Answer Als: Nonprofit Profile, Financials & Form 990 (EIN 47-1643994)

Creating the largest and most comprehensive foundation of als data ever amassed, encompansing clinical, chemical, genetic, protein, historical and biological data from an enormous sampling of als patients in the united states.

$3.1Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

The Leandro P Rizzuto FoundationFY2024$868K

Charities Aid Foundation AmericaFY2024$250K

Alzheimers Disease Data Initiative INCFY2024$150K

Ochsner Clinic FoundationFY2024$30K

National Philanthropic TrustFY2024$25K

Fidelity Investments Charitable Gift FundFY2024$18K

Donor Advised Charitable Giving INCFY2024$10K

The Richard Stravitz FoundationFY2024$10K

Total grants receivedfrom 11 funders$1.4M

See all 11 funders →

Grants paid · 22 grants · $8.2M · 2020–2024

John Hopkins University School of MedicineFY2024$1,029,803

Cedars Sinai HospitalFY2024$523,889

Individual RecipientFY2024$487,346

Diagenode LLCFY2024$229,531

MicrosoftFY2024$174,099

Individual RecipientFY2024$60,678

Louisiana State University at Eunice FoundationLA · FY2024$41,973

Pennington Biomedical Research CenterFY2024$41,947

AlmaguFY2024$14,900

Foundation for the National Institutes of HealthFY2024$10,000

University of New Orleans Office of ResearchFY2024$6,995

Cedars Sinai HospitalFY2023$946,512

John Hopkins University School of MedicineFY2023$724,850

Diagenode LLCFY2023$227,400

Individual RecipientFY2023$53,689

Louisiana State University at Eunice FoundationLA · FY2023$41,425

AlmaguFY2023$15,000

John Hopkins University School of MedicineFY2022$500,000

See all 22 grants →

By the numbers

The FY2024 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$2.8M

Ln 12

Gifts and grantsLn 1h$2.7M

Investment incomeLn 3$151K

Money outPt IX

$3.2M

Ln 25

Programscol B$3.1M

Managementcol C$67K

Fundraisingcol D$38K

Owns and owesPt X

$6.9M

net assets · Ln 32

Cash and savingsLn 1–2$6.5M

Total assetsLn 16$7.4M

LiabilitiesLn 26$465K

PeoplePt VI, VII

11

listed · VII A

PaidVII A0

Voting boardVI 1a9

IndependentVI 1b9

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$2.7M

Investment incomeLn 3$151K

Total revenueLn 12$2.8M

Assets in detailPt X, end of year

CashLn 1$6.5M

Cash and savings togetherLn 1–2$6.5M

Land, buildings, equipmentLn 10c$3K

Other assetsLn 15$23K

Total assetsLn 16$7.4M

LiabilitiesLn 26$465K

Net assetsLn 32$6.9M

OperationsPt I, VI

EmployeesI 51

VolunteersI 60

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY24	End FY24
Cash and savingsLn 1–2	$6.5M	$6.5M
Land, buildings, equipmentLn 10c	$5K	$3K
Total assetsLn 16	$7.4M	$7.4M
LiabilitiesLn 26	$38K	$465K
Net assetsLn 32	$7.3M	$6.9M

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$2.6M	$2.6M
Other salaries and wagesLn 7	$62K	$62K
Payroll taxesLn 10	$5K	$5K
Accounting feesLn 11c	$22K		$22K
Other fees for servicesLn 11g	$57K	$33K	$8K	$16K
Advertising and promotionLn 12	$7K	$6K	$66	$780
Office expensesLn 13	$7K	$425	$7K	$47
Information technologyLn 14	$59K	$54K	$4K	$747
TravelLn 17	$110K	$106K	$12	$4K
Depreciation, depletion and amortizationLn 22	$2K	$1K		$512
InsuranceLn 23	$9K		$9K
Other expenses (24a–d)Ln 24	$275K	$249K	$13K	$13K
All other expensesLn 24e	$10K	$4K	$3K	$3K
Total functional expensesLn 25	$3.2M	$3.1M	$67K	$38K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest Viewing	$2.8M	$3.2M	−$428K	$6.9M	990 PDF
FY2023	$3.7M	$2.9M	$761K	$7.3M	990 PDF
FY2022	−$12K	$1.2M	−$1.2M	$6.3M	990 PDF
FY2021	$1.8M	$2.5M	−$668K	$7.6M	990 PDF
FY2020	$2.3M	$1.7M	$529K	$8.3M	990 PDF

More to add? Claim this org

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2024 990 (6 parts)

Part I · Summary $2,817,907 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $3,485,831$2,666,669

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $132,036$151,238

I-11 Other revenuePrior year $33,449$0

I-12 Total revenuePrior year $3,651,316$2,817,907

I-13 Grants and similar amounts paidPrior year $2,036,876$2,621,161

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $65,832$66,803

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $787,743$557,920

I-18 Total expensesPrior year $2,890,451$3,245,884

I-19 Revenue less expensesPrior year $760,865−$427,977

Part VI · Governance 9 of 9 board members independent, 1 to look at

VI-1a Voting members of the governing body9

VI-1b Independent voting members9

VI-15a Process for setting top official's payNo

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

Part VIII · Statement of revenue $2,817,907 across 4 lines filed

VIII-1f All other contributions, gifts and grants$2,666,669

VIII-1h Total contributions, gifts and grants$2,666,669

VIII-3 Investment incomeRelated to mission $151,238$151,238

VIII-12 Total revenueRelated to mission $151,238 · Unrelated business $0 · Excluded from tax $0$2,817,907

Part IX · Statement of functional expenses $3,245,884 across 13 lines filed

IX-1 Grants to domestic organizationsPrograms $2,621,161$2,621,161

IX-7 Other salaries and wagesPrograms $62,000$62,000

IX-10 Payroll taxesPrograms $4,803$4,803

IX-11c Accounting feesManagement $21,965$21,965

IX-11g Other fees for servicesPrograms $32,737 · Management $8,329 · Fundraising $16,412$57,478

IX-12 Advertising and promotionPrograms $5,986 · Management $66 · Fundraising $780$6,832

IX-13 Office expensesPrograms $425 · Management $6,613 · Fundraising $47$7,085

IX-14 Information technologyPrograms $54,026 · Management $4,018 · Fundraising $747$58,791

IX-17 TravelPrograms $106,168 · Management $12 · Fundraising $3,956$110,136

IX-22 Depreciation, depletion and amortizationPrograms $1,196 · Fundraising $512$1,708

IX-23 InsuranceManagement $9,085$9,085

IX-24 Other expenses (24a–d)Programs $248,574 · Management $13,346 · Fundraising $13,289$275,209

IX-24e All other expensesPrograms $3,543 · Management $3,447 · Fundraising $2,641$9,631

IX-25 Total functional expensesPrograms $3,140,619 · Management $66,881 · Fundraising $38,384$3,245,884

Part X · Balance sheet $7,362,169 assets, 15 lines filed

X-1 Cash, non-interest-bearingStart of year $6,451,283$6,485,165

X-3 Pledges and grants receivableStart of year $868,235$780,952

X-4 Accounts receivableStart of year $21,971$6,971

X-9 Prepaid expenses and deferred chargesStart of year $5,732$62,522

X-10c Land, buildings and equipment, netStart of year $4,982$3,274

X-15 Other assetsStart of year $10,995$23,285

X-16 Total assetsStart of year $7,363,198$7,362,169

X-17 Accounts payable and accrued expensesStart of year $27,361$57,375

X-19 Deferred revenue$385,000

X-25 Other liabilitiesStart of year $10,355$22,289

X-26 Total liabilitiesStart of year $37,716$464,664

X-27 Net assets without donor restrictionsStart of year $4,841,412$5,916,553

X-28 Net assets with donor restrictionsStart of year $2,484,070$980,952

X-32 Total net assets or fund balancesStart of year $7,325,482$6,897,505

X-33 Total liabilities and net assetsStart of year $7,363,198$7,362,169

Part XI · Reconciliation of net assets $6,897,505 net assets at year end

XI-1 Total revenue$2,817,907

XI-2 Total expenses$3,245,884

XI-3 Revenue less expenses−$427,977

XI-4 Net assets at start of year$7,325,482

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$6,897,505

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

Your org? Add context

Made it to the end? Claim this org

Answer Als

Before you give

Is it real?

Where the money goes

Who runs it and what they're paid

Questions the 990 asks

Programs and updates

Questions for Answer Als

Funders

Grants

By the numbers

Filing history

Schedules filed Part IV