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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Foundation for Prader Willi Research Supports RESEARCH to advance the understanding and treatment of PRADER-WILLI syndrome 31-1763110 · FY2024 Covina, CA $6.2M $6.1M $8.9M 87% 6% 11 501(c)(3)
Jett Foundation INC JETT FOUNDATION empowers people and families impacted by duchenne muscular dystrophy through the development… 04-3563445 · FY2024 Norwell, MA $5.1M $3.4M $10.4M 74% 15% 14 501(c)(3)
Fshd Society Find treatments and a cure for FSHD while empowering our families 52-1762747 · FY2024 Randolph, MA $4.9M $5.5M $5.6M 78% 12% 23 501(c)(3)
Les Turner Amyotrophic Lateral Sclerosis Foundation To find a cure for als, provide patient and family support and increase public awareness. 36-2916466 · FY2024 Skokie, IL $4.5M $3.3M $4.4M 80% 13% 20 501(c)(3)
Myotonic Dystrophy Foundation INC To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic… 20-5014628 · FY2024 Oakland, CA $3.7M $3.8M $5.8M 88% 7% 14 501(c)(3)
Cure Jm Foundation To find better treatments and a CURE for juvenile myositis and improve the lives of families. 35-2222262 · FY2023 Leesburg, VA $2.3M $2.1M $2.4M 80% 15% 11 501(c)(3)
The Foundation for Peripheral Neuropathy The mission of the Foundation is to dramatically improve the lives of people living with peripheral… 26-1195248 · FY2024 Glenview, IL $1.9M $1.3M $3.5M 64% 20% 9 501(c)(3)
Spastic Paraplegia Foundation INC The FOUNDATION is dedicated to finding a cure and providing information and support services for two closely… 04-3594491 · FY2024 O Fallon, MO $1.7M $899.6K $3.1M 88% 4% — 501(c)(3)
Inadcure Foundation INC Research towards possible treatment and cure for infantile neuroaxonal dystrophy 81-4763783 · FY2025 Fairfield, NJ $1.6M $660.2K $1.5M 90% 3% — 501(c)(3)
Cancer Research Foundation - Funding CANCER RESEARCH to find a cure 81-2771469 · FY2024 Chicago, IL $1.5M $1.7M $1.3M 89% 6% 4 501(c)(3)
Lmsarcoma Direct Research Foundation To help find a cure for Leiomyosarcoma by creating a relationship with researchers in which we help fund… 87-0763851 · FY2024 Tulsa, OK $1.5M $330.4K $2.1M 98% 0% — 501(c)(3)
Cancer Research Foundation Funding CANCER RESEARCH to find a cure 36-2385213 · FY2024 Chicago, IL $1.2M $1.6M $10.2M 88% 4% 1 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024 Palo Alto, CA $1.0M $1.2M $3.4M 90% 7% — 501(c)(3)
Burning Limb Foundation We provide financial assistance for those with rare disease. 81-4780623 · FY2024 Frisco, TX $802.1K $1.1M $132.6K 100% 0% — 501(c)(3)
Cure Cmd INC Cure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular… 26-2640975 · FY2024 Lakewood, CA $677.2K $442.5K $508.5K 68% 12% 5 501(c)(3)
Coalition to Cure Calpain 3 To fund research to CURE or treat limb-girdle muscular dystrophy type 2a (lgmd2a/r1), a form of… 90-0616879 · FY2024 Westport, CT $646.0K $455.7K $202.5K 90% 1% 1 501(c)(3)
Charleys Fund INC To accelerate the development of life-saving treatments for duchenne muscular dystrophy "dmd" 20-2014968 · FY2024 Gt Barrington, MA $628.5K $492.0K $1.1M 92% 2% 3 501(c)(3)
Childrens Cancer Fund Funding research projects for a cure to childhood cancers. 13-4190313 · FY2024 Thornwood, NY $512.9K $369.7K $816.4K 88% 0% — 501(c)(3)
International Pemphigus Pemphigoid Foundation Medical information, awareness, research, and patient support for an orphan disease. 94-3207871 · FY2025 Roseville, CA $451.2K $480.6K $544.5K 71% 10% 9 501(c)(3)
Bardet Biedl Syndrome Foundation The organization's mission is to build a community of support for individuals and families, provide… 46-3343666 · FY2022 West Chester, PA $372.6K $172.2K $609.1K 100% 0% — 501(c)(3)
United Msd Foundation INC Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase… 81-3669443 · FY2024 Biloxi, MS $330.5K $388.2K $223.9K 67% 14% 8 501(c)(3)
Cure Vcp Disease INC Research (Tools, Collaborations, Models and Convenings) 82-4368871 · FY2024 Warner Robins, GA $318.8K $369.8K $485.3K 75% 14% 2 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Greg Marzolf JR Foundation Fund research to find a cure for Neuromuscular disease 32-0012563 · FY2024 Saint Paul, MN $304.9K $153.4K $472.4K 91% 8% — 501(c)(3)
Curears Funding Mitochondrial Disease Research 86-3568273 · FY2024 Raritan, NJ $283.5K $241.9K $411.4K 90% 5% — 501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024 West Hills, CA $279.2K $229.0K $425.9K 80% 11% 1 501(c)(3)
Cure Multiple Myeloma Corporation To raise funds for medical research for the treatment of muliple MYELOMA. 47-4309020 · FY2024 Novi, MI $250.8K $257.8K $21.2K 73% 27% — 501(c)(3)
Cure Cdkl5 Epilepsy Foundation 99-1303165 · FY2024 New York, NY $192.3K — $178.3K — — — 501(c)(3)
Curenfwithjack Fund research for and educate public about Neurofibromatosis 46-5178351 · FY2024 Alpharetta, GA $179.3K $308.0K $869.4K 72% 22% — 501(c)(3)
Mdds Balance Disorder Foundationinc To fund research to cure the MDDS BALANCE DISORDER. 20-5953110 · FY2024 Audubon, PA $139.3K $264.1K $666.4K 54% 42% — 501(c)(3)
Myasthenia Gravis Foundation of California To find a cure for Myasthenia Gravis by funding cutting edge research and providing services for Myasthenia… 95-4562470 · FY2024 Los Angeles, CA $118.9K $58.4K $1.4M 87% 3% 2 501(c)(3)
Cade R Alpard Foundation for Pediatric Disease 33-1067517 · FY2025 Houston, TX $112.2K — $56.1K — — — 501(c)(3)
Lgmd Awareness Foundation INC 85-1504937 · FY2024 Twin Lakes, WI $110.9K — $98.8K — — — 501(c)(3)
Cure Cystic Fibrosis Miami Foundation 82-3555800 · FY2024 Miami, FL $88.5K — $158.0K — — — 501(c)(3)
Lupus Research Foundation 81-5446248 · FY2024 Ham Lake, MN $78.9K — $66.9K — — — 501(c)(3)
Lgmd2l Foundation 82-5188823 · FY2025 Park Ridge, IL $78.5K — $39.2K — — — 501(c)(3)
Lmsd Foundation 47-1638607 · FY2024 San Diego, CA $74.6K — $17.5K — — — 501(c)(3)
Kurt Peter Foundation Raise funds and make grants for research into a treatment or cure for limb girdle muscular dystrophy type 2c… 27-1310545 · FY2024 Menlo Park, CA $72.7K $63.8K $1.3M 93% 0% — 501(c)(3)
Childrens Gaucher Research Fund RESEARCH FUND to find cure for GAUCHER disease. 94-3326753 · FY2024 Granite Bay, CA $61.1K $17.2K $454.0K 90% 0% — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org