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Amyotrophic Lateral Sclerosis FY2021 filing

West Des Moines, IAUnknown exempt organization EIN 30-0051272Revenue $924K in FY2021

On file with the IRSalsaiowa.org3636 Westown Parkway 204 · West Des Moines, IA

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Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

79¢ of each $1 spent went to programs.
$101K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Programs: Part IX · Pay: Part VII

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FY2021 · Form 990Independent: from IRS data, not the org
Download 990
Latest return
FY2022
latest Form 990
Worth a look: the latest return is for FY2022, 4 tax years back; more than 3 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $208K a year · 19% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
79%
of spending
Looks good: 79% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$101K
to officers and key staff · 12% of spending
Looks good: pay to officers and key staff is 12% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
9 mo
of spending, in cash
Looks good: 9.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $25K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$88K
11% of total assets
Looks good: liabilities are 11% of assets; 50% or less.
Pt X · Ln 26
Independent board members
16
of 16 voting members
Looks good: 16 of 16 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$924K
Spent
$872K
To programs
79%
Net assets
$700K
By yearFY2021–FY2022
Revenue
$924K
FY2021
Tap a bar for its year
Revenue by fiscal year
FY2021$924K
FY2022$1.2M
Expenses
$872K
FY2021
Tap a bar for its year
Expenses by fiscal year
FY2021$872K
FY2022$852K
Net assets
$700K
FY2021
Tap a bar for its year
Net assets by fiscal year
FY2021$700K
FY2022$1.1M

From the FY2021 Form 990 (year ending January 2021) · figures checked against the IRS filing · see the original

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You’re viewing the FY2021 filing — not the latest on file. See the latest (FY2022) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2022.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

79 cents of each dollar spent went to programs.

Program services 79% · $692K Management & general 8% · $68K Fundraising 13% · $112K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

17 people listed on the 990; $101K paid to officers and key staff.

Part VII, Section A · reportable compensation · most recent filed roster (FY2020); the FY2021 filing did not itemize Part VII
Josh Nuss
Executive Director
$101,248Pt VII · Sec A
Nick Finkenauer
Vice President
$0Pt VII · Sec A
Judie Wilson
Secretary
$0Pt VII · Sec A
Kevin Diehl
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Andy Garman
Director
$0Pt VII · Sec A
$0Pt VII · Sec A

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2022FY2021
Josh Nuss$100,634$101,248

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund research, advocate for cures, and support those affected by ALS.

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Provided by the organization

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1 program · $692K · in their own filed words · FY2020
01

Program service coordination and public education. Our patient services coordinators are trained professional social workers who provide all of our chapter's support services to iowans affected by als.

$692Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Prairie Meadows Race Track & Casino INCFY2024$20K
Affinity Credit UnionFY2024$5K
Total grants receivedfrom 2 funders$25K

By the numbers

The FY2021 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$924K
Ln 12
Gifts and grantsLn 1h$914K
Investment incomeLn 3$10K
Other incomeLn 4–11$747
Money outPt IX
$872K
Ln 25
Programscol B$692K
Managementcol C$68K
Fundraisingcol D$112K
Owns and owesPt X
$700K
net assets · Ln 32
Cash and savingsLn 1–2$684K
Total assetsLn 16$788K
LiabilitiesLn 26$88K
PeoplePt VI, VII
17
listed · VII A
PaidVII A1
Voting boardVI 1a16
IndependentVI 1b16
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$914K
Noncash giftsLn 1g$45K
Fundraising eventsLn 1c$357K
Investment incomeLn 3$10K
Other incomeLn 4–11$747
Total revenueLn 12$924K
Assets in detailPt X, end of year
CashLn 1$223K
SavingsLn 2$461K
Cash and savings togetherLn 1–2$684K
Land, buildings, equipmentLn 10c$105K
Total assetsLn 16$788K
LiabilitiesLn 26$88K
Net assetsLn 32$700K
OperationsPt I, VI
EmployeesI 57
VolunteersI 60
Fiscal year endsHeaderJanuary
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY21End FY21
Cash and savingsLn 1–2$593K$684K
Land, buildings, equipmentLn 10c$152K$105K
Total assetsLn 16$744K$788K
LiabilitiesLn 26$96K$88K
Net assetsLn 32$648K$700K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$92K$64K$18K$9K
Other salaries and wagesLn 7$324K$242K$32K$50K
Other employee benefitsLn 9$43K$34K$4K$4K
Payroll taxesLn 10$34K$27K$3K$3K
Accounting feesLn 11c$6K$3K$1K$2K
Advertising and promotionLn 12$2K$2K$244$244
Office expensesLn 13$59K$54K$5K
OccupancyLn 16$24K$19K$2K$2K
TravelLn 17$2K$2K$253
Payments to affiliatesLn 21$106K$106K
Depreciation, depletion and amortizationLn 22$92K$92K
InsuranceLn 23$4K$3K$422$422
Other expenses (24a–d)Ln 24$84K$43K$41K
Total functional expensesLn 25$872K$692K$68K$112K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2022 Latest $1.2M$852K$363K$1.1M 990 PDF
FY2021 Viewing $924K$872K$52K$700K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants M · Noncash O · Explanations
See the full FY2021 990 (6 parts)
Part I · Summary $924,095 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,010,009$913,788
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $7,841$9,560
I-11 Other revenuePrior year $2,515$747
I-12 Total revenuePrior year $1,020,365$924,095
I-13 Grants and similar amounts paidPrior year $30,000$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $512,362$492,838
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $586,156$379,306
I-18 Total expensesPrior year $1,128,518$872,144
I-19 Revenue less expensesPrior year −$108,153$51,951
Part VI · Governance 16 of 16 board members independent, no flags
VI-1a Voting members of the governing body16
VI-1b Independent voting members16
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $924,095 across 8 lines filed
VIII-1c Fundraising events$357,086
VIII-1f All other contributions, gifts and grants$556,702
VIII-1g Noncash contributions (included above)$45,000
VIII-1h Total contributions, gifts and grants$913,788
VIII-3 Investment incomeExcluded from tax $9,560$9,560
VIII-8 Net income from fundraising events$0
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $747$747
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $10,307$924,095
Part IX · Statement of functional expenses $872,144 across 13 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $64,213 · Management $18,347 · Fundraising $9,173$91,733
IX-7 Other salaries and wagesPrograms $241,579 · Management $32,344 · Fundraising $49,817$323,740
IX-9 Other employee benefitsPrograms $34,456 · Management $4,307 · Fundraising $4,307$43,070
IX-10 Payroll taxesPrograms $27,436 · Management $3,430 · Fundraising $3,429$34,295
IX-11c Accounting feesPrograms $3,300 · Management $1,200 · Fundraising $1,500$6,000
IX-12 Advertising and promotionPrograms $1,955 · Management $244 · Fundraising $244$2,443
IX-13 Office expensesPrograms $54,214 · Management $4,676$58,890
IX-16 OccupancyPrograms $18,897 · Management $2,362 · Fundraising $2,362$23,621
IX-17 TravelPrograms $2,020 · Management $253$2,273
IX-21 Payments to affiliatesPrograms $105,783$105,783
IX-22 Depreciation, depletion and amortizationPrograms $92,241$92,241
IX-23 InsurancePrograms $3,379 · Management $422 · Fundraising $422$4,223
IX-24 Other expenses (24a–d)Programs $42,852 · Fundraising $40,980$83,832
IX-25 Total functional expensesPrograms $692,325 · Management $67,585 · Fundraising $112,234$872,144
Part X · Balance sheet $788,435 assets, 9 lines filed
X-1 Cash, non-interest-bearing$223,068
X-2 Savings and temporary cash investmentsStart of year $592,660$460,812
X-10c Land, buildings and equipment, netStart of year $151,796$104,555
X-16 Total assetsStart of year $744,456$788,435
X-17 Accounts payable and accrued expensesStart of year $96,385$88,413
X-26 Total liabilitiesStart of year $96,385$88,413
X-27 Net assets without donor restrictionsStart of year $648,071$700,022
X-32 Total net assets or fund balancesStart of year $648,071$700,022
X-33 Total liabilities and net assetsStart of year $744,456$788,435
Part XI · Reconciliation of net assets $700,022 net assets at year end
XI-1 Total revenue$924,095
XI-2 Total expenses$872,144
XI-3 Revenue less expenses$51,951
XI-4 Net assets at start of year$648,071
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$700,022

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

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