United Msd Foundation INC

Tax-deductible

Biloxi, MS501(c)(3)Since 2016Diseases & DisordersEIN 81-3669443Revenue $321K in FY2025

On file with the IRScuremsd.orgPo Box 806, 39533-0806 · Biloxi, MSTax-exempt since Dec 2016Publicly supported — 509(a)(2)

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Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase deficiency (Msd)

501(c)(3) charity; gifts are tax-deductible.
63¢ of each $1 spent went to programs.
Run by 125 volunteers and 7 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 6
filings with a surplus
Average deficit $32K a year · 7% of revenue · last 6 filings
Worth a look: a surplus in 3 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
63%
of spending
Worth a look: 63% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
Cash reserves
8 mo
of spending, in cash
Looks good: 8.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
4
named funders · $84K
Looks good: 4 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
15
of 15 voting members
Looks good: 15 of 15 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$321K
-3% vs prior year
Spent
$312K
To programs
63%
Net assets
$232K
By yearFY2020–FY2025
Revenue
$321K
FY2025▼ -3%
Tap a bar for its year
Revenue by fiscal year
FY2020$354K
FY2021$563K
FY2022$720K
FY2023$305K
FY2024$331K
FY2025$321K
Expenses
$312K
FY2025▼ -20%
Tap a bar for its year
Expenses by fiscal year
FY2020$378K
FY2021$423K
FY2022$646K
FY2023$638K
FY2024$388K
FY2025$312K
Net assets
$232K
FY2025▲ +4%
Tap a bar for its year
Net assets by fiscal year
FY2020$399K
FY2021$540K
FY2022$614K
FY2023$281K
FY2024$223K
FY2025$232K

From the FY2025 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 2016.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

63 cents of each dollar spent went to programs.

Program services 63% · $196K Management & general 22% · $70K Fundraising 15% · $46K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990.

Part VII, Section A · reportable compensation
Past President
$0Pt VII · Sec A
President
$0Pt VII · Sec A
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
See United Msd Foundation INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund research and raise awareness to cure Multiple Sulfatase Deficiency.

Questions for United Msd Foundation INC

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Provided by the organization

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1 program · $196K · in their own filed words · FY2025
01

Generating funds to provide awareness and reasearch a cure for MSD

$196Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 4 funders →
Grants paid · 8 grants · $935K · 2020–2025
Children's Hospital of PhiladelphiaFY2025$20,000
Genetic AllianceFY2025$5,198
Genetic Alliance INCMD · FY2024$10,729
Charles River Laboratories INCFY2023$251,818
Genetic Alliance INCMD · FY2023$6,197
Ut Southwestern Medical CenterFY2022$351,701
Jackson LaboratoryME · FY2020$145,407

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$321K
Ln 12
Gifts and grantsLn 1h$319K
Investment incomeLn 3$2K
Money outPt IX
$312K
Ln 25
Programscol B$196K
Managementcol C$70K
Fundraisingcol D$46K
Owns and owesPt X
$232K
net assets · Ln 32
Cash and savingsLn 1–2$220K
Total assetsLn 16$232K
LiabilitiesLn 26$0
PeoplePt VI, VII
15
listed · VII A
PaidVII A0
Voting boardVI 1a15
IndependentVI 1b15
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$319K
Noncash giftsLn 1g$26K
Fundraising eventsLn 1c$94K
Investment incomeLn 3$2K
Total revenueLn 12$321K
Assets in detailPt X, end of year
CashLn 1$119K
SavingsLn 2$101K
Cash and savings togetherLn 1–2$220K
Land, buildings, equipmentLn 10c$6K
Total assetsLn 16$232K
LiabilitiesLn 26$0
Net assetsLn 32$232K
OperationsPt I, VI
EmployeesI 57
VolunteersI 6125
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$215K$220K
Land, buildings, equipmentLn 10c$9K$6K
Total assetsLn 16$224K$232K
LiabilitiesLn 26$777$0
Net assetsLn 32$223K$232K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$25K$25K
Other salaries and wagesLn 7$176K$108K$38K$30K
Payroll taxesLn 10$15K$5K$5K$5K
Accounting feesLn 11c$11K$11K
Other fees for servicesLn 11g$2K$1K$1K
Advertising and promotionLn 12$2K$2K$318$159
Office expensesLn 13$1K$186$661$181
Information technologyLn 14$15K$9K$4K$2K
OccupancyLn 16$191$65$63$63
Conferences, conventions and meetingsLn 19$9K$9K
Depreciation, depletion and amortizationLn 22$3K$3K
InsuranceLn 23$3K$3K
Other expenses (24a–d)Ln 24$47K$37K$3K$7K
All other expensesLn 24e$948$148$657$143
Total functional expensesLn 25$312K$196K$70K$46K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $321K$312K$9K$232K 990 PDF
FY2024 $331K$388K−$58K$223K 990 PDF
FY2023 $305K$638K−$333K$281K 990 PDF
FY2022 $720K$646K$74K$614K 990 PDF
FY2021 $563K$423K$140K$540K 990 PDF
FY2020 $354K$378K−$24K$399K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2025 990 (6 parts)
Part I · Summary $320,623 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $327,841$318,729
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $1,046$1,894
I-11 Other revenuePrior year $1,629$0
I-12 Total revenuePrior year $330,516$320,623
I-13 Grants and similar amounts paidPrior year $10,729$25,198
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $225,846$190,427
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $151,657$96,012
I-18 Total expensesPrior year $388,232$311,637
I-19 Revenue less expensesPrior year −$57,716$8,986
Part VI · Governance 15 of 15 board members independent, no flags
VI-1a Voting members of the governing body15
VI-1b Independent voting members15
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $320,623 across 7 lines filed
VIII-1c Fundraising events$94,436
VIII-1f All other contributions, gifts and grants$224,293
VIII-1g Noncash contributions (included above)$26,000
VIII-1h Total contributions, gifts and grants$318,729
VIII-3 Investment incomeRelated to mission $1,894$1,894
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $1,894 · Unrelated business $0 · Excluded from tax $0$320,623
Part IX · Statement of functional expenses $311,637 across 14 lines filed
IX-1 Grants to domestic organizationsPrograms $25,198$25,198
IX-7 Other salaries and wagesPrograms $107,564 · Management $38,393 · Fundraising $29,813$175,770
IX-10 Payroll taxesPrograms $5,130 · Management $4,690 · Fundraising $4,837$14,657
IX-11c Accounting feesManagement $10,900$10,900
IX-11g Other fees for servicesPrograms $1,375 · Fundraising $1,125$2,500
IX-12 Advertising and promotionPrograms $1,839 · Management $318 · Fundraising $159$2,316
IX-13 Office expensesPrograms $186 · Management $661 · Fundraising $181$1,028
IX-14 Information technologyPrograms $8,594 · Management $4,286 · Fundraising $2,143$15,023
IX-16 OccupancyPrograms $65 · Management $63 · Fundraising $63$191
IX-19 Conferences, conventions and meetingsPrograms $9,369$9,369
IX-22 Depreciation, depletion and amortizationManagement $3,217$3,217
IX-23 InsuranceManagement $3,180$3,180
IX-24 Other expenses (24a–d)Programs $36,614 · Management $3,460 · Fundraising $7,266$47,340
IX-24e All other expensesPrograms $148 · Management $657 · Fundraising $143$948
IX-25 Total functional expensesPrograms $196,082 · Management $69,825 · Fundraising $45,730$311,637
Part X · Balance sheet $232,078 assets, 10 lines filed
X-1 Cash, non-interest-bearingStart of year $215,102$119,074
X-2 Savings and temporary cash investments$101,048
X-10c Land, buildings and equipment, netStart of year $8,767$6,262
X-14 Intangible assets$5,694
X-16 Total assetsStart of year $223,869$232,078
X-26 Total liabilitiesStart of year $777$0
X-27 Net assets without donor restrictionsStart of year $204,017$138,003
X-28 Net assets with donor restrictionsStart of year $19,075$94,075
X-32 Total net assets or fund balancesStart of year $223,092$232,078
X-33 Total liabilities and net assetsStart of year $223,869$232,078
Part XI · Reconciliation of net assets $232,078 net assets at year end
XI-1 Total revenue$320,623
XI-2 Total expenses$311,637
XI-3 Revenue less expenses$8,986
XI-4 Net assets at start of year$223,092
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$232,078

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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