Amyotrophic Lateral Sclerosis

West Des Moines, IAUnknown exempt organizationEIN 30-0051272Revenue $1.2M in FY2022

On file with the IRSalsaiowa.org3636 Westown Parkway 204 · West Des Moines, IA

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Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

77¢ of each $1 spent went to programs.
$101K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Programs: Part IX · Pay: Part VII

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
Latest return
FY2022
latest Form 990
Worth a look: the latest return is for FY2022, 4 tax years back; more than 3 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $208K a year · 19% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
77%
of spending
Looks good: 77% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$101K
to officers and key staff · 12% of spending
Looks good: pay to officers and key staff is 12% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
15 mo
of spending, in cash
Looks good: 15.2 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $25K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$72K
6% of total assets
Looks good: liabilities are 6% of assets; 50% or less.
Pt X · Ln 26
Independent board members
14
of 14 voting members
Looks good: 14 of 14 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.2M
+31% vs prior year
Spent
$852K
To programs
77%
Net assets
$1.1M
By yearFY2021–FY2022
Revenue
$1.2M
FY2022▲ +31%
Tap a bar for its year
Revenue by fiscal year
FY2021$924K
FY2022$1.2M
Expenses
$852K
FY2022▼ -2%
Tap a bar for its year
Expenses by fiscal year
FY2021$872K
FY2022$852K
Net assets
$1.1M
FY2022▲ +52%
Tap a bar for its year
Net assets by fiscal year
FY2021$700K
FY2022$1.1M

From the FY2022 Form 990 (year ending January 2022) · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2022.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

77 cents of each dollar spent went to programs.

Program services 77% · $659K Management & general 8% · $67K Fundraising 15% · $125K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990; $101K paid to officers and key staff.

Part VII, Section A · reportable compensation · most recent filed roster (FY2021); the FY2022 filing did not itemize Part VII
Executive Director
$100,634Pt VII · Sec A
Vice President
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
President
$0Pt VII · Sec A

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2022FY2021
Josh Nuss$100,634$101,248

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund research, advocate for cures, and support those affected by ALS.

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Provided by the organization

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1 program · $659K · in their own filed words · FY2021
01

Program service coordination and public education. Our patient services coordinators are trained professional social workers who provide all of our chapter's support services to iowans affected by als.

$659Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 2 funders$25K

By the numbers

The FY2022 990, line by line.

1The main four
Money inPt VIII
$1.2M
Ln 12
Gifts and grantsLn 1h$1.2M
Investment incomeLn 3$3K
Money outPt IX
$852K
Ln 25
Programscol B$659K
Managementcol C$67K
Fundraisingcol D$125K
Owns and owesPt X
$1.1M
net assets · Ln 32
Cash and savingsLn 1–2$1.1M
Total assetsLn 16$1.1M
LiabilitiesLn 26$72K
PeoplePt VI, VII
15
listed · VII A
PaidVII A1
Voting boardVI 1a14
IndependentVI 1b14
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$1.2M
Noncash giftsLn 1g$15K
Fundraising eventsLn 1c$362K
Investment incomeLn 3$3K
Total revenueLn 12$1.2M
Assets in detailPt X, end of year
CashLn 1$614K
SavingsLn 2$464K
Cash and savings togetherLn 1–2$1.1M
Land, buildings, equipmentLn 10c$57K
Total assetsLn 16$1.1M
LiabilitiesLn 26$72K
Net assetsLn 32$1.1M
OperationsPt I, VI
EmployeesI 57
VolunteersI 60
Fiscal year endsHeaderJanuary
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$684K$1.1M
Land, buildings, equipmentLn 10c$105K$57K
Total assetsLn 16$788K$1.1M
LiabilitiesLn 26$88K$72K
Net assetsLn 32$700K$1.1M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$111K$78K$22K$11K
Other salaries and wagesLn 7$275K$195K$31K$49K
Other employee benefitsLn 9$37K$30K$4K$4K
Payroll taxesLn 10$35K$28K$3K$3K
Advertising and promotionLn 12$441$353$44$44
Office expensesLn 13$61K$57K$4K
OccupancyLn 16$21K$17K$2K$2K
TravelLn 17$49$44$5
Payments to affiliatesLn 21$131K$131K
Depreciation, depletion and amortizationLn 22$66K$66K
InsuranceLn 23$4K$3K$378$378
Other expenses (24a–d)Ln 24$111K$55K$55K
Total functional expensesLn 25$852K$659K$67K$125K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2022 Latest Viewing $1.2M$852K$363K$1.1M 990 PDF
FY2021 $924K$872K$52K$700K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2022 990 (6 parts)
Part I · Summary $1,214,799 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $913,788$1,211,500
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $9,560$3,299
I-11 Other revenuePrior year $747$0
I-12 Total revenuePrior year $924,095$1,214,799
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $492,838$457,370
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $379,306$394,305
I-18 Total expensesPrior year $872,144$851,675
I-19 Revenue less expensesPrior year $51,951$363,124
Part VI · Governance 14 of 14 board members independent, no flags
VI-1a Voting members of the governing body14
VI-1b Independent voting members14
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $1,214,799 across 7 lines filed
VIII-1c Fundraising events$361,999
VIII-1f All other contributions, gifts and grants$849,501
VIII-1g Noncash contributions (included above)$15,000
VIII-1h Total contributions, gifts and grants$1,211,500
VIII-3 Investment incomeExcluded from tax $3,299$3,299
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $3,299$1,214,799
Part IX · Statement of functional expenses $851,675 across 12 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $77,560 · Management $22,160 · Fundraising $11,080$110,800
IX-7 Other salaries and wagesPrograms $194,891 · Management $30,979 · Fundraising $48,713$274,583
IX-9 Other employee benefitsPrograms $29,600 · Management $3,700 · Fundraising $3,700$37,000
IX-10 Payroll taxesPrograms $27,989 · Management $3,499 · Fundraising $3,499$34,987
IX-12 Advertising and promotionPrograms $353 · Management $44 · Fundraising $44$441
IX-13 Office expensesPrograms $56,849 · Management $4,421$61,270
IX-16 OccupancyPrograms $16,944 · Management $2,118 · Fundraising $2,118$21,180
IX-17 TravelPrograms $44 · Management $5$49
IX-21 Payments to affiliatesPrograms $130,818$130,818
IX-22 Depreciation, depletion and amortizationPrograms $65,927$65,927
IX-23 InsurancePrograms $3,025 · Management $378 · Fundraising $378$3,781
IX-24 Other expenses (24a–d)Programs $55,480 · Fundraising $55,359$110,839
IX-25 Total functional expensesPrograms $659,480 · Management $67,304 · Fundraising $124,891$851,675
Part X · Balance sheet $1,135,191 assets, 9 lines filed
X-1 Cash, non-interest-bearingStart of year $223,068$613,908
X-2 Savings and temporary cash investmentsStart of year $460,812$463,931
X-10c Land, buildings and equipment, netStart of year $104,555$57,352
X-16 Total assetsStart of year $788,435$1,135,191
X-17 Accounts payable and accrued expensesStart of year $88,413$72,045
X-26 Total liabilitiesStart of year $88,413$72,045
X-27 Net assets without donor restrictionsStart of year $700,022$1,063,146
X-32 Total net assets or fund balancesStart of year $700,022$1,063,146
X-33 Total liabilities and net assetsStart of year $788,435$1,135,191
Part XI · Reconciliation of net assets $1,063,146 net assets at year end
XI-1 Total revenue$1,214,799
XI-2 Total expenses$851,675
XI-3 Revenue less expenses$363,124
XI-4 Net assets at start of year$700,022
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$1,063,146

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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