philanthropy.org | 990 Resource | FAQ Verify your organization
Sign in

Galactosemia Foundation

Tax-deductible

Albany, NY501(c)(3)Mental Health EIN 13-3349708Revenue $386K in FY2024Latest return filed Nov 17, 2025

On file with the IRSgalactosemia.orgAlbany, NYTax-exempt since Aug 1990Publicly supported charity — 170(b)(1)(A)(vi)

Claim this org

(tell your story, add context, and more) Claim it free, then get the verified mark for $100 a year.

How does your 990 look to donors? Take the 10-Question Audit

To spread awareness of Galactosemia; to provide support for parents of children with Galactosemia through education and funding research.

Form 990 Part I, line 1, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this line
501(c)(3) charity; gifts are tax-deductible.
94¢ of each $1 spent went to programs.
Run by 12 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
The IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
The latest return is for FY2024, 2 tax years back.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $104K a year · 31% of revenue · last 5 filings
A surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
94%
of spending
94% of spending went to programs.
Pt IX · Ln 25 · col B
Cash reserves
27.9 mo
of spending, in cash
27.9 months of spending in cash.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $8K
2 funders name it on their filings.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Liabilities are 0% of assets.
Pt X · Ln 26
Independent board members
9
of 9 voting members
9 of 9 voting members are independent.
Pt VI · Ln 1a–1b
In line with peersDifferent from peersFar from peersNo peer rangeNo data yetTap a box for the reason.
Revenue
$386K
-19% vs prior year
Spent
$351K
To programs
94%
Net assets
$819K
By yearFY2020–FY2024
Revenue
$386K
FY2024▼ -19%
Tap a bar for its year
Revenue by fiscal year
FY2020$229K
FY2021$230K
FY2022$377K
FY2023$477K
FY2024$386K
Expenses
$351K
FY2024▲ +36%
Tap a bar for its year
Expenses by fiscal year
FY2020$88K
FY2021$182K
FY2022$301K
FY2023$258K
FY2024$351K
Net assets
$819K
FY2024▲ +5%
Tap a bar for its year
Net assets by fiscal year
FY2020$441K
FY2021$489K
FY2022$564K
FY2023$782K
FY2024$819K

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

Give Follow Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 1990.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

94 cents of each dollar spent went to programs.

Program services 94% · $330K Management & general 6% · $21K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

9 people listed on the 990.

Part VII, Section A · reportable compensation
Nicole Casale
President
$0Pt VII · Sec A
$0Pt VII · Sec A
Mary Leimbach
Secretary
$0Pt VII · Sec A
Brittany Cudzilo
Vice President
$0Pt VII · Sec A
Jodi Solari
Communications Lead
$0Pt VII · Sec A
Keith Topper
Member at Large
$0Pt VII · Sec A
Kelly Foley
Member at Large
$0Pt VII · Sec A
Gillain Sapia
Member at Large
$0Pt VII · Sec A
See Galactosemia Foundation executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Educates families and funds research to spread awareness of galactosemia.

Questions for Galactosemia Foundation

Tap to ask. Galactosemia Foundation sees how many people are interested.

Your first name shows with your question. Galactosemia Foundation answers here, for everyone.

3 programs · $330K · in their own filed words · FY2024
01

Provided support to individuals with galactosemia and spread awareness by publishing two newsletters worldwide, setting up a nationwide website discussion forum, through telephone support, and a biennial conference.

Form 990 Part III, line 4, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this line
$210Kprogram expense
02

Funding research grants to medical PROFESSIONAL/RESEARCH hospitals.

Form 990 Part III, line 4, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this line
$89Kprogram expense
03

Hosted a bi-annual conference for those suffering for galactosemia as well as medical professionals and researchers.

Form 990 Part III, line 4, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 13-3349708) · Dispute this line
$31Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
American Online Giving Foundation INCFY2024$8K
Gordon E and Betty I Moore FoundationFY2024$100
Total grants receivedfrom 2 funders$8K
Grants paid · 6 grants · $238K · 2021–2024
American Institute of Biological Sciences INCVA · FY2024$89,329
American Institute of Biological Sciences INCVA · FY2023$19,837
University of UtahUT · FY2022$36,153
Emory UniversityGA · FY2021$50,000
University of UtahUT · FY2021$36,153
American Institute of Biological Sciences INCVA · FY2021$6,389

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$386K
Ln 12
Gifts and grantsLn 1h$389K
Fees for servicesLn 2g$7K
Investment incomeLn 3$8
Money outPt IX
$351K
Ln 25
Programscol B$330K
Managementcol C$21K
Owns and owesPt X
$819K
net assets · Ln 32
Cash and savingsLn 1–2$815K
Total assetsLn 16$819K
LiabilitiesLn 26$0
PeoplePt VI, VII
9
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$389K
Fundraising eventsLn 1c$31K
Fees for servicesLn 2g$7K
Investment incomeLn 3$8
Total revenueLn 12$386K
Assets in detailPt X, end of year
CashLn 1$765K
SavingsLn 2$51K
Cash and savings togetherLn 1–2$815K
Prepaid expenses and deferred chargesLn 9$4K
Total assetsLn 16$819K
LiabilitiesLn 26$0
Net assetsLn 32$819K
OperationsPt I, VI
EmployeesI 50
VolunteersI 612
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$782K$815K
Total assetsLn 16$782K$819K
LiabilitiesLn 26$0$0
Net assetsLn 32$782K$819K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$89K$89K
Other fees for servicesLn 11g$3K$3K
Advertising and promotionLn 12$50K$50K
Office expensesLn 13$17K$17K
Conferences, conventions and meetingsLn 19$174K$174K
Other expenses (24a–d)Ln 24$17K$17K
Total functional expensesLn 25$351K$330K$21K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest ViewingFiled with the IRS Nov 17, 2025 $386K$351K$35K$819K 990 PDF
FY2023Filed with the IRS Nov 11, 2024 $477K$258K$219K$782K 990 PDF
FY2022Filed with the IRS Nov 15, 2023 $377K$301K$76K$564K 990 PDF
FY2021Filed with the IRS Nov 15, 2022 $230K$182K$48K$489K 990 PDF
FY2020Filed with the IRS Nov 5, 2021 $229K$88K$141K$441K 990 PDF

Schedules filed Part IV

A · Public support I · Grants O · Explanations
See the full FY2024 990
Part I · Summary $385,642 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $488,299$388,753
I-9 Program service revenuePrior year $1,336$6,533
I-10 Investment incomePrior year $104$8
I-11 Other revenuePrior year −$12,363−$9,652
I-12 Total revenuePrior year $477,376$385,642
I-13 Grants and similar amounts paidPrior year $19,837$89,329
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $258,143$261,527
I-18 Total expensesPrior year $277,980$350,856
I-19 Revenue less expensesPrior year $199,396$34,786
Part VI · Governance 9 of 9 board members independent, 3 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $385,642 across 7 lines filed
VIII-1c Fundraising events$31,084
VIII-1f All other contributions, gifts and grants$357,669
VIII-1h Total contributions, gifts and grants$388,753
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $6,533$6,533
VIII-3 Investment incomeExcluded from tax $8$8
VIII-8 Net income from fundraising eventsExcluded from tax −$9,652−$9,652
VIII-12 Total revenueRelated to mission $6,533 · Unrelated business $0 · Excluded from tax −$9,644$385,642
Part IX · Statement of functional expenses $350,856 across 6 lines filed
IX-1 Grants to domestic organizationsPrograms $89,329$89,329
IX-11g Other fees for servicesManagement $3,480$3,480
IX-12 Advertising and promotionPrograms $50,000$50,000
IX-13 Office expensesPrograms $16,866$16,866
IX-19 Conferences, conventions and meetingsPrograms $173,929$173,929
IX-24 Other expenses (24a–d)Management $17,252$17,252
IX-25 Total functional expensesPrograms $330,124 · Management $20,732 · Fundraising $0$350,856
Part X · Balance sheet $818,648 assets, 9 lines filed
X-1 Cash, non-interest-bearingStart of year $508,949$764,607
X-2 Savings and temporary cash investmentsStart of year $272,797$50,516
X-9 Prepaid expenses and deferred charges$3,525
X-16 Total assetsStart of year $781,746$818,648
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $708,949$768,132
X-28 Net assets with donor restrictionsStart of year $72,797$50,516
X-32 Total net assets or fund balancesStart of year $781,746$818,648
X-33 Total liabilities and net assetsStart of year $781,746$818,648
Part XI · Reconciliation of net assets $818,648 net assets at year end
XI-1 Total revenue$385,642
XI-2 Total expenses$350,856
XI-3 Revenue less expenses$34,786
XI-4 Net assets at start of year$781,746
XI-8 Prior period adjustments$2,116
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$818,648

Form 990 e-file FY2024 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File

Similar organizations you could support · Compare with another nonprofit

The names, titles, and financial information shown on this page are reproduced from IRS Form 990 filings, which are public records. More

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown. A filing can only be corrected by the organization filing an amended return with the IRS; the corrected information appears here at our next update.

We publish only information contained in the public IRS filing, and less than the filing contains. Our pages do not display home addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, contact the filing organization or the IRS directly.

All figures come from public IRS Form 990 filings. Comparisons are computed from the filing against similar orgs. They are not a rating.

Featured nonprofit jobs

All nonprofit jobs → · Hiring? Post a job →