Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2008.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
68 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Who runs it and what they're paid
13 people listed on the 990; $109K paid to officers and key staff.
Rachel Alvarez’s $109K as Executive Director Secretary is at the 75th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Gustavo Dziewczapolski | — | $120,381 | $110,172 | — | — |
| Rachel Alvarez | $108,898 | $100,806 | $95,193 | — | — |
| Robert Sunris | — | — | — | $81,807 | — |
| Rachel Alvaraz | — | — | — | — | $77,942 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Cure Cmd INC executive salaries →Roster right? Fix it in HQ
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research and clinical trials to find treatments and a cure for Congenital Muscular Dystrophies.
Questions for Cure Cmd INC
Your first name shows with your question. Cure Cmd INC answers here, for everyone.
See schedule O
Outreach & Education
While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where they are today through a variety of supportive content and connections that are responsive to the their needs and giving them a prominent voice in determining Cure…
Patient Registry
Cure CMD is the administrator of the Congenital Muscle Disease International Registry CMDIR the largest database of congenital muscle disease CMD affected individuals. Our goal is to achieve global registration of the CMD community and serve as the central hub for up to date information regarding clinical studies and trials expert…
Your program. Update the story
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $539K | $509K |
| InvestmentsLn 11–13 | $0 | $0 |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $546K | $509K |
| LiabilitiesLn 26 | $306K | $34K |
| Net assetsLn 32 | $240K | $475K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | $0 | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $18K | $18K | ||
| Benefits paid to or for membersLn 4 | $0 | $0 | ||
| Pay of current officers, directors and key staffLn 5 | $109K | $60K | $22K | $26K |
| Pay of disqualified personsLn 6 | $0 | $0 | $0 | $0 |
| Other salaries and wagesLn 7 | $186K | $157K | $18K | $11K |
| Pension plan contributionsLn 8 | $0 | $0 | $0 | $0 |
| Other employee benefitsLn 9 | $0 | $0 | $0 | $0 |
| Payroll taxesLn 10 | $0 | $0 | $0 | $0 |
| Management feesLn 11a | $0 | $0 | $0 | $0 |
| Legal feesLn 11b | $0 | $0 | $0 | $0 |
| Accounting feesLn 11c | $27K | $0 | $27K | $0 |
| Lobbying feesLn 11d | $0 | $0 | $0 | $0 |
| Professional fundraising feesLn 11e | $0 | $0 | ||
| Investment management feesLn 11f | $0 | $0 | $0 | $0 |
| Other fees for servicesLn 11g | $20K | $20K | $0 | $0 |
| Advertising and promotionLn 12 | $0 | $0 | $0 | $0 |
| Office expensesLn 13 | $31K | $484 | $15K | $15K |
| Information technologyLn 14 | $38K | $33K | $5K | $0 |
| RoyaltiesLn 15 | $0 | $0 | $0 | $0 |
| OccupancyLn 16 | $0 | $0 | $0 | $0 |
| TravelLn 17 | $11K | $11K | $0 | $0 |
| Travel and entertainment for public officialsLn 18 | $0 | $0 | $0 | $0 |
| Conferences, conventions and meetingsLn 19 | $0 | $0 | $0 | $0 |
| InterestLn 20 | $0 | $0 | $0 | $0 |
| Payments to affiliatesLn 21 | $0 | $0 | $0 | $0 |
| Depreciation, depletion and amortizationLn 22 | $0 | $0 | $0 | $0 |
| InsuranceLn 23 | $3K | $0 | $3K | $0 |
| Other expenses (24a–d)Ln 24 | $0 | $0 | $0 | $0 |
| All other expensesLn 24e | $0 | $0 | $0 | $0 |
| Total functional expensesLn 25 | $442K | $299K | $91K | $53K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $677K | $442K | $235K | $475K | 990 PDF |
| FY2023 | $579K | $611K | −$32K | $240K | 990 PDF |
| FY2022 | $1.1M | $1.5M | −$438K | $272K | 990 PDF |
| FY2021 | $587K | $594K | −$6K | $710K | 990 PDF |
| FY2020 | $780K | $856K | −$76K | $514K | 990 PDF |
Add reports or letters. Open HQ
Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $677,234 revenue, 12 lines filed
Part VI · Governance 12 of 12 board members independent, 3 to look at
Part VIII · Statement of revenue $677,234 across 16 lines filed
Part IX · Statement of functional expenses $442,453 across 31 lines filed
Part X · Balance sheet $508,508 assets, 24 lines filed
Part XI · Reconciliation of net assets $474,715 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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