Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
83 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Who runs it and what they're paid
8 people listed on the 990; $50K paid to officers and key staff.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Kristen Davis | — | $66,739 | $51,227 | $49,671 | $45,996 |
| Lauren Beauregard | $60,000 | $20,800 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Cloves Syndrome Community executive salaries →Are you one of these people? Claim this org to confirm your role
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports, educates, and empowers individuals affected by CLOVES syndrome.
This section is blank until Cloves Syndrome Community claims this page.
Know this organization? Claim it to add your story
Provide information and resources to educate others about CLOVES Syndrome; Foster and promote a supportive community; Build and sustain a broad base of funding sources to support our mission and goals; Utilize incoming funds to provide financial assistance to those impacted by CLOVES Syndrome; Participate in and promote CLOVES Syndrome…
Run this program? Claim this org to tell your story
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $444K | $377K |
| Total assetsLn 16 | $449K | $382K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $449K | $382K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $59K | $59K | ||
| Grants to domestic individualsLn 2 | $39K | $39K | ||
| Grants and assistance to foreign recipientsLn 3 | $28K | $28K | ||
| Pay of current officers, directors and key staffLn 5 | $50K | $25K | $25K | |
| Other fees for servicesLn 11g | $17K | $12K | $5K | |
| Office expensesLn 13 | $8K | $8K | ||
| TravelLn 17 | $299 | $299 | ||
| Conferences, conventions and meetingsLn 19 | $500 | $500 | ||
| Other expenses (24a–d)Ln 24 | $156K | $145K | $11K | |
| All other expensesLn 24e | $18K | $4K | $8K | $5K |
| Total functional expensesLn 25 | $377K | $314K | $58K | $5K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $130K | $119K | $12K | $173K | 990 PDF |
| FY2024 | $130K | $193K | −$63K | $168K | 990 PDF |
| FY2023 | $141K | $292K | −$151K | $231K | 990 PDF |
| FY2022 Viewing | $311K | $377K | −$66K | $382K | 990 PDF |
| FY2021 | $384K | $211K | $173K | $449K | 990 PDF |
Want to add your own materials alongside these filings? Claim this org
Schedules filed Part IV
See the full FY2022 990 (4 parts)
Part VIII · Statement of revenue $310,706 across 6 lines filed
Part IX · Statement of functional expenses $377,179 across 10 lines filed
Part X · Balance sheet $382,355 assets, 7 lines filed
Part XI · Reconciliation of net assets $382,355 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
Similar organizations you could support · Compare with another nonprofit
Names, privacy, and removal requests More
The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.
Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.
We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.
Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.
If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.
Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.
If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.
If you ARE the filing organization, claim this org and add context
Made it to the end? Claim this organization