T1d Exchange is a leading provider of real-world evidence, dedicated to improving outcomes for the entire T1d population through driving collaborative change. T1d Exchange actively supports quality improvement and innovation through its quality improvement collaborative, patient registry, and data-oriented research services. IT plays an active role in creating real-world impact with this integrated data by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management.

501(c)(3) charity; gifts are tax-deductible.
69¢ of each $1 spent went to programs.
Run by 12 volunteers and 39 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $275K a year · 3% of revenue · last 5 filings
Concern: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
69%
of spending
Fine: 69% of spending went to programs; 65% to 75%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$2.0M
to officers and key staff · 20% of spending
Fine: pay to officers and key staff is 20% of spending; 15% to 20%.
Pt VII · Sec A
7 mo
of spending, in cash
Looks good: 7.2 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
3
named funders · $6.5M
Looks good: 3 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$2.2M
20% of total assets
Looks good: liabilities are 20% of assets; 50% or less.
Pt X · Ln 26
Independent board members
10
of 11 voting members
Looks good: 10 of 11 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$5.4M
+27% vs prior year
Spent
$10.0M
To programs
69%
Net assets
$8.8M
By yearFY2020–FY2024
Revenue
$5.4M
FY2024▲ +27%
Tap a bar for its year
Revenue by fiscal year
FY2020$12.6M
FY2021$4.9M
FY2022$19.5M
FY2023$4.3M
FY2024$5.4M
Expenses
$10.0M
FY2024▼ -2%
Tap a bar for its year
Expenses by fiscal year
FY2020$7.9M
FY2021$9.9M
FY2022$10.2M
FY2023$10.2M
FY2024$10.0M
Net assets
$8.8M
FY2024▼ -34%
Tap a bar for its year
Net assets by fiscal year
FY2020$14.9M
FY2021$9.8M
FY2022$19.2M
FY2023$13.3M
FY2024$8.8M

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2013.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

69 cents of each dollar spent went to programs.

Program services 69% · $6.9M Management & general 30% · $3.0M Fundraising 1% · $118K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

18 people listed on the 990; $2.0M paid to officers and key staff.

Part VII, Section A · reportable compensation
President/Secretary
$458,878Pt VII · Sec A
Chief M.o. Executive VP Qi
$323,249Pt VII · Sec A
VP of Registry
$289,259Pt VII · Sec A
Director, Data & Product
$221,322Pt VII · Sec A
SR. Director, Product Development
$196,271Pt VII · Sec A
SR. Director, Marketing & Business
$185,851Pt VII · Sec A
SR. Director, Clinical Partnership & Engagement
$181,054Pt VII · Sec A
SR. Director, Finance & Operations
$167,696Pt VII · Sec A

David Walton’s $459K as President/Secretary is at the 96th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
David Walton$458,878$418,563$435,008$412,964$321,416
Osagie Ebekozien$323,249$299,238$267,857$231,953$217,286
Wendy Wolf$289,259$265,811$209,192$226,865$227,360
Campbell Rowe———$260,914$182,089
Daniel Finan$221,322$204,163$185,614$171,810—
Rebecca Parkes———$130,339$205,566
Sukhtej Singh Dhingra$196,271$157,069———
Kellee Miller—$193,430$174,767——

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Improves type 1 diabetes care by collecting data, supporting research, and driving collaborative change for better patient outcomes.

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1 program · $6.9M · in their own filed words · FY2024
01

T1D exchange maintains three key programs, the quality improvement collaborative, the T1D exchange registry, and custom research services. The T1D exchange quality improvement collaborative consists of a learning collaborative comprised of diabetes centers from across the us, and a companion data platform integrating emr data to redefine…

$6.9Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Breakthrough T1dFY2024$669K
Total grants receivedfrom 3 funders$6.5M
See all 3 funders →

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$5.4M
Ln 12
Gifts and grantsLn 1h$2.6M
Fees for servicesLn 2g$2.5M
Investment incomeLn 3$245K
Money outPt IX
$10.0M
Ln 25
Programscol B$6.9M
Managementcol C$3.0M
Fundraisingcol D$118K
Owns and owesPt X
$8.8M
net assets · Ln 32
Cash and savingsLn 1–2$6.0M
Total assetsLn 16$11.0M
LiabilitiesLn 26$2.2M
PeoplePt VI, VII
18
listed · VII A
PaidVII A8
Voting boardVI 1a11
IndependentVI 1b10
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$2.6M
Fees for servicesLn 2g$2.5M
Investment incomeLn 3$245K
Other incomeLn 4–11$111K
Total revenueLn 12$5.4M
Assets in detailPt X, end of year
CashLn 1$6.0M
Cash and savings togetherLn 1–2$6.0M
InvestmentsLn 11–13$1.2M
Land, buildings, equipmentLn 10c$6K
Other assetsLn 15$195K
Total assetsLn 16$11.0M
LiabilitiesLn 26$2.2M
Net assetsLn 32$8.8M
OperationsPt I, VI
EmployeesI 539
VolunteersI 612
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$6.0M$6.0M
InvestmentsLn 11–13$1.1M$1.2M
Land, buildings, equipmentLn 10c$14K$6K
Total assetsLn 16$15.6M$11.0M
LiabilitiesLn 26$2.3M$2.2M
Net assetsLn 32$13.3M$8.8M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$950K$644K$282K$23K
Other salaries and wagesLn 7$3.5M$2.1M$1.3M$62K
Pension plan contributionsLn 8$108K$75K$33K
Other employee benefitsLn 9$369K$352K$17K
Payroll taxesLn 10$302K$187K$109K$6K
Legal feesLn 11b$23K$23K
Accounting feesLn 11c$60K$60K
Other fees for servicesLn 11g$313K$67K$246K
Advertising and promotionLn 12$150K$12K$111K$28K
Office expensesLn 13$95K$44K$51K
Information technologyLn 14$229K$59K$170K
OccupancyLn 16$127K$82K$44K
Conferences, conventions and meetingsLn 19$710K$584K$126K
Depreciation, depletion and amortizationLn 22$469K$374K$95K
InsuranceLn 23$58K$30K$27K
Other expenses (24a–d)Ln 24$2.5M$2.2M$232K
Total functional expensesLn 25$10.0M$6.9M$3.0M$118K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $5.4M$10.0M−$4.5M$8.8M 990 PDF
FY2023 $4.3M$10.2M−$5.9M$13.3M 990 PDF
FY2022 $19.5M$10.2M$9.4M$19.2M 990 PDF
FY2021 $4.9M$9.9M−$5.0M$9.8M 990 PDF
FY2020 $12.6M$7.9M$4.7M$14.9M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $5,447,366 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,424,282$2,630,202
I-9 Program service revenuePrior year $2,647,898$2,460,979
I-10 Investment incomePrior year $202,912$245,348
I-11 Other revenuePrior year $0$110,837
I-12 Total revenuePrior year $4,275,092$5,447,366
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $5,312,159$5,265,000
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $4,867,319$4,685,578
I-18 Total expensesPrior year $10,179,478$9,950,578
I-19 Revenue less expensesPrior year −$5,904,386−$4,503,212
Part VI · Governance 10 of 11 board members independent, no flags
VI-1a Voting members of the governing body11
VI-1b Independent voting members10
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $5,447,366 across 7 lines filed
VIII-1b Membership dues$75,000
VIII-1f All other contributions, gifts and grants$2,555,202
VIII-1h Total contributions, gifts and grants$2,630,202
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $2,460,979$2,460,979
VIII-3 Investment incomeExcluded from tax $245,348$245,348
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $110,837$110,837
VIII-12 Total revenueRelated to mission $2,460,979 · Unrelated business $0 · Excluded from tax $356,185$5,447,366
Part IX · Statement of functional expenses $9,950,578 across 16 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $644,463 · Management $282,415 · Fundraising $22,944$949,822
IX-7 Other salaries and wagesPrograms $2,136,831 · Management $1,337,446 · Fundraising $61,737$3,536,014
IX-8 Pension plan contributionsPrograms $75,350 · Management $32,761$108,111
IX-9 Other employee benefitsPrograms $351,855 · Management $16,867$368,722
IX-10 Payroll taxesPrograms $187,195 · Management $109,025 · Fundraising $6,111$302,331
IX-11b Legal feesManagement $23,435$23,435
IX-11c Accounting feesManagement $60,000$60,000
IX-11g Other fees for servicesPrograms $66,546 · Management $245,967$312,513
IX-12 Advertising and promotionPrograms $11,831 · Management $110,704 · Fundraising $27,620$150,155
IX-13 Office expensesPrograms $44,187 · Management $51,293$95,480
IX-14 Information technologyPrograms $58,856 · Management $169,878$228,734
IX-16 OccupancyPrograms $82,237 · Management $44,473$126,710
IX-19 Conferences, conventions and meetingsPrograms $584,133 · Management $126,166$710,299
IX-22 Depreciation, depletion and amortizationPrograms $374,390 · Management $94,983$469,373
IX-23 InsurancePrograms $30,481 · Management $27,028$57,509
IX-24 Other expenses (24a–d)Programs $2,219,328 · Management $232,042$2,451,370
IX-25 Total functional expensesPrograms $6,867,683 · Management $2,964,483 · Fundraising $118,412$9,950,578
Part X · Balance sheet $11,048,909 assets, 17 lines filed
X-1 Cash, non-interest-bearingStart of year $6,013,245$6,005,176
X-3 Pledges and grants receivableStart of year $6,683,126$2,101,938
X-4 Accounts receivableStart of year $475,000$1,093,760
X-9 Prepaid expenses and deferred chargesStart of year $382,353$153,217
X-10c Land, buildings and equipment, netStart of year $14,238$6,479
X-11 Publicly traded securitiesStart of year $1,131,464$1,193,807
X-14 Intangible assetsStart of year $600,187$299,573
X-15 Other assetsStart of year $299,845$194,959
X-16 Total assetsStart of year $15,599,458$11,048,909
X-17 Accounts payable and accrued expensesStart of year $1,664,775$1,639,442
X-19 Deferred revenueStart of year $211,377$410,066
X-25 Other liabilitiesStart of year $408,587$187,894
X-26 Total liabilitiesStart of year $2,284,739$2,237,402
X-27 Net assets without donor restrictionsStart of year $4,438,020$5,653,940
X-28 Net assets with donor restrictionsStart of year $8,876,699$3,157,567
X-32 Total net assets or fund balancesStart of year $13,314,719$8,811,507
X-33 Total liabilities and net assetsStart of year $15,599,458$11,048,909
Part XI · Reconciliation of net assets $8,811,507 net assets at year end
XI-1 Total revenue$5,447,366
XI-2 Total expenses$9,950,578
XI-3 Revenue less expenses−$4,503,212
XI-4 Net assets at start of year$13,314,719
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$8,811,507

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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