Leading the fight to treat and cure Als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

501(c)(3) charity; gifts are tax-deductible.
80¢ of each $1 spent went to programs.
Run by 15 volunteers and 13 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $279K a year · 14% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
80%
of spending
Looks good: 80% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$141K
to officers and key staff · 6% of spending
Looks good: pay to officers and key staff is 6% of spending; 15% or less.
Pt VII · Sec A
13 mo
of spending, in cash
Looks good: 12.6 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
9
named funders · $347K
Looks good: 9 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$86K
1% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
7
of 7 voting members
Looks good: 7 of 7 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.2M
+35% vs prior year
Spent
$2.4M
To programs
80%
Net assets
$5.8M
By yearFY2021–FY2025
Revenue
$3.2M
FY2025▲ +35%
Tap a bar for its year
Revenue by fiscal year
FY2021$1.4M
FY2022$1.6M
FY2023$1.5M
FY2024$2.4M
FY2025$3.2M
Expenses
$2.4M
FY2025▲ +19%
Tap a bar for its year
Expenses by fiscal year
FY2021$1.2M
FY2022$1.3M
FY2023$1.8M
FY2024$2.0M
FY2025$2.4M
Net assets
$5.8M
FY2025▲ +23%
Tap a bar for its year
Net assets by fiscal year
FY2021$4.6M
FY2022$4.9M
FY2023$4.3M
FY2024$4.7M
FY2025$5.8M

From the FY2025 Form 990 (year ending January 2025) · figures checked against the IRS filing · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 2024.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

80 cents of each dollar spent went to programs.

Program services 80% · $1.9M Management & general 6% · $135K Fundraising 14% · $338K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

8 people listed on the 990; $141K paid to officers and key staff.

Part VII, Section A · reportable compensation · most recent filed roster (FY2024); the FY2025 filing did not itemize Part VII
President &
$140,772Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Vice Chair
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A

Marlin Seymour’s $141K as President & is at the 48th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2025FY2024FY2023FY2022FY2021
Marlin Seymour$140,772$216,349$249,438$93,349$89,074

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Als Association Central & Southern executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund research, advocate for cures, and support those affected by ALS.

Questions for Als Association Central & Southern

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Provided by the organization

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3 programs · $1.9M · in their own filed words · FY2024
01

Patient Services and Support

Als united ohio provides a wide range of services to people who have been diagnosed with amyotrophic lateral sclerosis (als) or lou gehrig's disease and to their family members. Services include case management by medical and healthcare professionals who assist patients, spouses, and caregivers in knowing how to prepare and deal with…

$1.4Mprogram expense
02

Public Awareness

Als united ohio provides in-service training to healthcare providers so they are better prepared to care for als patients. Staff and volunteers speak to community organizations, school groups, and the general public about als and the need for local services, support and about the need for research to find effective treatments and a cure…

$363Kprogram expense
03

Advocacy and Research

Als united ohio supports scientific research grants to find the cause, treatments and cure for als. In addition to financial support, the als united ohio actively develops relationships with local als researchers, inviting them to present their new projects and their findings to als united ohio support groups and to write articles for…

$123Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 9 funders →
Grants paid · 5 grants · $981K · 2020–2024
Unitemized GrantFY2024$241,615
Unitemized GrantFY2023$216,334
Unitemized GrantFY2022$199,851
Unitemized GrantFY2021$169,294
Unitemized GrantFY2020$153,868

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$3.2M
Ln 12
Gifts and grantsLn 1h$3.1M
Investment incomeLn 3$111K
Money outPt IX
$2.4M
Ln 25
Programscol B$1.9M
Managementcol C$135K
Fundraisingcol D$338K
Owns and owesPt X
$5.8M
net assets · Ln 32
Cash and savingsLn 1–2$2.5M
Total assetsLn 16$5.9M
LiabilitiesLn 26$86K
PeoplePt VI, VII
8
listed · VII A
PaidVII A1
Voting boardVI 1a7
IndependentVI 1b7
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.1M
Government grantsLn 1e$1.1M
Noncash giftsLn 1g$79K
Investment incomeLn 3$111K
Total revenueLn 12$3.2M
Assets in detailPt X, end of year
CashLn 1$253
SavingsLn 2$2.5M
Cash and savings togetherLn 1–2$2.5M
Land, buildings, equipmentLn 10c$279K
Other assetsLn 15$3.1M
Total assetsLn 16$5.9M
LiabilitiesLn 26$86K
Net assetsLn 32$5.8M
OperationsPt I, VI
EmployeesI 513
VolunteersI 615
Fiscal year endsHeaderJanuary
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$1.5M$2.5M
Land, buildings, equipmentLn 10c$313K$279K
Total assetsLn 16$4.8M$5.9M
LiabilitiesLn 26$122K$86K
Net assetsLn 32$4.7M$5.8M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic individualsLn 2$242K$242K
Other salaries and wagesLn 7$758K$594K$42K$121K
Pension plan contributionsLn 8$19K$19K
Other employee benefitsLn 9$92K$80K$7K$6K
Payroll taxesLn 10$58K$44K$3K$10K
Legal feesLn 11b$1K$1K
Accounting feesLn 11c$50K$50K
Lobbying feesLn 11d$8K$8K
Office expensesLn 13$156K$139K$15K$2K
OccupancyLn 16$45K$34K$6K$6K
Conferences, conventions and meetingsLn 19$13K$11K$1K$506
Depreciation, depletion and amortizationLn 22$112K$111K$1K
Other expenses (24a–d)Ln 24$791K$571K$40K$180K
All other expensesLn 24e$54K$21K$20K$13K
Total functional expensesLn 25$2.4M$1.9M$135K$338K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $3.2M$2.4M$805K$5.8M 990 PDF
FY2024 $2.4M$2.0M$351K$4.7M 990 PDF
FY2023 $1.5M$1.8M−$269K$4.3M 990 PDF
FY2022 $1.6M$1.3M$291K$4.9M 990 PDF
FY2021 $1.4M$1.2M$219K$4.6M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support M · Noncash O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $3,202,762 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $2,309,689$3,091,305
I-9 Program service revenue$0
I-10 Investment incomePrior year $62,901$111,457
I-11 Other revenue$0
I-12 Total revenuePrior year $2,372,590$3,202,762
I-13 Grants and similar amounts paidPrior year $216,334$241,615
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $909,552$926,544
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $895,947$1,230,024
I-18 Total expensesPrior year $2,021,833$2,398,183
I-19 Revenue less expensesPrior year $350,757$804,579
Part VI · Governance 7 of 7 board members independent, no flags
VI-1a Voting members of the governing body7
VI-1b Independent voting members7
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $3,202,762 across 6 lines filed
VIII-1e Government grants$1,080,681
VIII-1f All other contributions, gifts and grants$2,010,624
VIII-1g Noncash contributions (included above)$78,668
VIII-1h Total contributions, gifts and grants$3,091,305
VIII-3 Investment incomeExcluded from tax $111,457$111,457
VIII-12 Total revenueExcluded from tax $111,457$3,202,762
Part IX · Statement of functional expenses $2,398,183 across 14 lines filed
IX-2 Grants to domestic individualsPrograms $241,615$241,615
IX-7 Other salaries and wagesPrograms $594,407 · Management $41,766 · Fundraising $121,362$757,535
IX-8 Pension plan contributionsPrograms $18,679$18,679
IX-9 Other employee benefitsPrograms $79,664 · Management $6,755 · Fundraising $5,923$92,342
IX-10 Payroll taxesPrograms $44,470 · Management $3,473 · Fundraising $10,045$57,988
IX-11b Legal feesPrograms $1,345$1,345
IX-11c Accounting feesPrograms $49,618$49,618
IX-11d Lobbying feesPrograms $7,939$7,939
IX-13 Office expensesPrograms $139,095 · Management $14,974 · Fundraising $1,608$155,677
IX-16 OccupancyPrograms $33,964 · Management $5,661 · Fundraising $5,659$45,284
IX-19 Conferences, conventions and meetingsPrograms $11,200 · Management $1,413 · Fundraising $506$13,119
IX-22 Depreciation, depletion and amortizationPrograms $110,962 · Management $1,496$112,458
IX-24 Other expenses (24a–d)Programs $570,903 · Management $39,870 · Fundraising $179,750$790,523
IX-24e All other expensesPrograms $21,247 · Management $20,064 · Fundraising $12,750$54,061
IX-25 Total functional expensesPrograms $1,925,108 · Management $135,472 · Fundraising $337,603$2,398,183
Part X · Balance sheet $5,881,919 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $202$253
X-2 Savings and temporary cash investmentsStart of year $1,502,356$2,524,084
X-10c Land, buildings and equipment, netStart of year $312,755$278,965
X-15 Other assetsStart of year $3,028,530$3,078,617
X-16 Total assetsStart of year $4,843,843$5,881,919
X-17 Accounts payable and accrued expensesStart of year $28,837$28,422
X-25 Other liabilitiesStart of year $93,005$57,542
X-26 Total liabilitiesStart of year $121,842$85,964
X-27 Net assets without donor restrictionsStart of year $4,722,001$5,795,955
X-32 Total net assets or fund balancesStart of year $4,722,001$5,795,955
X-33 Total liabilities and net assetsStart of year $4,843,843$5,881,919
Part XI · Reconciliation of net assets $5,795,955 net assets at year end
XI-1 Total revenue$3,202,762
XI-2 Total expenses$2,398,183
XI-3 Revenue less expenses$804,579
XI-4 Net assets at start of year$4,722,001
XI-5 Net unrealized gains (losses) on investments$269,375
XI-10 Net assets at end of year$5,795,955

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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