Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 1990.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
15 people listed on the 990; $88K paid to officers and key staff.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Joyce a Kullman | $126,647 | $110,837 | $99,642 | $86,683 | $87,794 | $82,555 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports, inspires, and empowers vasculitis patients and families through education, research, and awareness.
Questions for Vasculitis Foundation
Your first name shows with your question. Vasculitis Foundation answers here, for everyone.
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The vasculitis foundation (VF) provides support through its detailed website,monthly VF e-newsletter, printed educational materials, podcasts, in-person and virtual patient and family conferences, support group meetings, and international symposia.
The vasculitis foundation (VF) collaborates with researchers worldwide to fund research into determining the cause, developing more effective treatments, and discovering a cure for vasculitis. Research ranges from basic science to improving quality of life studies.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $103K | $235K |
| InvestmentsLn 11–13 | $1.5M | $1.6M |
| Land, buildings, equipmentLn 10c | $36K | $16K |
| Total assetsLn 16 | $1.7M | $2.1M |
| LiabilitiesLn 26 | $106K | $31K |
| Net assetsLn 32 | $1.6M | $2.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $81K | $81K | ||
| Grants and assistance to foreign recipientsLn 3 | $114K | $114K | ||
| Pay of current officers, directors and key staffLn 5 | $98K | $64K | $17K | $17K |
| Other salaries and wagesLn 7 | $214K | $148K | $25K | $41K |
| Other employee benefitsLn 9 | $16K | $16K | ||
| Payroll taxesLn 10 | $21K | $14K | $4K | $4K |
| Legal feesLn 11b | $1K | $1K | ||
| Accounting feesLn 11c | $33K | $7K | $26K | |
| Investment management feesLn 11f | $9K | $9K | ||
| Advertising and promotionLn 12 | $36K | $36K | ||
| Office expensesLn 13 | $48K | $32K | $7K | $8K |
| Information technologyLn 14 | $37K | $21K | $11K | $5K |
| TravelLn 17 | $364 | $358 | $4 | $2 |
| Conferences, conventions and meetingsLn 19 | $69K | $69K | $16 | |
| Depreciation, depletion and amortizationLn 22 | $20K | $15K | $5K | |
| InsuranceLn 23 | $3K | $2K | $1K | $105 |
| Other expenses (24a–d)Ln 24 | $94K | $94K | ||
| Total functional expensesLn 25 | $896K | $713K | $108K | $75K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $2.5M | $2.4M | $126K | $5.9M | 990 PDF |
| FY2024 | $3.0M | $2.1M | $866K | $5.5M | 990 PDF |
| FY2023 | $3.2M | $1.3M | $2.0M | $4.4M | 990 PDF |
| FY2022 | $1.6M | $1.1M | $489K | $2.4M | 990 PDF |
| FY2021 Viewing | $1.3M | $896K | $435K | $2.1M | 990 PDF |
| FY2020 | $1.2M | $1.4M | −$235K | $1.6M | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $1,330,516 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, no flags
Part VIII · Statement of revenue $1,330,516 across 10 lines filed
Part IX · Statement of functional expenses $895,702 across 17 lines filed
Part X · Balance sheet $2,082,111 assets, 14 lines filed
Part XI · Reconciliation of net assets $2,051,309 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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