Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2005.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
55 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
15 people listed on the 990; $47K paid to officers and key staff.
Susan Faitos’s $68K as Executive Director is at the 52nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Susan Faitos | $68,480 | $64,080 | $56,280 | $48,739 | $44,571 | $38,784 |
| Trista Heileman | — | — | — | — | — | $9,553 |
| Ilona Pomeroy | — | — | — | $6,959 | — | — |
| Trista Heilman | — | — | — | — | $2,858 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Xlh Network INC executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Promotes awareness and education about XLH for families and medical professionals.
Questions for Xlh Network INC
Your first name shows with your question. Xlh Network INC answers here, for everyone.
Promoting XLH awareness and education for affected families, medical professionals, and the community at large.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $264K | $430K |
| Total assetsLn 16 | $264K | $430K |
| LiabilitiesLn 26 | $0 | $11K |
| Net assetsLn 32 | $264K | $418K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $47K | $34K | $13K | |
| Other salaries and wagesLn 7 | $3K | $2K | $906 | |
| Payroll taxesLn 10 | $4K | $3K | $1K | |
| Accounting feesLn 11c | $10K | $10K | ||
| Office expensesLn 13 | $7K | $468 | $7K | |
| Information technologyLn 14 | $652 | $179 | $473 | |
| InsuranceLn 23 | $1K | $590 | $597 | |
| Other expenses (24a–d)Ln 24 | $18K | $12K | $6K | |
| All other expensesLn 24e | $5K | $1K | $4K | |
| Total functional expensesLn 25 | $97K | $54K | $43K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 LatestFiled with the IRS Feb 27, 2026 | $381K | $404K | −$23K | $347K | 990 PDF |
| FY2024Filed with the IRS Apr 15, 2025 | $262K | $365K | −$103K | $370K | 990 PDF |
| FY2023Filed with the IRS Oct 15, 2024 | $402K | $316K | $86K | $473K | 990 PDF |
| FY2022Filed with the IRS Nov 8, 2023 | $192K | $223K | −$31K | $387K | 990 PDF |
| FY2021 ViewingFiled with the IRS Oct 3, 2022 | $251K | $97K | $154K | $418K | 990 PDF |
| FY2020Filed with the IRS Jun 11, 2021 | $221K | $112K | $109K | $264K | 990 PDF |
Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $251,112 revenue, 12 lines filed
Part VI · Governance 13 of 13 board members independent, 3 to look at
Part VIII · Statement of revenue $251,112 across 5 lines filed
Part IX · Statement of functional expenses $96,950 across 9 lines filed
Part X · Balance sheet $429,578 assets, 8 lines filed
Part XI · Reconciliation of net assets $418,326 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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