Epilepsy-Pralid INC FY2020 filing

Rochester, NY · Public charity (501(c)(3)) · Since 1992 · Human Services

✓ Tax-deductible Latest data FY2020
Revenue
$28.3M
Spent
$27.3M
To programs
93%
Net assets
$5.3M
By yearFY2020–FY2024
Revenue
$28.3M
FY2020
Revenue by fiscal year
FY2020$28.3M
FY2021$29.7M
FY2022$42.1M
FY2023$40.0M
FY2024$54.2M
Expenses
$27.3M
FY2020
Expenses by fiscal year
FY2020$27.3M
FY2021$29.1M
FY2022$37.2M
FY2023$39.1M
FY2024$47.8M
Net assets
$5.3M
FY2020
Net assets by fiscal year
FY2020$5.3M
FY2021$6.0M
FY2022$10.5M
FY2023$11.9M
FY2024$18.6M
You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Form 990 for the fiscal year ending December 2020 (IRS tax year 2020).

Figures match the IRS filing checked 7/9/26 · see original: IRS

Status and standing

Tax-deductible?
Yes
Per the IRS master file.
Can I give now?
No revocation on IRS record
Not on the IRS revocation list.
Filing up to date?
Filed FY2024 (typical filing lag)
Foundation funders?
1 funder — Epilepsy Coalition of New York State INC
$71K in the latest grant year.
Spent on programs?
93% to programs
Form 990 Part IX, latest filing.
Size and trend
$10–100M
Legal name (IRS)Hdr · item CEpilepsy-Pralid INC
EINHdr · item D16-1422825
Exempt statusHdr · item I501(c)(3) · active
Ruling yearIRS BMFApr 1993
Year of formationHdr · item L1992
Latest filingForm 990FY2024 · Form 990
Principal addressHdr · item CRochester, NY
NTEE classificationIRS BMFHuman Services (P82Z)
WebsiteHdr · item Jwww.epiny.org

Where the money goes

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.93 Management & general $0.06 Fundraising $0.01
Program services93%$25.3M
Management & general6%$1.7M
Fundraising1%$275K
Total functional expensesLn 25$27.3M

Financial health

Program efficiency
93%
of spending reaches programs
Operating runway
1.7mo
months of highly liquid reserves at operating expense rate
Surplus margin
+3%
revenue over expenses, this year

Summary of the Filing

Part I · fiscal year 2020 · Form 990
Total assets
$12.5M
FY2020
Total assets by fiscal year
FY2020$12.5M
FY2021$16.3M
FY2022$18.6M
FY2023$21.0M
FY2024$29.0M
Total liabilities
$7.2M
FY2020
Total liabilities by fiscal year
FY2020$7.2M
FY2021$10.3M
FY2022$8.1M
FY2023$9.1M
FY2024$10.4M
Revenue less expensesPt I · Ln 19$978K
Total assetsPt X · Ln 16$12.5M
Program-expense ratioPt IX · col B93%
Voting members of governing bodyPt I · Ln 316
Independent voting membersPt I · Ln 416

Balance Sheet

Part X · end of year
CashLn 1$3.1M
Total assetsLn 16$12.5M
Total liabilitiesLn 26$7.2M
Total net assetsLn 32$5.3M
Months of cash on handcomputed1.4

Statement of Revenue

Part VIII
Program service revenue$27.1M · 96%
Contributions & grants$971K · 3%
Other revenue$202K · 1%
Program service revenue96%$27.1M
Contributions & grants3%$971K
Other revenue1%$202K
Investment income$14K
— government grantsLn 1e$645K
Total revenueLn 12$28.3M

Financial Metrics

Form 990 · FY2020 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $3.8M · Operating expenses/yr $27.3M
1.7 months
Where the money goes
Program services
Program services $25.3M · Total expenses $27.3M
93%
Management & General
Management & general $1.7M · Total expenses $27.3M
6%
Fundraising
Fundraising $275K · Total expenses $27.3M
1%
Cost to raise $1
Fundraising expense $275K · Solicited contributions $326K
$0.84 to raise $1
Where the money comes from
Contribution dependence
Contributions & grants $971K · Total revenue $28.3M
3%
Government reliance
Government grants $645K · Total revenue $28.3M
2%
Earned-income share
Program service revenue $27.1M · Total revenue $28.3M
96%
Investment reliance
Investment income $14K · Total revenue $28.3M
+0.05%
Program self-sufficiency
Program service revenue $27.1M · Total expenses $27.3M
99%
Growth & trend
Revenue growth (YoY)
This year $28.3M · Prior year —
No prior year on file
Net-asset trend (YoY)
End of year $5.3M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $28.3M · Expenses $27.3M
+3%
Liabilities-to-Assets
Total liabilities — · Total assets $12.5M
—
Net-asset ratio
Net assets $5.3M · Total assets $12.5M
43%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $713K · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $12.5M
6%
People & payroll
Highest Reported Total Compensation
Individual Jeff Sinsebox · Reported title PRESIDENT · Highest reported compensation $213K · Total expenses $27.3M
0.8%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $19.8M · Total expenses $27.3M
73%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 93%——
Overhead ratio 6%——
Fundraising cost ratio 28%——
Legal fee ratio 0.03%——
Accounting fee ratio 0.1%——

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Leadership and pay

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
President
$213,060Pt VII · Sec A
$140,618Pt VII · Sec A
CFO, VP of Financial Servi
$130,177Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Jeff Sinsebox’s $259K as President is at the 66th percentile of top reported officer pay among 3122 $10–100M human services nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Jeff Sinsebox$259,075$274,767$258,646$215,995$213,060
Joseph Abbott$164,539$162,163$150,811$140,991$140,618
Kimberli Johnston$163,588$151,801$137,454$126,417$130,177
Esther Neal$145,178$135,623$124,018——
Devon Tucker——$128,167——
Carl-Marie Jean Joseph——$127,248——
Lorena Delancey$125,307$122,789$109,154$100,596—
Yvette Hansen$104,937————

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Epilepsy-Pralid INC executive salaries →

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Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a16
Independent voting membersPt VI · Ln 1b16
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2No

Mission and programs

Helps people with brain conditions overcome barriers to personal fulfillment.

Provided by the organization

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Mission & Programs · Part III

Where the work happens

3 program services account for $20.6M of program spending, described in the organization's own filed words · FY2020.
01

Self Direction

Gives a person the chance to choose their own services, enabling them to live the life of their choosing. With a self-directed budget, the person can choose the right supports for them, including managing the budget dollars, and choosing their own staff. 689 clients served in 2020.

$10.6Mprogram expense
02

Residential Services

Enable individuals with developmental disabilities or other neurological disorders to experience the independence and self-esteem that comes with having a home of their own. 68 clients served in 2020.

$8.6Mprogram expense
03

Day program- helps individuals achieve personal growth and establish relationships within their community trough various social and skill building activities. 52 clients served in 2020.

$1.4Mprogram expense

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Funders

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$71K
Grants paid · 5 grants · $483K · 2020–2024
Unitemized GrantFY2024$173,184
Unitemized GrantFY2023$164,627
Unitemized GrantFY2022$45,976
Unitemized GrantFY2021$41,337
Unitemized GrantFY2020$57,902

Filing history

YearRevenueExpensesChangeFiling
FY2024 Latest $54.2M$47.8M+35% 990 PDF
FY2023 $40.0M$39.1M-5% 990 PDF
FY2022 $42.1M$37.2M+42% 990 PDF
FY2021 $29.7M$29.1M+5% 990 PDF
FY2020 Viewing $28.3M$27.3M 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash

Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2020IRS
Classification, formation year, addressIRS Business Master File
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