Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
84 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
7 people listed on the 990; $46K paid to officers and key staff (Part VII, Section A).
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Kristen Davis | — | $66,739 | $51,227 | $49,671 | $45,996 |
| Lauren Beauregard | $60,000 | $20,800 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Cloves Syndrome Community executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports, educates, and empowers individuals affected by CLOVES syndrome.
Questions for Cloves Syndrome Community
Your first name shows with your question. Cloves Syndrome Community answers here, for everyone.
Provide information and resources to educate others about CLOVES Syndrome; Foster and promote a supportive community; Build and sustain a broad base of funding sources to support our mission and goals; Utilize incoming funds to provide financial assistance to those impacted by CLOVES Syndrome; Participate in and promote CLOVES Syndrome…
Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 45-3056921) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $276K | $444K |
| Total assetsLn 16 | $276K | $449K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $276K | $449K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $10K | $10K | ||
| Grants and assistance to foreign recipientsLn 3 | $25K | $25K | ||
| Other fees for servicesLn 11g | $175 | $175 | ||
| Office expensesLn 13 | $5K | $5K | ||
| Conferences, conventions and meetingsLn 19 | $14K | $14K | ||
| Other expenses (24a–d)Ln 24 | $133K | $115K | $18K | |
| All other expensesLn 24e | $24K | $14K | $8K | $2K |
| Total functional expensesLn 25 | $211K | $178K | $31K | $2K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 LatestFiled with the IRS Jan 16, 2026 | $130K | $119K | $12K | $173K | 990 PDF |
| FY2024Filed with the IRS Apr 29, 2025 | $130K | $193K | −$63K | $168K | 990 PDF |
| FY2023Filed with the IRS Jan 16, 2024 | $141K | $292K | −$151K | $231K | 990 PDF |
| FY2022Filed with the IRS Feb 15, 2023 | $311K | $377K | −$66K | $382K | 990 PDF |
| FY2021 ViewingFiled with the IRS Nov 8, 2021 | $384K | $211K | $173K | $449K | 990 PDF |
Schedules filed Part IV
See the full FY2021 990
Part I · Summary $384,237 revenue, 12 lines filed
Part VI · Governance 6 of 7 board members independent, 4 to look at
Part VIII · Statement of revenue $384,237 across 6 lines filed
Part IX · Statement of functional expenses $210,991 across 7 lines filed
Part X · Balance sheet $448,828 assets, 7 lines filed
Part XI · Reconciliation of net assets $448,828 net assets at year end
Form 990 e-file FY2021 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File
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