T1d Exchange is a leading provider of real-world evidence, dedicated to improving outcomes for the entire T1d population through driving collaborative change. T1d Exchange actively supports quality improvement and innovation through its quality improvement collaborative, patient registry, and data-oriented research services. IT plays an active role in creating real-world impact with this integrated data by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management.

501(c)(3) charity; gifts are tax-deductible.
56¢ of each $1 spent went to programs.
$1.5M paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $275K a year · 3% of revenue · last 5 filings
Concern: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
56%
of spending
Worth a look: 56% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$1.5M
to officers and key staff · 18% of spending
Fine: pay to officers and key staff is 18% of spending; 15% to 20%.
Pt VII · Sec A
8 mo
of spending, in cash
Looks good: 8.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
3
named funders · $6.5M
Looks good: 3 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$1.0M
7% of total assets
Looks good: liabilities are 7% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 10 voting members
Looks good: 9 of 10 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$12.6M
Spent
$7.9M
To programs
56%
Net assets
$14.9M
By yearFY2020–FY2024
Revenue
$12.6M
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$12.6M
FY2021$4.9M
FY2022$19.5M
FY2023$4.3M
FY2024$5.4M
Expenses
$7.9M
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$7.9M
FY2021$9.9M
FY2022$10.2M
FY2023$10.2M
FY2024$10.0M
Net assets
$14.9M
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$14.9M
FY2021$9.8M
FY2022$19.2M
FY2023$13.3M
FY2024$8.8M

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2013.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

56 cents of each dollar spent went to programs.

Program services 56% · $4.4M Management & general 34% · $2.7M Fundraising 10% · $802K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

17 people listed on the 990; $1.5M paid to officers and key staff.

Part VII, Section A · reportable compensation
President/Secretary
$321,416Pt VII · Sec A
VP of Registry
$227,360Pt VII · Sec A
VP, Qi and Population Health
$217,286Pt VII · Sec A
$205,566Pt VII · Sec A
VP, Product Development & Data
$182,089Pt VII · Sec A
VP, Industry Releation & Commercial Partnership
$157,179Pt VII · Sec A
Assoc. Dir. Quality Improvement
$140,912Pt VII · Sec A
Chairman/Director (resigned as Chairman 9/3/20 the
$0Pt VII · Sec A

David Walton’s $459K as President/Secretary is at the 96th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
David Walton$458,878$418,563$435,008$412,964$321,416
Osagie Ebekozien$323,249$299,238$267,857$231,953$217,286
Wendy Wolf$289,259$265,811$209,192$226,865$227,360
Campbell Rowe———$260,914$182,089
Daniel Finan$221,322$204,163$185,614$171,810—
Rebecca Parkes———$130,339$205,566
Sukhtej Singh Dhingra$196,271$157,069———
Kellee Miller—$193,430$174,767——

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Improves type 1 diabetes care by collecting data, supporting research, and driving collaborative change for better patient outcomes.

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Provided by the organization

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1 program · $4.4M · in their own filed words · FY2020
01

T1D exchange maintains three key programs, the quality improvement collaborative, the T1D exchange registry, and custom research services. The T1D exchange quality improvement collaborative consists of a learning collaborative comprised of diabetes centers from across the us, and a companion data platform integrating emr data to redefine…

$4.4Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Breakthrough T1dFY2024$669K
Total grants receivedfrom 3 funders$6.5M
See all 3 funders →

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$12.6M
Ln 12
Gifts and grantsLn 1h$11.9M
Fees for servicesLn 2g$663K
Investment incomeLn 3$9K
Money outPt IX
$7.9M
Ln 25
Programscol B$4.4M
Managementcol C$2.7M
Fundraisingcol D$802K
Owns and owesPt X
$14.9M
net assets · Ln 32
Cash and savingsLn 1–2$5.6M
Total assetsLn 16$15.9M
LiabilitiesLn 26$1.0M
PeoplePt VI, VII
17
listed · VII A
PaidVII A7
Voting boardVI 1a10
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$11.9M
Government grantsLn 1e$1.5M
Fees for servicesLn 2g$663K
Investment incomeLn 3$9K
Total revenueLn 12$12.6M
Assets in detailPt X, end of year
CashLn 1$3.7M
SavingsLn 2$1.9M
Cash and savings togetherLn 1–2$5.6M
InvestmentsLn 11–13$1.1M
Land, buildings, equipmentLn 10c$148K
Other assetsLn 15$41K
Total assetsLn 16$15.9M
LiabilitiesLn 26$1.0M
Net assetsLn 32$14.9M
OperationsPt I, VI
EmployeesI 539
VolunteersI 612
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$6.9M$5.6M
InvestmentsLn 11–13$1.0M$1.1M
Land, buildings, equipmentLn 10c$129K$148K
Total assetsLn 16$10.9M$15.9M
LiabilitiesLn 26$654K$1.0M
Net assetsLn 32$10.2M$14.9M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$475K$153K$321K
Other salaries and wagesLn 7$2.9M$2.1M$398K$395K
Pension plan contributionsLn 8$85K$85K
Other employee benefitsLn 9$355K$16K$335K$4K
Payroll taxesLn 10$285K$285K
Legal feesLn 11b$245K$63K$182K
Accounting feesLn 11c$56K$56K
Other fees for servicesLn 11g$583K$156K$418K$9K
Advertising and promotionLn 12$227K$37K$190K$13
Office expensesLn 13$905$55$850
Information technologyLn 14$184K$9K$174K
OccupancyLn 16$551K$380K$129K$41K
TravelLn 17$51K$21K$23K$6K
Conferences, conventions and meetingsLn 19$9K$4K$4K$1K
Depreciation, depletion and amortizationLn 22$876K$722K$150K$4K
InsuranceLn 23$43K$20K$19K$4K
Other expenses (24a–d)Ln 24$1.0M$951K$60K$3K
All other expensesLn 24e$20K$1K$7K$12K
Total functional expensesLn 25$7.9M$4.4M$2.7M$802K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $5.4M$10.0M−$4.5M$8.8M 990 PDF
FY2023 $4.3M$10.2M−$5.9M$13.3M 990 PDF
FY2022 $19.5M$10.2M$9.4M$19.2M 990 PDF
FY2021 $4.9M$9.9M−$5.0M$9.8M 990 PDF
FY2020 Viewing $12.6M$7.9M$4.7M$14.9M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $12,562,518 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $441,894$11,889,927
I-9 Program service revenuePrior year $433,617$663,297
I-10 Investment incomePrior year $45,002$9,294
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $920,513$12,562,518
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $4,909,522$4,050,080
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $3,362,023$3,858,505
I-18 Total expensesPrior year $8,271,545$7,908,585
I-19 Revenue less expensesPrior year −$7,351,032$4,653,933
Part VI · Governance 9 of 10 board members independent, no flags
VI-1a Voting members of the governing body10
VI-1b Independent voting members9
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $12,562,518 across 7 lines filed
VIII-1b Membership dues$225,000
VIII-1e Government grants$1,474,677
VIII-1f All other contributions, gifts and grants$10,190,250
VIII-1h Total contributions, gifts and grants$11,889,927
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $663,297$663,297
VIII-3 Investment incomeExcluded from tax $9,294$9,294
VIII-12 Total revenueRelated to mission $663,297 · Unrelated business $0 · Excluded from tax $9,294$12,562,518
Part IX · Statement of functional expenses $7,908,585 across 18 lines filed
IX-5 Pay of current officers, directors and key staffManagement $153,442 · Fundraising $321,332$474,774
IX-7 Other salaries and wagesPrograms $2,056,456 · Management $398,186 · Fundraising $395,475$2,850,117
IX-8 Pension plan contributionsManagement $85,161$85,161
IX-9 Other employee benefitsPrograms $16,087 · Management $334,983 · Fundraising $4,423$355,493
IX-10 Payroll taxesManagement $284,535$284,535
IX-11b Legal feesPrograms $63,036 · Management $181,813$244,849
IX-11c Accounting feesManagement $55,717$55,717
IX-11g Other fees for servicesPrograms $156,467 · Management $417,516 · Fundraising $9,449$583,432
IX-12 Advertising and promotionPrograms $37,460 · Management $189,528 · Fundraising $13$227,001
IX-13 Office expensesPrograms $55 · Management $850$905
IX-14 Information technologyPrograms $9,446 · Management $174,339$183,785
IX-16 OccupancyPrograms $380,380 · Management $129,304 · Fundraising $41,148$550,832
IX-17 TravelPrograms $21,193 · Management $23,310 · Fundraising $6,412$50,915
IX-19 Conferences, conventions and meetingsPrograms $3,525 · Management $4,273 · Fundraising $1,420$9,218
IX-22 Depreciation, depletion and amortizationPrograms $722,075 · Management $150,339 · Fundraising $3,551$875,965
IX-23 InsurancePrograms $19,974 · Management $18,642 · Fundraising $3,995$42,611
IX-24 Other expenses (24a–d)Programs $950,564 · Management $60,218 · Fundraising $2,607$1,013,389
IX-24e All other expensesPrograms $1,215 · Management $6,937 · Fundraising $11,734$19,886
IX-25 Total functional expensesPrograms $4,437,933 · Management $2,669,093 · Fundraising $801,559$7,908,585
Part X · Balance sheet $15,898,353 assets, 18 lines filed
X-1 Cash, non-interest-bearingStart of year $5,012,421$3,670,107
X-2 Savings and temporary cash investmentsStart of year $1,900,350$1,901,668
X-3 Pledges and grants receivableStart of year $0$5,666,138
X-4 Accounts receivableStart of year $78,076$187,063
X-9 Prepaid expenses and deferred chargesStart of year $229,492$112,639
X-10c Land, buildings and equipment, netStart of year $128,758$147,920
X-11 Publicly traded securitiesStart of year $1,043,254$1,055,574
X-14 Intangible assetsStart of year $2,398,677$3,115,852
X-15 Other assetsStart of year $59,205$41,392
X-16 Total assetsStart of year $10,850,233$15,898,353
X-17 Accounts payable and accrued expensesStart of year $559,062$838,839
X-19 Deferred revenueStart of year $49,000$192,879
X-25 Other liabilitiesStart of year $45,791$16,322
X-26 Total liabilitiesStart of year $653,853$1,048,040
X-27 Net assets without donor restrictionsStart of year $6,951,744$7,569,342
X-28 Net assets with donor restrictionsStart of year $3,244,636$7,280,971
X-32 Total net assets or fund balancesStart of year $10,196,380$14,850,313
X-33 Total liabilities and net assetsStart of year $10,850,233$15,898,353
Part XI · Reconciliation of net assets $14,850,313 net assets at year end
XI-1 Total revenue$12,562,518
XI-2 Total expenses$7,908,585
XI-3 Revenue less expenses$4,653,933
XI-4 Net assets at start of year$10,196,380
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$14,850,313

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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