Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 1990.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
95 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
6 people listed on the 990.
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Educates families and funds research to spread awareness of galactosemia.
Questions for Galactosemia Foundation
Your first name shows with your question. Galactosemia Foundation answers here, for everyone.
Provided support to individuals with galactosemia and spread awareness by publishing two newsletters worldwide, setting up a nationwide website discussion forum, through telephone support, and a biennial conference.
Form 990 Part III, line 4, FY2022. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this lineHosted the 2022 Bi-Annual conference for those suffering for Galactosemia as well as medical professionals and researchers.
Form 990 Part III, line 4, FY2022. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this lineCo-Hosted a Patient Focused Drug Development with the FDA to advocate for the need for better treatment.
Form 990 Part III, line 4, FY2022. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $489K | $564K |
| InvestmentsLn 11–13 | $0 | $0 |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $489K | $564K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $489K | $564K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $36K | $36K | ||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of officers and key staff (Part IX, line 5)Ln 5 | $0 | |||
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $12K | $12K | ||
| Advertising and promotionLn 12 | $0 | |||
| Office expensesLn 13 | $66K | $66K | ||
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $0 | |||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $184K | $183K | $2K | |
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $0 | |||
| Other expenses (24a–d)Ln 24 | $2K | $2K | ||
| Total functional expensesLn 25 | $301K | $285K | $14K | $2K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Nov 17, 2025 | $386K | $351K | $35K | $819K | 990 PDF |
| FY2023Filed with the IRS Nov 11, 2024 | $477K | $258K | $219K | $782K | 990 PDF |
| FY2022 ViewingFiled with the IRS Nov 15, 2023 | $377K | $301K | $76K | $564K | 990 PDF |
| FY2021Filed with the IRS Nov 15, 2022 | $230K | $182K | $48K | $489K | 990 PDF |
| FY2020Filed with the IRS Nov 5, 2021 | $229K | $88K | $141K | $441K | 990 PDF |
Schedules filed Part IV
See the full FY2022 990
Part I · Summary $376,578 revenue, 12 lines filed
Part VI · Governance 6 of 6 board members independent, 3 to look at
Part VIII · Statement of revenue $376,578 across 9 lines filed
Part IX · Statement of functional expenses $301,012 across 30 lines filed
Part X · Balance sheet $564,223 assets, 30 lines filed
Part XI · Reconciliation of net assets $564,223 net assets at year end
Form 990 e-file FY2022 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File
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