Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 1985.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
94 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
13 people listed on the 990; $159K paid to officers and key staff.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Anna Lambertson | $158,940 | $144,375 | $140,000 | $130,000 | $122,000 | $112,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research and provides education and comfort for hairy cell leukemia patients.
Questions for Hairy Cell Leukemia Foundation
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Annual conference each fall for doctors, as well as educational webinars and forums for patients throughout the year. Facilitation of regional support networks for patients. Responding to patient inquiries and referrals to HCL centers of excellence. Facilitation of scientific advisory groups and peer-to-peer doctor support.
Grants to the ohio state university and other institutions for registry implementation.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $69K | $206K |
| InvestmentsLn 11–13 | $4.8M | $4.3M |
| Total assetsLn 16 | $4.9M | $4.5M |
| LiabilitiesLn 26 | $4K | $4K |
| Net assetsLn 32 | $4.9M | $4.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $719K | $719K | ||
| Grants and assistance to foreign recipientsLn 3 | $262K | $262K | ||
| Pay of current officers, directors and key staffLn 5 | $159K | $127K | $8K | $24K |
| Other salaries and wagesLn 7 | $80K | $64K | $4K | $12K |
| Payroll taxesLn 10 | $18K | $15K | $920 | $3K |
| Legal feesLn 11b | $45K | $11K | $21K | $12K |
| Advertising and promotionLn 12 | $6K | $6K | ||
| Office expensesLn 13 | $8K | $5K | $326 | $3K |
| Information technologyLn 14 | $4K | $614 | $3K | |
| TravelLn 17 | $3K | $3K | $28 | |
| Conferences, conventions and meetingsLn 19 | $196K | $196K | ||
| InsuranceLn 23 | $3K | $2K | $126 | $379 |
| Total functional expensesLn 25 | $1.5M | $1.4M | $35K | $57K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $1.1M | $1.5M | −$390K | $4.5M | 990 PDF |
| FY2024 | $2.8M | $1.8M | $982K | $4.9M | 990 PDF |
| FY2023 | $2.5M | $1.3M | $1.2M | $3.9M | 990 PDF |
| FY2022 | $2.2M | $1.8M | $466K | $2.7M | 990 PDF |
| FY2021 | $2.4M | $717K | $1.7M | $2.3M | 990 PDF |
| FY2020 | $739K | $587K | $152K | $602K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $1,112,293 revenue, 12 lines filed
Part VI · Governance 12 of 12 board members independent, 2 to look at
Part VIII · Statement of revenue $1,112,293 across 4 lines filed
Part IX · Statement of functional expenses $1,502,176 across 12 lines filed
Part X · Balance sheet $4,521,348 assets, 9 lines filed
Part XI · Reconciliation of net assets $4,516,950 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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