024$46,000

Unitemized GrantFY2024$20,828

The Medical College of Wisconsin INCWI · FY2023$25,000

University of California San FranciscoCA · FY2023$25,000

Case Western Reserve UniversityOH · FY2022$25,000

Mayo Clinic JacksonvilleMN · FY2022$25,000

University of UtahUT · FY2022$25,000

New York University School of Medicine - Sponsored ProgramsNY · FY2021$25,000

Mass General Brigham IncorporatedMA · FY2021$25,000

Connor B Judge FoundationFY2021$7,500

Mass General Brigham IncorporatedMA · FY2020$50,000

University of UtahUT · FY2020$25,000

Mass General Brigham IncorporatedMA · FY2020$25,000

By the numbers

The FY2024 990, line by line.

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from philanthropy.org

1The main four

Money inPt VIII

$1.3M

Ln 12

Gifts and grantsLn 1h$1.5M

Investment incomeLn 3$19K

Money outPt IX

$1.3M

Ln 25

Programscol B$846K

Managementcol C$160K

Fundraisingcol D$323K

Owns and owesPt X

$514K

net assets · Ln 32

Cash and savingsLn 1–2$500K

Total assetsLn 16$619K

LiabilitiesLn 26$105K

PeoplePt VI, VII

6

listed · VII A

PaidVII A2

Voting boardVI 1a5

IndependentVI 1b3

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$1.5M

Fundraising eventsLn 1c$70K

Investment incomeLn 3$19K

Gains on assetsLn 7−$40K

Total revenueLn 12$1.3M

Assets in detailPt X, end of year

CashLn 1$12K

SavingsLn 2$488K

Cash and savings togetherLn 1–2$500K

Land, buildings, equipmentLn 10c$1K

Other assetsLn 15$16K

Total assetsLn 16$619K

LiabilitiesLn 26$105K

Net assetsLn 32$514K

OperationsPt I, VI

EmployeesI 50

VolunteersI 645

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY24	End FY24
Cash and savingsLn 1–2	$629K	$500K
Land, buildings, equipmentLn 10c	$2K	$1K
Total assetsLn 16	$717K	$619K
LiabilitiesLn 26	$219K	$105K
Net assetsLn 32	$498K	$514K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$69K	$69K
Grants and assistance to foreign recipientsLn 3	$66K	$66K
Pay of current officers, directors and key staffLn 5	$585K	$322K	$58K	$205K
Management feesLn 11a	$6K	$3K	$3K
Accounting feesLn 11c	$20K	$10K	$10K
Other fees for servicesLn 11g	$2K	$954	$954
Advertising and promotionLn 12	$3K	$2K		$2K
Office expensesLn 13	$22K	$13K	$4K	$4K
OccupancyLn 16	$9K	$5K	$2K	$2K
TravelLn 17	$109K	$66K	$22K	$22K
Depreciation, depletion and amortizationLn 22	$13K	$3K	$3K	$6K
Other expenses (24a–d)Ln 24	$393K	$271K	$44K	$79K
All other expensesLn 24e	$33K	$16K	$13K	$3K
Total functional expensesLn 25	$1.3M	$846K	$160K	$323K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest Viewing	$1.3M	$1.3M	$16K	$514K	990 PDF
FY2023	$1.8M	$1.5M	$265K	$498K	990 PDF
FY2022	$1.5M	$1.4M	$85K	$233K	990 PDF
FY2021	$310K	$121K	$189K	$247K	990 PDF
FY2020	$158K	$118K	$40K	$58K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign J · Pay O · Explanations

See the full FY2024 990 (6 parts)

Part I · Summary $1,345,639 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $1,839,292$1,460,672

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $7,667−$21,757

I-11 Other revenuePrior year −$87,307−$93,276

I-12 Total revenuePrior year $1,759,652$1,345,639

I-13 Grants and similar amounts paidPrior year $173,536$134,954

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $587,657$584,888

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $733,817$609,769

I-18 Total expensesPrior year $1,495,010$1,329,611

I-19 Revenue less expensesPrior year $264,642$16,028

Part VI · Governance 3 of 5 board members independent, 1 to look at

VI-1a Voting members of the governing body5

VI-1b Independent voting members3

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

Part VIII · Statement of revenue $1,345,639 across 7 lines filed

Lines not itemized here account for −$4,533 of total revenue; see the IRS return.

VIII-1c Fundraising events$70,498

VIII-1f All other contributions, gifts and grants$1,390,174

VIII-1h Total contributions, gifts and grants$1,460,672

VIII-3 Investment incomeExcluded from tax $18,618$18,618

VIII-7 Net gain or loss on sales of assetsRelated to mission −$40,375−$40,375

VIII-8 Net income from fundraising eventsExcluded from tax −$88,743−$88,743

VIII-12 Total revenueRelated to mission −$40,375 · Unrelated business −$4,533 · Excluded from tax −$70,125$1,345,639

Part IX · Statement of functional expenses $1,329,611 across 13 lines filed

IX-1 Grants to domestic organizationsPrograms $69,328$69,328

IX-3 Grants and assistance to foreign recipientsPrograms $65,626$65,626

IX-5 Pay of current officers, directors and key staffPrograms $321,689 · Management $58,488 · Fundraising $204,711$584,888

IX-11a Management feesPrograms $2,889 · Management $2,888$5,777

IX-11c Accounting feesPrograms $9,790 · Management $9,789$19,579

IX-11g Other fees for servicesPrograms $954 · Management $954$1,908

IX-12 Advertising and promotionPrograms $1,611 · Fundraising $1,611$3,222

IX-13 Office expensesPrograms $13,289 · Management $4,430 · Fundraising $4,430$22,149

IX-16 OccupancyPrograms $5,480 · Management $1,827 · Fundraising $1,827$9,134

IX-17 TravelPrograms $65,546 · Management $21,849 · Fundraising $21,848$109,243

IX-22 Depreciation, depletion and amortizationPrograms $3,187 · Management $3,186 · Fundraising $6,376$12,749

IX-24 Other expenses (24a–d)Programs $270,593 · Management $43,514 · Fundraising $78,888$392,995

IX-24e All other expensesPrograms $16,239 · Management $13,448 · Fundraising $3,326$33,013

IX-25 Total functional expensesPrograms $846,221 · Management $160,373 · Fundraising $323,017$1,329,611

Part X · Balance sheet $618,636 assets, 11 lines filed

X-1 Cash, non-interest-bearingStart of year $75,000$12,350

X-2 Savings and temporary cash investmentsStart of year $553,827$487,627

X-3 Pledges and grants receivableStart of year $20,814$101,305

X-10c Land, buildings and equipment, netStart of year $2,028$1,475

X-15 Other assetsStart of year $65,086$15,879

X-16 Total assetsStart of year $716,755$618,636

X-17 Accounts payable and accrued expensesStart of year $84,719$94,355

X-18 Grants payableStart of year $119,500$10,717

X-26 Total liabilitiesStart of year $219,219$105,072

X-32 Total net assets or fund balancesStart of year $497,536$513,564

X-33 Total liabilities and net assetsStart of year $716,755$618,636

Part XI · Reconciliation of net assets $513,564 net assets at year end

XI-1 Total revenue$1,345,639

XI-2 Total expenses$1,329,611

XI-3 Revenue less expenses$16,028

XI-4 Net assets at start of year$497,536

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$513,564

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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Sumaira Foundation

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