Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2023. IRS ruling in Jun 1985.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
39 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
13 people listed on the 990; $76K paid to officers and key staff.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2022 | FY2021 | FY2020 |
|---|---|---|---|
| Anne Sweeney | $83,845 | $44,756 | — |
| Lindsay De Santis | — | $39,452 | $76,449 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports scleroderma patients and families with education, emotional aid, and research funding.
Questions for Scleroderma Foundation New England INC
Your first name shows with your question. Scleroderma Foundation New England INC answers here, for everyone.
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Provide counseling to patients and family members with scleroderma. Additionally the organization donates funds to the national scleroderma foundation to fund research.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $239K | $209K |
| InvestmentsLn 11–13 | $587K | $615K |
| Land, buildings, equipmentLn 10c | $1K | $2K |
| Total assetsLn 16 | $838K | $842K |
| LiabilitiesLn 26 | $109K | $98K |
| Net assetsLn 32 | $729K | $744K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $20K | $20K | ||
| Pay of current officers, directors and key staffLn 5 | $78K | $33K | $19K | $26K |
| Pay of disqualified personsLn 6 | $9K | $4K | $2K | $3K |
| Pension plan contributionsLn 8 | $2K | $803 | $478 | $631 |
| Other employee benefitsLn 9 | $3K | $1K | $853 | $1K |
| Payroll taxesLn 10 | $8K | $4K | $2K | $3K |
| Accounting feesLn 11c | $8K | $0 | $8K | $0 |
| Investment management feesLn 11f | $4K | $0 | $4K | $0 |
| Office expensesLn 13 | $11K | $5K | $3K | $4K |
| OccupancyLn 16 | $16K | $7K | $4K | $5K |
| Conferences, conventions and meetingsLn 19 | $2K | $97 | $1K | $0 |
| Payments to affiliatesLn 21 | $25K | $0 | $25K | $0 |
| Depreciation, depletion and amortizationLn 22 | $957 | $0 | $957 | $0 |
| Other expenses (24a–d)Ln 24 | $6K | $2K | $1K | $2K |
| Total functional expensesLn 25 | $193K | $76K | $72K | $45K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2023 Latest | $17K | $11K | $6K | $0 | 990 PDF |
| FY2022 | $217K | $163K | $53K | $853K | 990 PDF |
| FY2021 | $295K | $183K | $113K | $892K | 990 PDF |
| FY2020 Viewing | $172K | $193K | −$21K | $744K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $171,878 revenue, 12 lines filed
Part VI · Governance 12 of 12 board members independent, no flags
Part VIII · Statement of revenue $171,878 across 9 lines filed
Part IX · Statement of functional expenses $193,132 across 14 lines filed
Part X · Balance sheet $842,101 assets, 15 lines filed
Part XI · Reconciliation of net assets $743,616 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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