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Rocky Mountain Rett Association FY2020 filing

Tax-deductible

Morrison, CO501(c)(3)Diseases & Disorders EIN 26-4698552Revenue $165K in FY2020Latest return filed Nov 17, 2025

On file with the IRSrmrett.orgPo Box 1294, 80465-5294 · Morrison, COTax-exempt since Jun 2009Publicly supported charity — 170(b)(1)(A)(vi)

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Rmra is organized for the primary purpose of funding research for thedevelopment of treatments and cures for Rett syndrome and related mecp2disorders. We also promote other related activites that provide support and advocacy to area families.

501(c)(3) charity; gifts are tax-deductible.
0¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

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FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $129K a year · 43% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
0.5%
of spending
Concern: 0% of spending went to programs; under 50%.
Pt IX · Ln 25 · col B
Cash reserves
68 mo
of spending, in cash
Looks good: 68.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
7
named funders · $111K
Looks good: 7 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$60K
19% of total assets
Looks good: liabilities are 19% of assets; 50% or less.
Pt X · Ln 26
Independent board members
10
of 10 voting members
Looks good: 10 of 10 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$165K
Spent
$54K
To programs
0.5%
Net assets
$251K
By yearFY2020–FY2024
Revenue
$165K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$165K
FY2021$323K
FY2022$226K
FY2023$420K
FY2024$367K
Expenses
$54K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$54K
FY2021$102K
FY2022$425K
FY2023$92K
FY2024$183K
Net assets
$251K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$251K
FY2021$472K
FY2022$273K
FY2023$601K
FY2024$784K

From the FY2020 Form 990 · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 2009.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

0 cents of each dollar spent went to programs.

Program services 0% · $252 Management & general 100% · $54K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

10 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Tim Benke
Director
$0Pt VII · Sec A
Pat Callahan
President
$0Pt VII · Sec A
$0Pt VII · Sec A
Justin Allen
Chairman
$0Pt VII · Sec A
Richard Hill
Director
$0Pt VII · Sec A
Dave Shaw
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
See Rocky Mountain Rett Association executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research for Rett syndrome treatments and cures, and supports affected families.

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Provided by the organization

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1 program · $252 · in their own filed words · FY2020
01

The organization funds the rett clinic at children's hospital colorado and national groups to address the needs of families and to facilitate treatment and research.

$252program expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
American Online Giving Foundation INCFY2024$40K
Community First FoundationFY2024$26K
Bennett Thrasher Foundation INCFY2024$25K
The Independent Charitable Gift FundFY2024$10K
Raymond James Charitable Endowment FundFY2024$5K
The Hackstock Family FoundatonFY2024$5K
Xcel Energy FoundationFY2024$500
Total grants receivedfrom 7 funders$111K
See all 7 funders →
Grants paid · 2 grants · $50K · 2021–2021
International Rett Syndrome FoundationOH · FY2021$40,000
Rett Syndrome Research Trust INCCT · FY2021$10,000

By the numbers

The FY2020 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$165K
Ln 12
Gifts and grantsLn 1h$264K
Money outPt IX
$54K
Ln 25
Programscol B$252
Managementcol C$54K
Owns and owesPt X
$251K
net assets · Ln 32
Cash and savingsLn 1–2$307K
Total assetsLn 16$311K
LiabilitiesLn 26$60K
PeoplePt VI, VII
10
listed · VII A
PaidVII A0
Voting boardVI 1a10
IndependentVI 1b10
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$264K
Fundraising eventsLn 1c$230K
Total revenueLn 12$165K
Assets in detailPt X, end of year
CashLn 1$307K
Cash and savings togetherLn 1–2$307K
Land, buildings, equipmentLn 10c$0
Other assetsLn 15$80
Total assetsLn 16$311K
LiabilitiesLn 26$60K
Net assetsLn 32$251K
OperationsPt I, VI
EmployeesI 50
VolunteersI 616
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$195K$307K
Land, buildings, equipmentLn 10c$0$0
Total assetsLn 16$213K$311K
LiabilitiesLn 26$73K$60K
Net assetsLn 32$139K$251K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Office expensesLn 13$1K$1K
InsuranceLn 23$612$612
Other expenses (24a–d)Ln 24$51K$51K
All other expensesLn 24e$1K$252$1K
Total functional expensesLn 25$54K$252$54K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 LatestFiled with the IRS Nov 17, 2025 $367K$183K$184K$784K 990 PDF
FY2023Filed with the IRS Sep 15, 2024 $420K$92K$328K$601K 990 PDF
FY2022Filed with the IRS Nov 15, 2023 $226K$425K−$199K$273K 990 PDF
FY2021Filed with the IRS Nov 15, 2022 $323K$102K$222K$472K 990 PDF
FY2020 ViewingFiled with the IRS Nov 15, 2021 $165K$54K$111K$251K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $165,406 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $250,190$263,703
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year −$114,156−$98,297
I-12 Total revenuePrior year $136,034$165,406
I-13 Grants and similar amounts paidPrior year $202,756$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $48,021$53,911
I-18 Total expensesPrior year $250,777$53,911
I-19 Revenue less expensesPrior year −$114,743$111,495
Part VI · Governance 10 of 10 board members independent, 3 to look at
VI-1a Voting members of the governing body10
VI-1b Independent voting members10
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $165,406 across 5 lines filed
VIII-1c Fundraising events$230,219
VIII-1f All other contributions, gifts and grants$33,484
VIII-1h Total contributions, gifts and grants$263,703
VIII-8 Net income from fundraising eventsExcluded from tax −$98,297−$98,297
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax −$98,297$165,406
Part IX · Statement of functional expenses $53,911 across 4 lines filed
IX-13 Office expensesManagement $1,071$1,071
IX-23 InsuranceManagement $612$612
IX-24 Other expenses (24a–d)Management $50,935$50,935
IX-24e All other expensesPrograms $252 · Management $1,041$1,293
IX-25 Total functional expensesPrograms $252 · Management $53,659 · Fundraising $0$53,911
Part X · Balance sheet $310,678 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $194,901$307,086
X-9 Prepaid expenses and deferred chargesStart of year $17,835$3,512
X-10c Land, buildings and equipment, netStart of year $0$0
X-15 Other assetsStart of year $80$80
X-16 Total assetsStart of year $212,816$310,678
X-17 Accounts payable and accrued expensesStart of year $2,061$1,538
X-19 Deferred revenueStart of year $71,310$58,200
X-26 Total liabilitiesStart of year $73,371$59,738
X-27 Net assets without donor restrictionsStart of year $139,445$250,940
X-32 Total net assets or fund balancesStart of year $139,445$250,940
X-33 Total liabilities and net assetsStart of year $212,816$310,678
Part XI · Reconciliation of net assets $250,940 net assets at year end
XI-1 Total revenue$165,406
XI-2 Total expenses$53,911
XI-3 Revenue less expenses$111,495
XI-4 Net assets at start of year$139,445
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$250,940

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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