Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2004.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
17 people listed on the 990; $345K paid to officers and key staff.
James Minow’s $183K as Executive Di is at the 69th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2020 |
|---|---|---|---|---|---|
| Andrew Heaton PHD | $161,936 | — | — | — | $218,700 |
| James Minow | $183,109 | $176,295 | $175,224 | $143,000 | $165,418 |
| Shannon Malloy | — | $64,531 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Finding better treatments and a cure for juvenile myositis, improving affected families' lives.
Questions for Cure Jm Foundation
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The Organization Directly Supported Research as Follows
(1) 210,629 to childhood arthritis and rheumatology research alliance (carra) (2) 170,000 to medical college of wisconsin (3) 128,797 to duke university (4) 125,000 to the university of california (5) 112,500 to binghamton university state university of new york (6)70,000 to george washington university (7) 65,641 to nucleic acid therapy…
The organization is committed to increasing awareness and education of this rare, incurable autoimmune disease as well as providing a support community for impacted families. These efforts are accomplished throught a variety of methods such as: attendance at medical conferences representing cure JM foundation and its WORK/ACTIVITIES…
The annual national family conference & walk strong to cure JM event was held in various locations across the united states, families attended including grandparents, parents, children, teens, young adults, medical professionals also participated in a medical conference to share the latest advancements in JM research and treatments.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $289K | $308K |
| InvestmentsLn 11–13 | $1.7M | $1.7M |
| Total assetsLn 16 | $2.6M | $2.4M |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $2.6M | $2.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $957K | $957K | ||
| Grants and assistance to foreign recipientsLn 3 | $166K | $166K | ||
| Pay of current officers, directors and key staffLn 5 | $278K | $197K | $8K | $72K |
| Other salaries and wagesLn 7 | $563K | $400K | $17K | $146K |
| Payroll taxesLn 10 | $74K | $52K | $2K | $19K |
| Legal feesLn 11b | $3K | $3K | ||
| Accounting feesLn 11c | $79K | $79K | ||
| Other fees for servicesLn 11g | $63K | $39K | $24K | |
| Advertising and promotionLn 12 | $514 | $206 | $308 | |
| Office expensesLn 13 | $29K | $10K | $2K | $17K |
| Information technologyLn 14 | $4K | $3K | $539 | |
| OccupancyLn 16 | $1K | $1K | ||
| TravelLn 17 | $4K | $4K | $324 | |
| Conferences, conventions and meetingsLn 19 | $214K | $214K | ||
| InterestLn 20 | $384 | $384 | ||
| InsuranceLn 23 | $6K | $5K | $188 | $878 |
| Other expenses (24a–d)Ln 24 | $220K | $84K | $7K | $129K |
| Total functional expensesLn 25 | $2.7M | $2.1M | $120K | $409K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $2.5M | $2.7M | −$174K | $2.4M | 990 PDF |
| FY2024 | $2.3M | $2.1M | $256K | $2.6M | 990 PDF |
| FY2023 | $2.2M | $2.1M | $189K | $2.3M | 990 PDF |
| FY2022 | $1.8M | $1.8M | $63K | $2.1M | 990 PDF |
| FY2021 | $2.2M | $2.0M | $244K | $2.0M | 990 PDF |
| FY2020 | $1.9M | $2.0M | −$57K | $1.8M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $2,486,838 revenue, 12 lines filed
Part VI · Governance 16 of 16 board members independent, 1 to look at
Part VIII · Statement of revenue $2,486,838 across 5 lines filed
Part IX · Statement of functional expenses $2,661,142 across 17 lines filed
Part X · Balance sheet $2,406,778 assets, 9 lines filed
Part XI · Reconciliation of net assets $2,406,778 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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