Epilepsy-Pralid INC FY2021 filing

Tax-deductible

Rochester, NY501(c)(3)Since 1992Human ServicesEIN 16-1422825Revenue $29.7M in FY2021

On file with the IRSepiny.org1650 South Avenue, 14620-3927 · Rochester, NYTax-exempt since Apr 1993Publicly supported charity — 170(b)(1)(A)(vi)

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To be a successful partner for all individuals with developmental or acquired brain conditions as they strive to remove barriers to their personal fulfillments.

501(c)(3) charity; gifts are tax-deductible.
92¢ of each $1 spent went to programs.
$584K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2021 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $2.7M a year · 7% of revenue · last 5 filings
Looks good: a surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
92%
of spending
Looks good: 92% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$584K
to officers and key staff · 2% of spending
Looks good: pay to officers and key staff is 2% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
3 mo
of spending, in cash
Fine: 2.7 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $71K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$10.3M
63% of total assets
Fine: liabilities are 63% of assets; 50% to 65%.
Pt X · Ln 26
Independent board members
16
of 16 voting members
Looks good: 16 of 16 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$29.7M
+5% vs prior year
Spent
$29.1M
To programs
92%
Net assets
$6.0M
By yearFY2020–FY2024
Revenue
$29.7M
FY2021▲ +5%
Tap a bar for its year
Revenue by fiscal year
FY2020$28.3M
FY2021$29.7M
FY2022$42.1M
FY2023$40.0M
FY2024$54.2M
Expenses
$29.1M
FY2021▲ +7%
Tap a bar for its year
Expenses by fiscal year
FY2020$27.3M
FY2021$29.1M
FY2022$37.2M
FY2023$39.1M
FY2024$47.8M
Net assets
$6.0M
FY2021▲ +12%
Tap a bar for its year
Net assets by fiscal year
FY2020$5.3M
FY2021$6.0M
FY2022$10.5M
FY2023$11.9M
FY2024$18.6M

From the FY2021 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 1993.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

92 cents of each dollar spent went to programs.

Program services 92% · $26.8M Management & general 7% · $2.1M Fundraising 1% · $292K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

20 people listed on the 990; $584K paid to officers and key staff.

Part VII, Section A · reportable compensation
President
$215,995Pt VII · Sec A
$140,991Pt VII · Sec A
$126,417Pt VII · Sec A
VP Advancement
$100,596Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Jeff Sinsebox’s $259K as President is at the 66th percentile of top reported officer pay among 3122 $10–100M human services nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Jeff Sinsebox$259,075$274,767$258,646$215,995$213,060
Joseph Abbott$164,539$162,163$150,811$140,991$140,618
Kimberli Johnston$163,588$151,801$137,454$126,417$130,177
Esther Neal$145,178$135,623$124,018——
Devon Tucker——$128,167——
Carl-Marie Jean Joseph——$127,248——
Lorena Delancey$125,307$122,789$109,154$100,596—
Yvette Hansen$104,937————

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Epilepsy-Pralid INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Helps people with brain conditions overcome barriers to personal fulfillment.

Provided by the organization

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3 programs · $22.9M · in their own filed words · FY2021
01

Self Direction

Gives a person the chance to choose their own services, enabling them to live the life of their choosing. With a self-directed budget, the person can choose the right supports for them including managing the budget dollars, and choosing their own staff. Approximately 800 individuals served in 2021.

$12.7Mprogram expense
02

Residential Services

Enable individuals with developmental disabilities or other neurological disorders to experience the independence and self-esteem that comes with having a home of their own. 68 clients served in 2021.

$8.7Mprogram expense
03

Day Habilitation

Helps individuals achieve personal growth and establish relationships within their community through various social and skill building activities. Approximately 50 individuals served in 2021.

$1.4Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$71K
Grants paid · 5 grants · $483K · 2020–2024
Unitemized GrantFY2024$173,184
Unitemized GrantFY2023$164,627
Unitemized GrantFY2022$45,976
Unitemized GrantFY2021$41,337
Unitemized GrantFY2020$57,902

By the numbers

The FY2021 990, line by line.

1The main four
Money inPt VIII
$29.7M
Ln 12
Fees for servicesLn 2g$28.4M
Gifts and grantsLn 1h$847K
Investment incomeLn 3$365K
Money outPt IX
$29.1M
Ln 25
Programscol B$26.8M
Managementcol C$2.1M
Fundraisingcol D$292K
Owns and owesPt X
$6.0M
net assets · Ln 32
Cash and savingsLn 1–2$6.5M
Total assetsLn 16$16.3M
LiabilitiesLn 26$10.3M
PeoplePt VI, VII
20
listed · VII A
PaidVII A4
Voting boardVI 1a16
IndependentVI 1b16
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$847K
Government grantsLn 1e$504K
Fundraising eventsLn 1c$80K
Fees for servicesLn 2g$28.4M
Investment incomeLn 3$365K
Other incomeLn 4–11$28K
Gains on assetsLn 7$347K
Total revenueLn 12$29.7M
Assets in detailPt X, end of year
CashLn 1$3K
SavingsLn 2$6.5M
Cash and savings togetherLn 1–2$6.5M
InvestmentsLn 11–13$1.5M
Land, buildings, equipmentLn 10c$3.9M
Other assetsLn 15$405K
Total assetsLn 16$16.3M
LiabilitiesLn 26$10.3M
Net assetsLn 32$6.0M
OperationsPt I, VI
EmployeesI 51,165
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY21End FY21
Cash and savingsLn 1–2$3.1M$6.5M
InvestmentsLn 11–13$713K$1.5M
Land, buildings, equipmentLn 10c$3.6M$3.9M
Total assetsLn 16$12.5M$16.3M
LiabilitiesLn 26$7.2M$10.3M
Net assetsLn 32$5.3M$6.0M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic individualsLn 2$41K$41K
Pay of current officers, directors and key staffLn 5$534K$163K$359K$11K
Other salaries and wagesLn 7$17.2M$16.0M$1.0M$169K
Pension plan contributionsLn 8$31K$31K$3
Other employee benefitsLn 9$1.3M$1.2M$40K$14K
Payroll taxesLn 10$1.7M$1.6M$84K$18K
Legal feesLn 11b$41K$41K
Accounting feesLn 11c$67K$67K
Other fees for servicesLn 11g$1.2M$988K$173K$36K
Advertising and promotionLn 12$506$506
Office expensesLn 13$461K$424K$32K$5K
OccupancyLn 16$820K$753K$60K$6K
TravelLn 17$445K$441K$4K$967
Conferences, conventions and meetingsLn 19$15K$13K$2K$275
InterestLn 20$168K$168K
Depreciation, depletion and amortizationLn 22$439K$430K$9K$348
Other expenses (24a–d)Ln 24$4.4M$4.3M$150K$10K
All other expensesLn 24e$269K$244K$2K$22K
Total functional expensesLn 25$29.1M$26.8M$2.1M$292K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $54.2M$47.8M$6.3M$18.6M 990 PDF
FY2023 $40.0M$39.1M$872K$11.9M 990 PDF
FY2022 $42.1M$37.2M$4.9M$10.5M 990 PDF
FY2021 Viewing $29.7M$29.1M$567K$6.0M 990 PDF
FY2020 $28.3M$27.3M$978K$5.3M 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2021 990 (6 parts)
Part I · Summary $29,686,581 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $971,229$846,602
I-9 Program service revenuePrior year $27,096,187$28,446,646
I-10 Investment incomePrior year $13,755$364,926
I-11 Other revenuePrior year $202,430$28,407
I-12 Total revenuePrior year $28,283,601$29,686,581
I-13 Grants and similar amounts paidPrior year $57,902$41,337
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $19,842,231$20,716,688
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $7,405,456$8,362,008
I-18 Total expensesPrior year $27,305,589$29,120,033
I-19 Revenue less expensesPrior year $978,012$566,548
Part VI · Governance 16 of 16 board members independent, no flags
VI-1a Voting members of the governing body16
VI-1b Independent voting members16
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $29,686,581 across 11 lines filed
Lines not itemized here account for $1,457,362 of total revenue; see the IRS return.
VIII-1a Federated campaigns$15,027
VIII-1c Fundraising events$80,435
VIII-1e Government grants$503,620
VIII-1f All other contributions, gifts and grants$247,520
VIII-1h Total contributions, gifts and grants$846,602
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $26,989,284$26,989,284
VIII-3 Investment incomeExcluded from tax $18,138$18,138
VIII-7 Net gain or loss on sales of assetsExcluded from tax $346,788$346,788
VIII-8 Net income from fundraising eventsExcluded from tax −$4,085−$4,085
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $32,492$32,492
VIII-12 Total revenueRelated to mission $28,446,646 · Unrelated business $0 · Excluded from tax $393,333$29,686,581
Part IX · Statement of functional expenses $29,120,033 across 18 lines filed
IX-2 Grants to domestic individualsPrograms $41,337$41,337
IX-5 Pay of current officers, directors and key staffPrograms $162,848 · Management $359,389 · Fundraising $11,329$533,566
IX-7 Other salaries and wagesPrograms $15,968,988 · Management $1,033,276 · Fundraising $168,795$17,171,059
IX-8 Pension plan contributionsPrograms $30,651 · Fundraising $3$30,654
IX-9 Other employee benefitsPrograms $1,230,463 · Management $39,514 · Fundraising $13,537$1,283,514
IX-10 Payroll taxesPrograms $1,596,644 · Management $83,742 · Fundraising $17,509$1,697,895
IX-11b Legal feesManagement $40,786$40,786
IX-11c Accounting feesManagement $67,346$67,346
IX-11g Other fees for servicesPrograms $988,155 · Management $172,666 · Fundraising $35,956$1,196,777
IX-12 Advertising and promotionPrograms $506$506
IX-13 Office expensesPrograms $423,969 · Management $31,693 · Fundraising $4,968$460,630
IX-16 OccupancyPrograms $752,945 · Management $60,170 · Fundraising $6,472$819,587
IX-17 TravelPrograms $440,827 · Management $3,572 · Fundraising $967$445,366
IX-19 Conferences, conventions and meetingsPrograms $13,055 · Management $2,116 · Fundraising $275$15,446
IX-20 InterestPrograms $167,588$167,588
IX-22 Depreciation, depletion and amortizationPrograms $429,541 · Management $9,196 · Fundraising $348$439,085
IX-24 Other expenses (24a–d)Programs $4,279,869 · Management $150,070 · Fundraising $9,718$4,439,657
IX-24e All other expensesPrograms $244,382 · Management $2,439 · Fundraising $22,413$269,234
IX-25 Total functional expensesPrograms $26,771,768 · Management $2,055,975 · Fundraising $292,290$29,120,033
Part X · Balance sheet $16,338,774 assets, 17 lines filed
Asset lines not itemized here account for $73,523; see the IRS return.
X-1 Cash, non-interest-bearingStart of year $2,909$2,622
X-2 Savings and temporary cash investmentsStart of year $3,079,940$6,507,305
X-4 Accounts receivableStart of year $4,432,759$3,722,044
X-9 Prepaid expenses and deferred chargesStart of year $292,680$285,832
X-10c Land, buildings and equipment, netStart of year $3,624,483$3,856,818
X-11 Publicly traded securitiesStart of year $712,538$1,485,933
X-15 Other assetsStart of year $372,340$404,697
X-16 Total assetsStart of year $12,517,649$16,338,774
X-17 Accounts payable and accrued expensesStart of year $3,104,433$2,582,685
X-19 Deferred revenueStart of year $187,143$34,926
X-24 Unsecured notes and loans payable$3,651,421
X-25 Other liabilitiesStart of year $1,386,988$1,914,945
X-26 Total liabilitiesStart of year $7,169,339$10,324,225
X-27 Net assets without donor restrictionsStart of year $5,026,564$5,582,543
X-28 Net assets with donor restrictionsStart of year $321,746$432,006
X-32 Total net assets or fund balancesStart of year $5,348,310$6,014,549
X-33 Total liabilities and net assetsStart of year $12,517,649$16,338,774
Part XI · Reconciliation of net assets $6,014,549 net assets at year end
XI-1 Total revenue$29,686,581
XI-2 Total expenses$29,120,033
XI-3 Revenue less expenses$566,548
XI-4 Net assets at start of year$5,348,310
XI-5 Net unrealized gains (losses) on investments$99,691
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$6,014,549

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

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