The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers.

501(c)(3) charity; gifts are tax-deductible.
64¢ of each $1 spent went to programs.
Run by 16 volunteers and 9 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 6
filings with a surplus
Average surplus $333K a year · 24% of revenue · last 6 filings
Fine: a surplus in 5 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
64%
of spending
Worth a look: 64% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$387K
to officers and key staff · 29% of spending
Worth a look: pay to officers and key staff is 29% of spending; over 20%.
Pt VII · Sec A
29 mo
of spending, in cash
Looks good: 28.7 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $5K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$12K
0.3% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
11
of 11 voting members
Looks good: 11 of 11 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$2.6M
+36% vs prior year
Spent
$1.4M
To programs
64%
Net assets
$3.5M
By yearFY2020–FY2025
Revenue
$2.6M
FY2025▲ +36%
Tap a bar for its year
Revenue by fiscal year
FY2020$790K
FY2021$955K
FY2022$1.1M
FY2023$948K
FY2024$1.9M
FY2025$2.6M
Expenses
$1.4M
FY2025▲ +7%
Tap a bar for its year
Expenses by fiscal year
FY2020$660K
FY2021$829K
FY2022$887K
FY2023$1.2M
FY2024$1.3M
FY2025$1.4M
Net assets
$3.5M
FY2025▲ +52%
Tap a bar for its year
Net assets by fiscal year
FY2020$1.7M
FY2021$1.8M
FY2022$2.0M
FY2023$1.7M
FY2024$2.3M
FY2025$3.5M

From the FY2025 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2016.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

64 cents of each dollar spent went to programs.

Program services 64% · $859K Management & general 12% · $156K Fundraising 25% · $337K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

13 people listed on the 990; $387K paid to officers and key staff.

Part VII, Section A · reportable compensation
Executive Director
$162,000Pt VII · Sec A
Director of Development
$123,836Pt VII · Sec A
Marketing & Comms Specialist
$100,892Pt VII · Sec A
Past Treasurer
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
President
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Lindsay Colbert’s $162K as Executive Director is at the 44th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 3 named individuals · Part VII

NameFY2025FY2024FY2023FY2022FY2021FY2020
Lindsay Colbert$162,000$152,356$136,072$137,003$128,017$124,277
Katherine Britton$123,836—————
Jane Bartman$100,892—————

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See The Foundation for Peripheral Neuropathy executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Helps people with Peripheral Neuropathy live much better lives.

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1 program · $859K · in their own filed words · FY2025
01

Grants and research programs to fund collaborative medical research and clinical investigations.

$859Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$5K
Grants paid · 23 grants · $794K · 2020–2024
American Brain FoundationMN · FY2024$225,000
Johns Hopkins UniversityMD · FY2024$24,800
Washington UniversityMO · FY2024$14,400
Johns Hopkins UniversityMD · FY2023$73,825
University of UtahUT · FY2023$17,400
Washington UniversityMO · FY2023$12,000
Johns Hopkins UniversityMD · FY2022$62,400
University of UtahUT · FY2022$20,400
Washington UniversityMO · FY2022$7,600
Johns Hopkins UniversityMD · FY2021$124,400
University of UtahUT · FY2021$17,200
Northwestern UniversityIL · FY2021$9,100
See all 23 grants →

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$2.6M
Ln 12
Gifts and grantsLn 1h$2.5M
Investment incomeLn 3$62K
Money outPt IX
$1.4M
Ln 25
Programscol B$859K
Managementcol C$156K
Fundraisingcol D$337K
Owns and owesPt X
$3.5M
net assets · Ln 32
Cash and savingsLn 1–2$3.2M
Total assetsLn 16$3.5M
LiabilitiesLn 26$12K
PeoplePt VI, VII
13
listed · VII A
PaidVII A3
Voting boardVI 1a11
IndependentVI 1b11
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$2.5M
Investment incomeLn 3$62K
Gains on assetsLn 7−$36
Total revenueLn 12$2.6M
Assets in detailPt X, end of year
CashLn 1$477K
SavingsLn 2$2.8M
Cash and savings togetherLn 1–2$3.2M
Land, buildings, equipmentLn 10c$7K
Total assetsLn 16$3.5M
LiabilitiesLn 26$12K
Net assetsLn 32$3.5M
OperationsPt I, VI
EmployeesI 59
VolunteersI 616
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$628K$3.2M
Land, buildings, equipmentLn 10c$0$7K
Total assetsLn 16$2.3M$3.5M
LiabilitiesLn 26$4K$12K
Net assetsLn 32$2.3M$3.5M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$48K$48K
Grants and assistance to foreign recipientsLn 3$6K$6K
Pay of current officers, directors and key staffLn 5$167K$79K$22K$66K
Other salaries and wagesLn 7$419K$199K$54K$166K
Pension plan contributionsLn 8$7K$3K$1K$3K
Other employee benefitsLn 9$18K$9K$3K$6K
Payroll taxesLn 10$44K$21K$6K$17K
Management feesLn 11a$34K$34K
Legal feesLn 11b$9K$9K
Lobbying feesLn 11d$118K$118K
Other fees for servicesLn 11g$88K$76K$3K$9K
Advertising and promotionLn 12$38K$31K$7K
Office expensesLn 13$15K$4K$1K$9K
Information technologyLn 14$15K$15K
OccupancyLn 16$9K$4K$1K$3K
Conferences, conventions and meetingsLn 19$72K$29K$16K$28K
Depreciation, depletion and amortizationLn 22$2K$719$196$596
InsuranceLn 23$9K$3K$3K$3K
Other expenses (24a–d)Ln 24$234K$228K$2K$4K
All other expensesLn 24e$1K$850$360
Total functional expensesLn 25$1.4M$859K$156K$337K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $2.6M$1.4M$1.2M$3.5M 990 PDF
FY2024 $1.9M$1.3M$618K$2.3M 990 PDF
FY2023 $948K$1.2M−$260K$1.7M 990 PDF
FY2022 $1.1M$887K$175K$2.0M 990 PDF
FY2021 $955K$829K$126K$1.8M 990 PDF
FY2020 $790K$660K$130K$1.7M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $2,561,621 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,797,563$2,499,358
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $79,771$62,263
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $1,877,334$2,561,621
I-13 Grants and similar amounts paidPrior year $90,807$53,707
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $473,128$655,739
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $695,255$643,483
I-18 Total expensesPrior year $1,259,190$1,352,929
I-19 Revenue less expensesPrior year $618,144$1,208,692
Part VI · Governance 11 of 11 board members independent, no flags
VI-1a Voting members of the governing body11
VI-1b Independent voting members11
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $2,561,621 across 5 lines filed
VIII-1f All other contributions, gifts and grants$2,499,358
VIII-1h Total contributions, gifts and grants$2,499,358
VIII-3 Investment incomeExcluded from tax $62,299$62,299
VIII-7 Net gain or loss on sales of assetsExcluded from tax −$36−$36
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $62,263$2,561,621
Part IX · Statement of functional expenses $1,352,929 across 20 lines filed
IX-1 Grants to domestic organizationsPrograms $48,082$48,082
IX-3 Grants and assistance to foreign recipientsPrograms $5,625$5,625
IX-5 Pay of current officers, directors and key staffPrograms $79,366 · Management $21,856 · Fundraising $65,638$166,860
IX-7 Other salaries and wagesPrograms $199,459 · Management $54,290 · Fundraising $165,636$419,385
IX-8 Pension plan contributionsPrograms $2,683 · Management $1,025 · Fundraising $3,269$6,977
IX-9 Other employee benefitsPrograms $9,365 · Management $2,551 · Fundraising $6,420$18,336
IX-10 Payroll taxesPrograms $21,025 · Management $6,169 · Fundraising $16,987$44,181
IX-11a Management feesManagement $34,400$34,400
IX-11b Legal feesManagement $9,240$9,240
IX-11d Lobbying feesPrograms $117,867$117,867
IX-11g Other fees for servicesPrograms $76,491 · Management $2,865 · Fundraising $8,702$88,058
IX-12 Advertising and promotionPrograms $30,731 · Fundraising $7,179$37,910
IX-13 Office expensesPrograms $4,380 · Management $1,122 · Fundraising $9,325$14,827
IX-14 Information technologyFundraising $15,165$15,165
IX-16 OccupancyPrograms $4,053 · Management $1,107 · Fundraising $3,362$8,522
IX-19 Conferences, conventions and meetingsPrograms $28,831 · Management $15,857 · Fundraising $27,753$72,441
IX-22 Depreciation, depletion and amortizationPrograms $719 · Management $196 · Fundraising $596$1,511
IX-23 InsurancePrograms $3,046 · Management $3,082 · Fundraising $2,527$8,655
IX-24 Other expenses (24a–d)Programs $227,764 · Management $1,620 · Fundraising $4,293$233,677
IX-24e All other expensesManagement $850 · Fundraising $360$1,210
IX-25 Total functional expensesPrograms $859,487 · Management $156,230 · Fundraising $337,212$1,352,929
Part X · Balance sheet $3,530,383 assets, 12 lines filed
X-1 Cash, non-interest-bearingStart of year $627,800$476,830
X-2 Savings and temporary cash investments$2,760,948
X-4 Accounts receivableStart of year $6,243$275,891
X-9 Prepaid expenses and deferred chargesStart of year $2,936$9,696
X-10c Land, buildings and equipment, netStart of year $0$7,018
X-16 Total assetsStart of year $2,313,143$3,530,383
X-17 Accounts payable and accrued expensesStart of year $3,659$12,178
X-26 Total liabilitiesStart of year $3,659$12,178
X-27 Net assets without donor restrictionsStart of year $2,243,163$2,925,837
X-28 Net assets with donor restrictionsStart of year $66,321$592,368
X-32 Total net assets or fund balancesStart of year $2,309,484$3,518,205
X-33 Total liabilities and net assetsStart of year $2,313,143$3,530,383
Part XI · Reconciliation of net assets $3,518,205 net assets at year end
XI-1 Total revenue$2,561,621
XI-2 Total expenses$1,352,929
XI-3 Revenue less expenses$1,208,692
XI-4 Net assets at start of year$2,309,484
XI-5 Net unrealized gains (losses) on investments$31
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$3,518,205

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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