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Answer Als FY2022 filing

Tax-deductible

New Orleans, LA501(c)(3)Diseases & Disorders EIN 47-1643994Revenue −$12K in FY2022

On file with the IRSanswerals.org930 Robert E Lee Blvd, 70124-4045 · New Orleans, LATax-exempt since Jan 2015Publicly supported charity — 170(b)(1)(A)(vi)

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To find solutions for people living with Als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with Als until a treatment or cure is found; discover what causes Als; develop models to understand Als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of Als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.

501(c)(3) charity; gifts are tax-deductible.
85¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $209K a year · 10% of revenue · last 5 filings
Concern: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
85%
of spending
Looks good: 85% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
58 mo
of spending, in cash
Looks good: 57.8 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
11
named funders · $1.4M
Looks good: 11 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$31K
0.5% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
10
of 10 voting members
Looks good: 10 of 10 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
−$12K
-101% vs prior year
Spent
$1.2M
To programs
85%
Net assets
$6.3M
By yearFY2020–FY2024
Revenue
−$12K
FY2022▼ -101%
Tap a bar for its year
Revenue by fiscal year
FY2020$2.3M
FY2021$1.8M
FY2022−$12K
FY2023$3.7M
FY2024$2.8M
Expenses
$1.2M
FY2022▼ -50%
Tap a bar for its year
Expenses by fiscal year
FY2020$1.7M
FY2021$2.5M
FY2022$1.2M
FY2023$2.9M
FY2024$3.2M
Net assets
$6.3M
FY2022▼ -17%
Tap a bar for its year
Net assets by fiscal year
FY2020$8.3M
FY2021$7.6M
FY2022$6.3M
FY2023$7.3M
FY2024$6.9M

From the FY2022 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jan 2015.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

85 cents of each dollar spent went to programs.

Program services 85% · $1.0M Management & general 7% · $88K Fundraising 8% · $94K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

10 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Clare Durrett
Co-Director/Managing Coord
$0Pt VII · Sec A
Paul Varisco
Director
$0Pt VII · Sec A
Steve Gleason
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Steve Finkbeiner
Board Member
$0Pt VII · Sec A
Pat Quinn
Board Member
$0Pt VII · Sec A
Michelle Farr
Board Member
$0Pt VII · Sec A
See Answer Als executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fund research to find treatments and cures for ALS, sharing all findings freely.

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Provided by the organization

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1 program · $1.0M · in their own filed words · FY2022
01

Creating the largest and most comprehensive foundation of als data ever amassed, encompansing clinical, chemical, genetic, protein, historical and biological data from an enormous sampling of als patients in the united states.

$1.0Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
The Leandro P Rizzuto FoundationFY2024$868K
Charities Aid Foundation AmericaFY2024$250K
Alzheimers Disease Data Initiative INCFY2024$150K
Ochsner Clinic FoundationFY2024$30K
National Philanthropic TrustFY2024$25K
Fidelity Investments Charitable Gift FundFY2024$18K
Donor Advised Charitable Giving INCFY2024$10K
The Richard Stravitz FoundationFY2024$10K
Total grants receivedfrom 11 funders$1.4M
See all 11 funders →
Grants paid · 22 grants · $8.2M · 2020–2024
John Hopkins University School of MedicineFY2024$1,029,803
Cedars Sinai HospitalFY2024$523,889
Individual RecipientFY2024$487,346
Diagenode LLCFY2024$229,531
MicrosoftFY2024$174,099
Individual RecipientFY2024$60,678
Louisiana State University at Eunice FoundationLA · FY2024$41,973
Pennington Biomedical Research CenterFY2024$41,947
AlmaguFY2024$14,900
Foundation for the National Institutes of HealthFY2024$10,000
University of New Orleans Office of ResearchFY2024$6,995
Cedars Sinai HospitalFY2023$946,512
John Hopkins University School of MedicineFY2023$724,850
Diagenode LLCFY2023$227,400
Individual RecipientFY2023$53,689
Louisiana State University at Eunice FoundationLA · FY2023$41,425
AlmaguFY2023$15,000
John Hopkins University School of MedicineFY2022$500,000
See all 22 grants →

By the numbers

The FY2022 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
−$12K
Ln 12
Gifts and grantsLn 1h$957K
Investment incomeLn 3$518
Money outPt IX
$1.2M
Ln 25
Programscol B$1.0M
Managementcol C$88K
Fundraisingcol D$94K
Owns and owesPt X
$6.3M
net assets · Ln 32
Cash and savingsLn 1–2$5.9M
Total assetsLn 16$6.4M
LiabilitiesLn 26$31K
PeoplePt VI, VII
10
listed · VII A
PaidVII A0
Voting boardVI 1a10
IndependentVI 1b10
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$957K
Fundraising eventsLn 1c$712K
Investment incomeLn 3$518
Total revenueLn 12−$12K
Assets in detailPt X, end of year
CashLn 1$5.9M
Cash and savings togetherLn 1–2$5.9M
Land, buildings, equipmentLn 10c$168K
Other assetsLn 15$23K
Total assetsLn 16$6.4M
LiabilitiesLn 26$31K
Net assetsLn 32$6.3M
OperationsPt I, VI
EmployeesI 51
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$3.9M$5.9M
Land, buildings, equipmentLn 10c$336K$168K
Total assetsLn 16$7.8M$6.4M
LiabilitiesLn 26$131K$31K
Net assetsLn 32$7.6M$6.3M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$700K$700K
Other salaries and wagesLn 7$60K$60K
Payroll taxesLn 10$5K$5K
Accounting feesLn 11c$15K$15K
Other fees for servicesLn 11g$69K$69K
Advertising and promotionLn 12$2K$2K
Office expensesLn 13$6K$228$5K$99
Information technologyLn 14$13K$7K$3K$3K
TravelLn 17$4K$3K$2K
Depreciation, depletion and amortizationLn 22$168K$117K$50K
InsuranceLn 23$11K$11K
Other expenses (24a–d)Ln 24$153K$73K$49K$31K
All other expensesLn 24e$20K$7K$4K$9K
Total functional expensesLn 25$1.2M$1.0M$88K$94K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $2.8M$3.2M−$428K$6.9M 990 PDF
FY2023 $3.7M$2.9M$761K$7.3M 990 PDF
FY2022 Viewing −$12K$1.2M−$1.2M$6.3M 990 PDF
FY2021 $1.8M$2.5M−$668K$7.6M 990 PDF
FY2020 $2.3M$1.7M$529K$8.3M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary −$12,049 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,800,662$957,217
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$518
I-11 Other revenuePrior year $0−$969,784
I-12 Total revenuePrior year $1,800,662−$12,049
I-13 Grants and similar amounts paidPrior year $1,867,200$700,000
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $65,483$64,690
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $535,899$460,712
I-18 Total expensesPrior year $2,468,582$1,225,402
I-19 Revenue less expensesPrior year −$667,920−$1,237,451
Part VI · Governance 10 of 10 board members independent, 2 to look at
VI-1a Voting members of the governing body10
VI-1b Independent voting members10
VI-13 Written whistleblower policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue −$12,049 across 7 lines filed
VIII-1c Fundraising events$711,667
VIII-1f All other contributions, gifts and grants$245,550
VIII-1h Total contributions, gifts and grants$957,217
VIII-3 Investment incomeExcluded from tax $518$518
VIII-8 Net income from fundraising eventsExcluded from tax −$989,040−$989,040
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $19,256$19,256
VIII-12 Total revenueRelated to mission $19,256 · Unrelated business $0 · Excluded from tax −$988,522−$12,049
Part IX · Statement of functional expenses $1,225,402 across 13 lines filed
IX-1 Grants to domestic organizationsPrograms $700,000$700,000
IX-7 Other salaries and wagesPrograms $59,527$59,527
IX-10 Payroll taxesPrograms $5,163$5,163
IX-11c Accounting feesManagement $14,568$14,568
IX-11g Other fees for servicesPrograms $69,000$69,000
IX-12 Advertising and promotionPrograms $2,026$2,026
IX-13 Office expensesPrograms $228 · Management $5,250 · Fundraising $99$5,577
IX-14 Information technologyPrograms $6,822 · Management $2,900 · Fundraising $3,388$13,110
IX-17 TravelPrograms $2,634 · Management $1,848$4,482
IX-22 Depreciation, depletion and amortizationPrograms $117,277 · Fundraising $50,262$167,539
IX-23 InsuranceManagement $11,185$11,185
IX-24 Other expenses (24a–d)Programs $73,088 · Management $48,750 · Fundraising $31,239$153,077
IX-24e All other expensesPrograms $6,968 · Management $3,997 · Fundraising $9,183$20,148
IX-25 Total functional expensesPrograms $1,042,733 · Management $88,498 · Fundraising $94,171$1,225,402
Part X · Balance sheet $6,354,337 assets, 14 lines filed
X-1 Cash, non-interest-bearingStart of year $3,851,520$5,903,332
X-3 Pledges and grants receivableStart of year $1,024,024$252,500
X-4 Accounts receivableStart of year $2,832$5,971
X-9 Prepaid expenses and deferred chargesStart of year $44,989$1,836
X-10c Land, buildings and equipment, netStart of year $335,686$168,147
X-15 Other assetsStart of year $996$22,551
X-16 Total assetsStart of year $7,757,258$6,354,337
X-17 Accounts payable and accrued expensesStart of year $16,415$9,174
X-25 Other liabilitiesStart of year $115,000$22,046
X-26 Total liabilitiesStart of year $131,415$31,220
X-27 Net assets without donor restrictionsStart of year $6,601,819$6,070,617
X-28 Net assets with donor restrictionsStart of year $1,024,024$252,500
X-32 Total net assets or fund balancesStart of year $7,625,843$6,323,117
X-33 Total liabilities and net assetsStart of year $7,757,258$6,354,337
Part XI · Reconciliation of net assets $6,323,117 net assets at year end
XI-1 Total revenue−$12,049
XI-2 Total expenses$1,225,402
XI-3 Revenue less expenses−$1,237,451
XI-4 Net assets at start of year$7,625,843
XI-8 Prior period adjustments−$65,275
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$6,323,117

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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