Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jul 1985.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
27 people listed on the 990; $598K paid to officers and key staff.
Elena Sturman’s $422K as President & is at the 98th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 5 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Elena Sturman | $421,776 | $383,853 | $350,733 | $376,001 | $347,688 | $324,799 |
| Elena Cly Fowkes | $143,934 | $137,633 | $132,623 | — | — | — |
| Cly Fowkes | — | — | — | $131,902 | $129,282 | $134,048 |
| Andrea Steele | $120,294 | $103,172 | — | — | — | — |
| Nilda Richards | — | — | $114,690 | $98,171 | $95,333 | $99,307 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Eradicating glaucoma, the leading cause of preventable blindness.
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See Schedule Omedical Research
1) genetic predisposition and ophthalmic OUTCOMES;2) optic nerve REGENERATION;3) using artificial intelligence to reveal blood pressure's role in glaucoma PROGRESSION;4) ee-purposing an "old" drug for a new indication: elucidating the peripheral and central effects of glucagon-like peptide 1 receptor agonists to treat glaucoma; 5) search…
See Schedule Oeducation
1) multiple webinars: what do cold hands have to do with glaucoma? The promise of optic nerve regeneration;the body-eye relationship how to save the sight of patients with glaucoma while minimizing adverse reaction from eye drops;insights into glaucoma & women's health: exploring the impact of menopause and visual function;glaucoma and…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $3.4M | $4.7M |
| InvestmentsLn 11–13 | $8.6M | $8.7M |
| Land, buildings, equipmentLn 10c | $4K | $2K |
| Total assetsLn 16 | $12.3M | $13.9M |
| LiabilitiesLn 26 | $554K | $710K |
| Net assetsLn 32 | $11.8M | $13.2M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $650K | $650K | ||
| Grants and assistance to foreign recipientsLn 3 | $350K | $350K | ||
| Pay of current officers, directors and key staffLn 5 | $514K | $360K | $60K | $95K |
| Other salaries and wagesLn 7 | $309K | $261K | $23K | $25K |
| Pension plan contributionsLn 8 | $9K | $8K | $688 | $754 |
| Other employee benefitsLn 9 | $51K | $41K | $2K | $8K |
| Payroll taxesLn 10 | $49K | $37K | $5K | $7K |
| Professional fundraising feesLn 11e | $31K | $31K | ||
| Investment management feesLn 11f | $124K | $124K | ||
| Other fees for servicesLn 11g | $86K | $31K | $55K | |
| Office expensesLn 13 | $42K | $32K | $4K | $6K |
| OccupancyLn 16 | $94K | $71K | $9K | $14K |
| TravelLn 17 | $32K | $32K | ||
| Conferences, conventions and meetingsLn 19 | $156K | $156K | ||
| Depreciation, depletion and amortizationLn 22 | $2K | $2K | $206 | $312 |
| InsuranceLn 23 | $8K | $6K | $731 | $1K |
| Other expenses (24a–d)Ln 24 | $371K | $254K | $13K | $104K |
| Total functional expensesLn 25 | $2.9M | $2.3M | $296K | $292K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $6.0M | $3.1M | $2.9M | $19.3M | 990 PDF |
| FY2024 | $4.5M | $3.1M | $1.5M | $16.2M | 990 PDF |
| FY2023 Viewing | $4.8M | $2.9M | $1.9M | $13.2M | 990 PDF |
| FY2022 | $2.9M | $2.2M | $728K | $11.8M | 990 PDF |
| FY2021 | $4.3M | $2.5M | $1.8M | $12.4M | 990 PDF |
| FY2020 | $2.4M | $1.8M | $608K | $9.5M | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $4,763,086 revenue, 12 lines filed
Part VI · Governance 24 of 24 board members independent, no flags
Part VIII · Statement of revenue $4,763,086 across 5 lines filed
Part IX · Statement of functional expenses $2,878,347 across 17 lines filed
Part X · Balance sheet $13,946,604 assets, 17 lines filed
Part XI · Reconciliation of net assets $13,236,631 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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